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Poor communication or misunderstanding?
So... I saw my NHS Consultant on Monday about my leg pain and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated. Long story short she's told me I have to go on the progesterone only pill while I wait for my 1st Lap (hopefully less than 6
So... I saw my NHS Consultant on Monday about my leg pain and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated. Long story short she's told me I have to go on the progesterone only pill while I wait for my 1st Lap (hopefully less than 6
endo_the_stigma
in
Endometriosis UK
6 months ago
Hyperthyroid and Graves preparing for endo appointment!
Hi all! First post here and very grateful to have come across the wealth of information on this site. I have thyroid ultrasound and levels checked yearly and they always came back normal until this year: [u]4.08. 2023[/u] TSH: 0.26 (0.4 - 4.5) T3: 1.20 (0.6 - 17) T4: 8.60 (0.8 - 19) [u]8.09.2023
Hi all! First post here and very grateful to have come across the wealth of information on this site. I have thyroid ultrasound and levels checked yearly and they always came back normal until this year: [u]4.08. 2023[/u] TSH: 0.26 (0.4 - 4.5) T3: 1.20 (0.6 - 17) T4: 8.60 (0.8 - 19) [u]8.09.2023
ElleBee99
in
Thyroid UK
8 months ago
Opioids
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
RLSdaily
in
Restless Legs Syndrome
6 months ago
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In the last few years I have put on a lot of weight on my stomach.. but have very slim arms and legs. My waist is now 48 inches. I cannot wear anything that zips up etc around my waist. I am normally a 32 inch waist. I have had my pituitary gland looked at, and it is slightly enlarged, but nothing
In the last few years I have put on a lot of weight on my stomach.. but have very slim arms and legs. My waist is now 48 inches. I cannot wear anything that zips up etc around my waist. I am normally a 32 inch waist. I have had my pituitary gland looked at, and it is slightly enlarged, but nothing
PaulaGreene
in
Thyroid UK
11 months ago
Should I apply sick day rules following a foot operation?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
Mfaepink1973
in
PMRGCAuk
6 months ago
Comments on Results Please
Good Afternoon I am currently on 2.5 mg Carbimazole 3 times a week. Have 2 overproducing thyroid nodules and was diagnosed Hyperthyroid in 2019. Have been sent back to GP for monitoring as haven’t proceeded with treatment i.e RAI. TSH 3.59 0.27 to 4.20 T4 15.4 12.0 to 22.0 T3
Good Afternoon I am currently on 2.5 mg Carbimazole 3 times a week. Have 2 overproducing thyroid nodules and was diagnosed Hyperthyroid in 2019. Have been sent back to GP for monitoring as haven’t proceeded with treatment i.e RAI. TSH 3.59 0.27 to 4.20 T4 15.4 12.0 to 22.0 T3
Hugoo
in
Thyroid UK
8 months ago
At my wits end
Hi Everybody, Can I buy the Tirsint or not , on Tirosint. Com. I obviously haven't been Prescribed it, as in uk. It'll i can't get it .I'm at wits end . I ask before doctor if they can change it , and they say there is no other medicine .is this true ? How come , just got message say ask for other
Hi Everybody, Can I buy the Tirsint or not , on Tirosint. Com. I obviously haven't been Prescribed it, as in uk. It'll i can't get it .I'm at wits end . I ask before doctor if they can change it , and they say there is no other medicine .is this true ? How come , just got message say ask for other
Goldengirl69
in
Thyroid UK
11 months ago
Stress - I ignored the obvious ...
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
Predderman2020
in
PMRGCAuk
6 months ago
Oxycodone - the way forward or a dead end?
