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Plaquenil
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Newly diagnosed
I was given a steroid injection because of active inflammation and put on
Plaquenil
. I am having a bad flare at the moment - it has never been this bad before. I have been feeling quite tearful today, which is very unusual for me, and wondered if this may be as a result of the medication.
I was given a steroid injection because of active inflammation and put on
Plaquenil
. I am having a bad flare at the moment - it has never been this bad before. I have been feeling quite tearful today, which is very unusual for me, and wondered if this may be as a result of the medication.
ChocolateTeapot
in
LUPUS UK
12 years ago
Lips peeling of skin!!
I blame it on Hydroxy/
plaquenil
.
I blame it on Hydroxy/
plaquenil
.
Hidden
in
LUPUS UK
12 years ago
MTX versus RA
Only fully diagnosed in july and already had
plaquenil
which was awful. On folic acid 3 times a week and arcoxia. So fed up at moment. Sorry for going on just dont know when i will finally accept this.
Only fully diagnosed in july and already had
plaquenil
which was awful. On folic acid 3 times a week and arcoxia. So fed up at moment. Sorry for going on just dont know when i will finally accept this.
BossyB
in
NRAS
12 years ago
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painful itchy rash round my neck, Lupus?
I have SLE and on
plaquenil
40mg. Any advice would be great thanks. Julie x
I have SLE and on
plaquenil
40mg. Any advice would be great thanks. Julie x
Jban
in
LUPUS UK
12 years ago
need some real quick answers
just calld doc on call in er anybody got any ideas jet maybe a reaction to
plaquenil
up to 400 mls a day now ?????
just calld doc on call in er anybody got any ideas jet maybe a reaction to
plaquenil
up to 400 mls a day now ?????
jetjetjet
in
Hughes Syndrome APS Forum
12 years ago
Life as it has been for me since I can remember.
After a the tests came back positive as per the APS protocol I was placed on a baby Aspirin and
Plaquenil
. I continued to see Rheumy and things were starting to get back in March of 2011. I still had pain, still suffered from fatigue but I was able to deal with it.
After a the tests came back positive as per the APS protocol I was placed on a baby Aspirin and
Plaquenil
. I continued to see Rheumy and things were starting to get back in March of 2011. I still had pain, still suffered from fatigue but I was able to deal with it.
APSdsntHaveMe
in
Hughes Syndrome APS Forum
13 years ago
was feeling a little low
I am also on 600mg of
plaquenil
daily...I am not normal!!!! So I gently encouraged him to give me clexane until I am seen at St Thomas'. I felt like a bit of a bully but at the end of the day, I want to be well enough to get to that appointment next week.
I am also on 600mg of
plaquenil
daily...I am not normal!!!! So I gently encouraged him to give me clexane until I am seen at St Thomas'. I felt like a bit of a bully but at the end of the day, I want to be well enough to get to that appointment next week.
SharontheSheep
in
Hughes Syndrome APS Forum
13 years ago
Prof Hughes' blog - September 2011
She had had a long history of lupus, treated variously with
Plaquenil
and steroids over the years, and without severe kidney damage. Two years previously, she developed increasingly severe headaches, marked fatigue and widespread aches and pains.
She had had a long history of lupus, treated variously with
Plaquenil
and steroids over the years, and without severe kidney damage. Two years previously, she developed increasingly severe headaches, marked fatigue and widespread aches and pains.
Hidden
in
Hughes Syndrome APS Forum
13 years ago
Professor Hughes' blog October 2011
The improvement of patients with this clinical combination after starting
Plaquenil
and anticoagulation is often striking. The disappearance of the livedo is something we often see following successful warfarin anticoagulation.
The improvement of patients with this clinical combination after starting
Plaquenil
and anticoagulation is often striking. The disappearance of the livedo is something we often see following successful warfarin anticoagulation.
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Never give up!!
Towards the end of 2007 I was diagnosed with the double whammy SLE, I was started on
plaquenil
, prednisone, aspirin and 70mg clexane twice daily as soon as I became pregnant and to our surprise the pregnancy went like clock work and we had a beautiful boy @ 36 weeks in 2008...YAY!..
Towards the end of 2007 I was diagnosed with the double whammy SLE, I was started on
plaquenil
, prednisone, aspirin and 70mg clexane twice daily as soon as I became pregnant and to our surprise the pregnancy went like clock work and we had a beautiful boy @ 36 weeks in 2008...YAY!..
Linda72
in
Hughes Syndrome APS Forum
13 years ago
Poems
WORDS LIKE ‘ADVERBS, GERUNDS, NOUNS’ ~~~ I USED THEM EVERY DAY, BUT NOW THEY HAVE BEEN REPLACED WITH WORDS I CANNOT SAY… BLOOD TESTS,
PLAQUENIL
AND CLOTS, DIZZINESS, AND RINGING EARS. THIS STRANGER SEEMS TO MOCK ME SO, I SHAKE AND TREMOR AS I GO.
