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Polyglucosan body disease
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Possible kidney disease
Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which
Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which
MusicalFurbaby
in
LUPUS UK
7 months ago
Is HE always inevitable with severe chronic liver disease?
My daughter has been told there is nothing more the doctors can do for her multiple hepatic adenomas. Transplant is not an option, due to serious underlying health conditions and also total lack of fitness . She has at least 15 of these tumours taking over her liver now. She has had a resection last
My daughter has been told there is nothing more the doctors can do for her multiple hepatic adenomas. Transplant is not an option, due to serious underlying health conditions and also total lack of fitness . She has at least 15 of these tumours taking over her liver now. She has had a resection last
Mami77
in
British Liver Trust
7 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
5 months ago
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skin tears
I have vasculitis, MPA, microscopic Polyangiitis, and have been on prednisone for 3 years. Currently I am on 2.5 mg. Recently I developed several skin tears on my legs. Saw my rheumatologist yesterday and he told me to stop the prednisone. Suggestions please…can I just stop the 2.5 or should I taper
I have vasculitis, MPA, microscopic Polyangiitis, and have been on prednisone for 3 years. Currently I am on 2.5 mg. Recently I developed several skin tears on my legs. Saw my rheumatologist yesterday and he told me to stop the prednisone. Suggestions please…can I just stop the 2.5 or should I taper
GinnyMa
in
Vasculitis UK
4 months ago
Lupus flare
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Flows
in
LUPUS UK
5 months ago
sulfasalazine side effects
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
girldoc
in
NRAS
5 months ago
New here 🤗
Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Pammygtf
in
Thyroid UK
5 months ago
updated journey
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
ScriptMaz
in
Thyroid UK
5 months ago
Amiodarone & tadalafil?
Anyone been prescribed tadalafil 5mg for BPH when on Amiodarone (200mg) daily?
Anyone been prescribed tadalafil 5mg for BPH when on Amiodarone (200mg) daily?
KenRC
in
Atrial Fibrillation Support
4 months ago
depo provera worst sides effects
hi everyone , I need your advice please I got the depo shot on the 24th of January and it’s going to expire on the 18th of April , since then it’s like I’m living is someone body , i have turned into someone I don’t know , I am always sad , I have severe anxiety, severe depression, panic attacks, I’m
hi everyone , I need your advice please I got the depo shot on the 24th of January and it’s going to expire on the 18th of April , since then it’s like I’m living is someone body , i have turned into someone I don’t know , I am always sad , I have severe anxiety, severe depression, panic attacks, I’m
Aromat
in
Endometriosis UK
4 months ago
Medication review
I have recently had a medication review from my GP(pharmacist). As I have now turned 65 it looks like in addition to the Flecainide/Bisoprolol I also will also need anticoagulants. I was diagnosed with loan Paroxysmal AF about 20 years ago but have only had 2 episodes in the last 4 years and the most
I have recently had a medication review from my GP(pharmacist). As I have now turned 65 it looks like in addition to the Flecainide/Bisoprolol I also will also need anticoagulants. I was diagnosed with loan Paroxysmal AF about 20 years ago but have only had 2 episodes in the last 4 years and the most
SteM
in
Atrial Fibrillation Support
4 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
6 months ago
‘AF-related stroke – getting to the heart of the matter’
Having an irregular heart rhythm, such as AF can lead to an AF-related stroke which can prove fatal. Anticoagulants, significantly lower the risk of blood clots and preventing an AF-related stroke. For further information. View our ‘AF-related stroke – getting to the heart of the matter’ video: https
Having an irregular heart rhythm, such as AF can lead to an AF-related stroke which can prove fatal. Anticoagulants, significantly lower the risk of blood clots and preventing an AF-related stroke. For further information. View our ‘AF-related stroke – getting to the heart of the matter’ video: https
TracyAdmin
Partner
in
Atrial Fibrillation Support
4 months ago
Specialist results.
Morning all you beautiful people. Well just a follow up on my last post. I saw my Respiratory specialist at the hospital Chest clinic on Wednesday last, and not sure how I feel at the moment, he has spoken to the doctors at Barts in London and they said I would not benefit from Lung reduction surgery
Morning all you beautiful people. Well just a follow up on my last post. I saw my Respiratory specialist at the hospital Chest clinic on Wednesday last, and not sure how I feel at the moment, he has spoken to the doctors at Barts in London and they said I would not benefit from Lung reduction surgery
purdeyspringer
in
Lung Conditions Community Forum
4 months ago
cardio version
I’ve had Cardio Version 22.3.24 Was told i was back in sinus rhythm GREAT!!! Saturday 23.3.24 late evening everything went haywire racing heart dropping beats which I think I brought on myself by being upset and angry over something. I wished I could control my emotions better! Any way Apple Watch
I’ve had Cardio Version 22.3.24 Was told i was back in sinus rhythm GREAT!!! Saturday 23.3.24 late evening everything went haywire racing heart dropping beats which I think I brought on myself by being upset and angry over something. I wished I could control my emotions better! Any way Apple Watch
Tommyann
in
Atrial Fibrillation Support
4 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
7 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
7 months ago
Has anyone been prescribed Fluoxetine for Raynaud's?
I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3 phase Raynaud's attacks these days but my fingers are often blue for long periods of time despite being in a warm environment and my feet suffer
I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3 phase Raynaud's attacks these days but my fingers are often blue for long periods of time despite being in a warm environment and my feet suffer
lynntregaron
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Atrial Fibrillation
I’ve had persistent AF for about the past 10 years. Had one ablation but only in SR for about 6months Taking Edoxaban, Enalapril and Channel Blockers. No follow up, just yearly MOT. I feel forgotten 86 year old. Overweight. Also with Angina and a wife, who I love dearly, suffering from Alzheimer’
I’ve had persistent AF for about the past 10 years. Had one ablation but only in SR for about 6months Taking Edoxaban, Enalapril and Channel Blockers. No follow up, just yearly MOT. I feel forgotten 86 year old. Overweight. Also with Angina and a wife, who I love dearly, suffering from Alzheimer’
hoppy77
in
Atrial Fibrillation Support
4 months ago
worried
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
Candycru
in
British Liver Trust
5 months ago
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