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
etchea33
in
Restless Legs Syndrome
6 months ago
Vitamin and mineral supplements? My latest results
Hi all, I've just had my latest Blue Horizon results (see image) which I would welcome comments on, particularly regarding the vitamins and minerals I might need to supplement. All blood tests were done no later than 9.30am, no levo for 24 hours before. I've worked really hard this year on my diet, but
Hi all, I've just had my latest Blue Horizon results (see image) which I would welcome comments on, particularly regarding the vitamins and minerals I might need to supplement. All blood tests were done no later than 9.30am, no levo for 24 hours before. I've worked really hard this year on my diet, but
Forestgarden
in
Thyroid UK
8 months ago
Advice please
Hi All, I was diagnosed with an overactive thyroid in January 23, I had felt unwell during 2022 but thought it was all menopausal, I had cancer removed from my face and my best friend died all in the October and I had covid in the December, I had become very anxious, hot, angry, tired hungry and started
Hi All, I was diagnosed with an overactive thyroid in January 23, I had felt unwell during 2022 but thought it was all menopausal, I had cancer removed from my face and my best friend died all in the October and I had covid in the December, I had become very anxious, hot, angry, tired hungry and started
RachelatSkyfall
in
Thyroid UK
8 months ago
Urgently seeking pain management tips
Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a couple of separate posts, so this does not become convoluted, but my most immediate need is finding some resolution for the increasing pain I am
Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a couple of separate posts, so this does not become convoluted, but my most immediate need is finding some resolution for the increasing pain I am
13plus
in
SHARE Metastatic Breast Cancer
6 months ago
RAI and persisting inflammation research
Not sure if this has already been posted, but will definitely be following this: BTF research award: 'Does persisting thyroid inflammation explain poor quality of life after radioiodine therapy (RAI)?' https://www.btf-thyroid.org/btf-research-award-winner-2023 Just reading the title I thought OMG
Not sure if this has already been posted, but will definitely be following this: BTF research award: 'Does persisting thyroid inflammation explain poor quality of life after radioiodine therapy (RAI)?' https://www.btf-thyroid.org/btf-research-award-winner-2023 Just reading the title I thought OMG
Forestgarden
in
Thyroid UK
8 months ago
Blood Results - and poor treatment/support from NHS - feel lost and unwell
I have been diagnosed severe Graves with high antibodies for about 8 years and suffered a number of relapses where usually end up in A&E. Due to reading a lot on this forum and other websites I have refused RAI treatment due to the often poor outcomes and don’t really want surgery either as read about
I have been diagnosed severe Graves with high antibodies for about 8 years and suffered a number of relapses where usually end up in A&E. Due to reading a lot on this forum and other websites I have refused RAI treatment due to the often poor outcomes and don’t really want surgery either as read about
LonelyPlace
in
Thyroid UK
8 months ago
Help please
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
Liseann
in
Endometriosis UK
6 months ago
help with gp
hi everyone. I was diagnosed with fibromyalgia a couple of years ago and initially just told to take paracetamol and pace myself by my gp. Early 2023 I saw my gp as my pain was so bad I was off work. I wasn’t sleeping and was prescribed amitriptalyne 10-20 mg each night and my gp made a referral to the
hi everyone. I was diagnosed with fibromyalgia a couple of years ago and initially just told to take paracetamol and pace myself by my gp. Early 2023 I saw my gp as my pain was so bad I was off work. I wasn’t sleeping and was prescribed amitriptalyne 10-20 mg each night and my gp made a referral to the
NannaMillie21
in
Fibromyalgia Action UK
6 months ago
Iodine
I know there are discussions about the possibility of worsening Hashimotos but would there be a problem having a very low dose of it whilst on T3 and T4 meds if careful?
I know there are discussions about the possibility of worsening Hashimotos but would there be a problem having a very low dose of it whilst on T3 and T4 meds if careful?
Rock_chick1
in
Thyroid UK
11 months ago
steroid injection for back pain with pain team?
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
Louiseelaine
in
Stanmore Young Spine Group
7 months ago
Tinnitus louder than usual
I had inflammation in my right ear with headache, doctor gave me Otomize, but the headache was still there, went back to the doctor told me to see a pharmacist, they gave me nurofen, didn’t help, went back to the doctor again, they gave me antibiotics and codeine, this seemed to make my headaches worse
I had inflammation in my right ear with headache, doctor gave me Otomize, but the headache was still there, went back to the doctor told me to see a pharmacist, they gave me nurofen, didn’t help, went back to the doctor again, they gave me antibiotics and codeine, this seemed to make my headaches worse
Laineysim51
in
Tinnitus UK
7 months ago
On Lithium, have hypothyroidism,no longer responding to T4 and less to T3. Starting low iodine diet.
I have just started a low Iodine diet as set out by a recent book advocating this to reset the thyroid for Hypothyroidism patients. I have been on Lithium by Bipolar for 15 years. 7 years ago I developed Hypothyroidism. Initially I partially responded to T4 but after 3-4 years I completely slowed down
I have just started a low Iodine diet as set out by a recent book advocating this to reset the thyroid for Hypothyroidism patients. I have been on Lithium by Bipolar for 15 years. 7 years ago I developed Hypothyroidism. Initially I partially responded to T4 but after 3-4 years I completely slowed down
RosannaA
in
Thyroid UK
11 months ago
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