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A recent consultation with a CLL specialist, and confirmation of genetic markers
My wife had an appointment with CLL specialist Dr. C. Chen yesterday. We also performed other blood tests. I had a pleasant consultation with Dr. Chen. I was perplexed because of the TP53 mutation, whether it was discovered or not. I posted an earlier post that she has a TP53 mutation. I am sorry for
My wife had an appointment with CLL specialist Dr. C. Chen yesterday. We also performed other blood tests. I had a pleasant consultation with Dr. Chen. I was perplexed because of the TP53 mutation, whether it was discovered or not. I posted an earlier post that she has a TP53 mutation. I am sorry for
Sagarcanada
in
CLL Support
2 months ago
Beatsons Glasgow RAI
Sorry, reposting due to stupid autocorrect! Have had total thyroidectomy and removal of lymph glands. Now waiting for appointment for RAI at Beatsons, Glasgow. Can anyone tell me what to expect and what it's like staying as RAI patient in Beatsons?
Sorry, reposting due to stupid autocorrect! Have had total thyroidectomy and removal of lymph glands. Now waiting for appointment for RAI at Beatsons, Glasgow. Can anyone tell me what to expect and what it's like staying as RAI patient in Beatsons?
HelenaJ
in
Thyroid UK
2 months ago
Bastions Glasgow
Hi, I'm due to get radioactive iodine soon. Can anyone tell me what to expect and what it will be like in Beatsons?
Hi, I'm due to get radioactive iodine soon. Can anyone tell me what to expect and what it will be like in Beatsons?
HelenaJ
in
Thyroid UK
2 months ago
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Several symptoms pointing to kidney issue ?
Hi all, new to this forum :) I'm 50y old male thin body, I've noticed that after eating certain foods, my blood pressure starts rising. For instance I did eat roasted peanuts (no salt) 2oz/day for several weeks, blood pressure went from 110 to 145. Stopped eating them, in two weeks bp went back to 110
Hi all, new to this forum :) I'm 50y old male thin body, I've noticed that after eating certain foods, my blood pressure starts rising. For instance I did eat roasted peanuts (no salt) 2oz/day for several weeks, blood pressure went from 110 to 145. Stopped eating them, in two weeks bp went back to 110
oragex
in
Kidney Disease
7 months ago
need ammunition to stop Endo reducing my T3
Hello, this is my second post concerning the fact that my Consultant's Registrar wants to lower my T3 from 10mg but keep me on 54 mcg of Levo as my TSH is supressed. I have no thyroid after it was destroyed with RAI.However his Registrar was abrupt, merely telling me that my T3 must be reduced because
Hello, this is my second post concerning the fact that my Consultant's Registrar wants to lower my T3 from 10mg but keep me on 54 mcg of Levo as my TSH is supressed. I have no thyroid after it was destroyed with RAI.However his Registrar was abrupt, merely telling me that my T3 must be reduced because
HilaryWB
in
Thyroid UK
2 months ago
Help! My endo wants to cut back my T3!
I have no natural thyroid as it was destroyed 40+ years ago after I went Hyperthyroid afyer my second child was born and diagnosed with Hashimotos and put onto Levothyroxine .I I can say is that those years were dreadful, my GPs kept changing the dose, I was exhausted all the time, so they upped the
I have no natural thyroid as it was destroyed 40+ years ago after I went Hyperthyroid afyer my second child was born and diagnosed with Hashimotos and put onto Levothyroxine .I I can say is that those years were dreadful, my GPs kept changing the dose, I was exhausted all the time, so they upped the
HilaryWB
in
Thyroid UK
2 months ago
Perplexing results. I wondered if anyone had any thoughts?
I was wondering if any one had any thoughts on my results I’m 14 years post RAI and have been on levothyroxine for 8 years and I seem to be very sensitive to dose change. I don’t have thyroid antibodies just a toxic adenoma. They run my T4 higher around 19- 22 for conversion for T3, my consultant
I was wondering if any one had any thoughts on my results I’m 14 years post RAI and have been on levothyroxine for 8 years and I seem to be very sensitive to dose change. I don’t have thyroid antibodies just a toxic adenoma. They run my T4 higher around 19- 22 for conversion for T3, my consultant
Realfoodieclub
in
Thyroid UK
2 months ago
Low fT4, but midrange fT3. Feeling cold, brain fog.