WORDS LIKE ‘ADVERBS, GERUNDS, NOUNS’ ~~~ I USED THEM EVERY DAY, BUT NOW THEY HAVE BEEN REPLACED WITH WORDS I CANNOT SAY… BLOOD TESTS,
PLAQUENIL
AND CLOTS, DIZZINESS, AND RINGING EARS. THIS STRANGER SEEMS TO MOCK ME SO, I SHAKE AND TREMOR AS I GO.
paddyandlin
in
Hughes Syndrome APS Forum
13 years ago
Not the whole truth because I've forgotten most of it!
I'm taking
Plaquenil
and Prasugrel (allergic to aspirin) and have felt an improvement in joints and ulcers and migraines since starting the prasugrel. OMG I nearly forgot the migraines!
I'm taking
Plaquenil
and Prasugrel (allergic to aspirin) and have felt an improvement in joints and ulcers and migraines since starting the prasugrel. OMG I nearly forgot the migraines!
SharontheSheep
in
Hughes Syndrome APS Forum
13 years ago
I haven't neglected you
I have been on
Plaquenil
for several years and it really has made a huge difference to me with the general fatigue and pains in joint, ulcers, hair loss and illness. Lots of love to you all Sharon xxx
I have been on
Plaquenil
for several years and it really has made a huge difference to me with the general fatigue and pains in joint, ulcers, hair loss and illness. Lots of love to you all Sharon xxx
SharontheSheep
in
Hughes Syndrome APS Forum
13 years ago
Prof Hughes' blog August 2011
She has been started on
Plaquenil
for the Sjogren’s aches and pains and warfarin for the Hughes Syndrome. I promise to give an update in a few months.
She has been started on
Plaquenil
for the Sjogren’s aches and pains and warfarin for the Hughes Syndrome. I promise to give an update in a few months.
Hidden
in
Hughes Syndrome APS Forum
13 years ago
Gadgets Story
I met Prof Hunt at St Thomas and I was put on Warfarin and
Plaquenil
and returned to work in 2 months! Thanks Prof Hunt!
I met Prof Hunt at St Thomas and I was put on Warfarin and
Plaquenil
and returned to work in 2 months! Thanks Prof Hunt!
Gadgets
in
Hughes Syndrome APS Forum
12 years ago
Wish me luck, Gp tomorrow!!!!Big move too!!!
Try again to get him prescribe
Plaquenil
. He had letter from Tommies last week and not bothered to contact me!! So the saga continues!!! Other news we moving back into pub trade. Taking over Woodman pub on Saturday and moving into flat above. Great less stairs!!! Al and barstaff doing the work.
Try again to get him prescribe
Plaquenil
. He had letter from Tommies last week and not bothered to contact me!! So the saga continues!!! Other news we moving back into pub trade. Taking over Woodman pub on Saturday and moving into flat above. Great less stairs!!! Al and barstaff doing the work.
jessielou
in
Hughes Syndrome APS Forum
13 years ago
Plaquenil at last!!!!
Hi all Finally, been to rheumy nurses clinic, she was lovely. Went through all details about the plaq, checked my eyes etc. Did bloods and if results ok on Monday can start them. So after all the stress and agro I got their. Another victory over bureaucratic b s!! Rheumy clinic is at a local hospital
Hi all Finally, been to rheumy nurses clinic, she was lovely. Went through all details about the plaq, checked my eyes etc. Did bloods and if results ok on Monday can start them. So after all the stress and agro I got their. Another victory over bureaucratic b s!! Rheumy clinic is at a local hospital
jessielou
in
Hughes Syndrome APS Forum
13 years ago
Low blood pressure
Hi all well I am now 4 days in with
plaquenil
, obviously not working yet, they take time. Side effects so far nausea, dizziness, abdominal pain, headache. Blood pressure very low, gp's on Monday need more steroids n antibiotics cos chest infection no better.
Hi all well I am now 4 days in with
plaquenil
, obviously not working yet, they take time. Side effects so far nausea, dizziness, abdominal pain, headache. Blood pressure very low, gp's on Monday need more steroids n antibiotics cos chest infection no better.
jessielou
in
Hughes Syndrome APS Forum
13 years ago
My path through the minefield too diagnosis.
I take warfarin, atorvastatin,
plaquenil
, pregabalin, tramadol, antihistamine, asthma meds etc. Apart from this lousy chest infection, I'm starting to feel better,especially when inr high!!!! We just took over pub and are really happy. My eldest daughter living across the road with her partner.
I take warfarin, atorvastatin,
plaquenil
, pregabalin, tramadol, antihistamine, asthma meds etc. Apart from this lousy chest infection, I'm starting to feel better,especially when inr high!!!! We just took over pub and are really happy. My eldest daughter living across the road with her partner.
jessielou
in
Hughes Syndrome APS Forum
12 years ago
St thomas's. Hughes consultant. Positive appointment.
The consultant was lovely, started on
plaquenil
and vit d with calcium, nobody noticed before that vit d level too low. Referral to a memory clinic, to try help with brain fog, cognitive disfunction etc. Anyone know of one in midlands area, that is any good with us hughies.
The consultant was lovely, started on
plaquenil
and vit d with calcium, nobody noticed before that vit d level too low. Referral to a memory clinic, to try help with brain fog, cognitive disfunction etc. Anyone know of one in midlands area, that is any good with us hughies.
jessielou
in
Hughes Syndrome APS Forum
13 years ago
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