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Polyglucosan body disease
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HEP B TREATMENTS
Hi, I saw my doctor today. I have had HEP B for many years. My doctor was only monitoring it. Today he told me that he is very concerned about my ALT levels. He recommend to start antiviral medications now as he is concerned about the cancer risk. I asked him if I will be taking them for the rest of
Hi, I saw my doctor today. I have had HEP B for many years. My doctor was only monitoring it. Today he told me that he is very concerned about my ALT levels. He recommend to start antiviral medications now as he is concerned about the cancer risk. I asked him if I will be taking them for the rest of
LittleShrew
in
British Liver Trust
9 months ago
First PSA test post radiation and Orgovyx
My husband had his first PSA test today… about a month after 28 proton radiation treatments, and over two months on Orgovyx… Result: <0.10 This seems really good to us! ( last PSA was 46.6 before treatment) Does it sound like a good result to all of you at this stage? Meeting with medical oncology
My husband had his first PSA test today… about a month after 28 proton radiation treatments, and over two months on Orgovyx… Result: <0.10 This seems really good to us! ( last PSA was 46.6 before treatment) Does it sound like a good result to all of you at this stage? Meeting with medical oncology
CancerConcierge
in
Advanced Prostate Cancer
9 months ago
Lupus SLE, APS, Vasculitis
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
Newlupus76
in
LUPUS UK
7 months ago
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Cholesterol, pred and PMR?
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
MamaBeagle
in
PMRGCAuk
6 months ago
Lupron and prostate cancer
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
rolex1951
in
Advanced Prostate Cancer
9 months ago
Very low blood pressure
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Quovadisuk
in
Atrial Fibrillation Support
6 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
7 months ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
7 months ago
I am 70 years of age & pretty much alone
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
Floral777
in
Thyroid UK
7 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this
FREE
event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation and much more! You will also have the chance
There is still time to register for this
FREE
event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation and much more! You will also have the chance
TracyAdmin
Partner
in
AF Association
6 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
6 months ago
Atrial Fibrillation Association Patients Day On-Demand now!
Atrial Fibrillation Association Patients Day On-Demand now! Heart racing? Palpitations? Breathlessness? How do you manage living with AF? Join us from the comfort of your home to hear from medical experts in AF. You will be able to manage living with AF so much better after watching these presentations
Atrial Fibrillation Association Patients Day On-Demand now! Heart racing? Palpitations? Breathlessness? How do you manage living with AF? Join us from the comfort of your home to hear from medical experts in AF. You will be able to manage living with AF so much better after watching these presentations
TracyAdmin
Partner
in
AF Association
6 months ago
niacin as cause of strokes and heart attacks?
I know a lot of us taking B Complex so posting this article to hear your thoughts. I take one from cytoplasm where it’s 16mg, I wonder if this is ok 🤔 https://www.newscientist.com/article/2417665-niacin-supplements-linked-to-greater-risk-of-heart-attacks-and-strokes/ [ Link edited to remove potentially
I know a lot of us taking B Complex so posting this article to hear your thoughts. I take one from cytoplasm where it’s 16mg, I wonder if this is ok 🤔 https://www.newscientist.com/article/2417665-niacin-supplements-linked-to-greater-risk-of-heart-attacks-and-strokes/ [ Link edited to remove potentially
Kari55
in
Thyroid UK
6 months ago
Travelling abroad with coeliac
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Welshtoffee
in
Gluten Free Guerrillas
7 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
7 months ago
B12 stored in liver ?
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Spritze
in
Thyroid UK
9 months ago
"High levels of niacin linked to heart disease, new research suggests"
"High levels of niacin, an essential B vitamin, may raise the risk of heart disease by triggering inflammation and damaging blood vessels, according to new research. The report, published Monday in Nature Medicine, revealed a previously unknown risk from excessive amounts of the vitamin ..." https:/
"High levels of niacin, an essential B vitamin, may raise the risk of heart disease by triggering inflammation and damaging blood vessels, according to new research. The report, published Monday in Nature Medicine, revealed a previously unknown risk from excessive amounts of the vitamin ..." https:/
JackBruce2024
in
Cure Parkinson's
6 months ago
Drop in resting heart rate since pred
HiI have been on 40mg pred for suspected GCA for2 weeks now. ( actually was 60 in first week then dropped to 40 in second). I had a temporal artery biopsy yesterday so resting up and taking it easy. I wear a fitbit so am aware of my usual resting heart rate. It is normally between 61-65. When asleep
HiI have been on 40mg pred for suspected GCA for2 weeks now. ( actually was 60 in first week then dropped to 40 in second). I had a temporal artery biopsy yesterday so resting up and taking it easy. I wear a fitbit so am aware of my usual resting heart rate. It is normally between 61-65. When asleep
kalgoorlie
in
PMRGCAuk
6 months ago
Health Anxiety over liver damage
Hello, I’m 34 year old female who has definitely over indulged in wine the last few years. my husband and I were living the expat life prior to 2020 and drank a lot with friends and at home. i have had a few breaks since 2020 which was about 10 months in 2020 and nearly 12 months in 2022. Since
Hello, I’m 34 year old female who has definitely over indulged in wine the last few years. my husband and I were living the expat life prior to 2020 and drank a lot with friends and at home. i have had a few breaks since 2020 which was about 10 months in 2020 and nearly 12 months in 2022. Since
Santababy89
in
British Liver Trust
9 months ago
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