Hi there, male, 64, fit, no problems besides this: for about 3 years I´m having symptoms like feeling cold, brain fog, and most things one would consider to be low thyroid function. I did a lot of blood tests in the last year. Most values are ok. Zinc, Vit B, Selen etc. has all been tested ok, too
Hi there, male, 64, fit, no problems besides this: for about 3 years I´m having symptoms like feeling cold, brain fog, and most things one would consider to be low thyroid function. I did a lot of blood tests in the last year. Most values are ok. Zinc, Vit B, Selen etc. has all been tested ok, too
gd33
in
Thyroid UK
7 months ago
Graves disease Auto Immune Diet
Hello again. All has settled with tablets. Thyroid levels are normal again, so my Carbimazole dose has been reduced by half to 5 mg per day. I just wondered if anyone had tried any Thyroid diet plans with success. Not necessarily to lose weight, though I've put nearly a stone on with ATD but more
Hello again. All has settled with tablets. Thyroid levels are normal again, so my Carbimazole dose has been reduced by half to 5 mg per day. I just wondered if anyone had tried any Thyroid diet plans with success. Not necessarily to lose weight, though I've put nearly a stone on with ATD but more
Spagbol24
in
Thyroid UK
2 months ago
combined therapy help
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
DancerLisboa
in
Thyroid UK
2 months ago
Devastated
I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am pissed and scared. I had 3 months on Wait and Watch. Chronic was supposed to mean 3 years or 10 years before treatment. My wife and I are driving
I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am pissed and scared. I had 3 months on Wait and Watch. Chronic was supposed to mean 3 years or 10 years before treatment. My wife and I are driving
Hidden
in
CLL Support
2 months ago
Time to come off Ropinerole 4 years after being on Pramepexole 7 years. What else can I try????
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
Maddie1000
in
Restless Legs Syndrome
1 year ago
Surgery or not.
Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was coming. She basically said wasent happen as throughout the year never found right dose or balance for it. Had gone from hyper to hypo very quickly
Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was coming. She basically said wasent happen as throughout the year never found right dose or balance for it. Had gone from hyper to hypo very quickly
JoMax
in
Thyroid UK
2 months ago
latest results
for the collective wisdom please: Radio iodine ablation 13/12/19 21/11/23 Mono treatment T4 @ 175mcg TSH below range FT3 5.23 (3.5-6.8) FT4 16.8 (7.8-18) Doctor reduced dose to 150! Without consultation My 2 cents: TSH not relevant still only mid range FT3. So need combined T3/T4 treatment.
for the collective wisdom please: Radio iodine ablation 13/12/19 21/11/23 Mono treatment T4 @ 175mcg TSH below range FT3 5.23 (3.5-6.8) FT4 16.8 (7.8-18) Doctor reduced dose to 150! Without consultation My 2 cents: TSH not relevant still only mid range FT3. So need combined T3/T4 treatment.
Bigthensmallthenbig
in
Thyroid UK
7 months ago
Tirosint
Dear all I have been reading posts on and off since I "joined" this forum, and see that a lot of good advice and support has been given. But have never taken taken the plunge in asking for help and advice, so here goes. I was finally diagnosed with Graves disease in 2018, given radio iodine therapy a
Dear all I have been reading posts on and off since I "joined" this forum, and see that a lot of good advice and support has been given. But have never taken taken the plunge in asking for help and advice, so here goes. I was finally diagnosed with Graves disease in 2018, given radio iodine therapy a
Rara8
in
Thyroid UK
7 months ago
long term carbimazole
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
Platypus8
in
Thyroid UK
3 months ago
Stopped taking NDT thyroid
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Monika4
in
Thyroid UK
8 months ago
Carbimazole and severe bloating
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
Spagbol24
in
Thyroid UK
3 months ago
Iodine
I plan to start taking iodine, does anybody know if it is ok to take with thyroid meds. I take N.D.T. Thyroid S?
I plan to start taking iodine, does anybody know if it is ok to take with thyroid meds. I take N.D.T. Thyroid S?
Margo
in
Thyroid UK
8 months ago
Wasting Time
Just spent a few minutes idly watching levothyroxine and Liothyronine! This links to Levothyroxine: https://pubchem.ncbi.nlm.nih.gov/compound/5819#section=3D-Conformer&fullscreen=true This links to Liothyronine: https://pubchem.ncbi.nlm.nih.gov/compound/5920#section=3D-Conformer&fullscreen=true
Just spent a few minutes idly watching levothyroxine and Liothyronine! This links to Levothyroxine: https://pubchem.ncbi.nlm.nih.gov/compound/5819#section=3D-Conformer&fullscreen=true This links to Liothyronine: https://pubchem.ncbi.nlm.nih.gov/compound/5920#section=3D-Conformer&fullscreen=true
helvella
Thyroid UK
in
Thyroid UK
8 months ago
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