Experiences with

Pizotifen

The Neurologist has given me PIZOTIFEN, which I'm reluctant to take, He has also requested for me to have BOTOX in DECEMBER. I have had an MRI and a CT scan and a test for MS, all tests came back normal.

It take pizotifen and amitriptyline for vestibular migraine which seems to reduce the headaches but doesn't help with the constant feeling of being on the deck of a ship or walking on a marshmallow floor. Is anyone else experiencing that?

He says pizotifen is working because my attacks have gone from 3 to 1 attacks per week. He says I should take co codamol or naproxen to help with head pain during attacks.

At my latest drug review, it was suggested I taper off pizotifen as I've been on it 6+ years and there may be long term effects on my liver if I keep taking it forever. Blood results ok at the moment.Anyone on here come off it after such a long time?

Neurologist did tell me if Pizotifen aren’t really working then GP could prescribe new injections but GP said no has to be by a hospital - wouldn’t he have known that?!?!

Hi, I am at my wits end, i have had migraine variant balance disorder for 6 years now i have been on propanolol, pizotifen, nortriptyline and now been advised to start candesarten which i am a little reluctant to try.

Currently (via Bupa paediatrician) been prescribed amytriptyline for pain (seems to have made no difference), and to prevent stomach migraine. Have been taking both for a week, but no difference, due to increase the pizotifen dose from tonight for another week.

I am on pizotifen and migraine care daily, and rizatriptan and aspirin for flare ups.

Fingers crossed it starts to help over the next couple of weeks, as I’ve already tried - Amitriptyline - Sumatriptan - Pizotifen - Propanolol - Ajovy - Topiramate And then will keep up with the treatment in the hopes that it should start to work 🤞🏼

I have tried taking Pizotifen, amitriptyline, and am still taking atenolol and venlafaxine. In June, I had a bi-lateral GON block which didn’t work. In August I was given my first dose of Botox.

Previously had pizotifen, imigran nasal spray, topiramate. Had 2 mri.

Previously had pizotifen, imigran nasal spray, topiramate. Had 2 mri.

She's had 2 mri previously been on pizotifen imigran and topiramate.

She's had 2 mri previously been on pizotifen imigran and topiramate.

The problem is I take Pizotifen at night which takes away the aura and a lot of the pain but I'm still getting dizzy with nauseaus. If I take Sumatriptan it takes it all away but it comes back the next day. Problem is I don't actually know for sure when my migraine starts and ends.

Has anyone kept taking pizotifen for migraine prevention while pregnant? My neurologist told me there’s not a lot of research around it in pregnancy and although it’s not in a “bad” drug category he would like me to come off it. The withdrawals are hard and the headaches are fierce!

Hello all, I have had PAF for three years now, I am on Tildiem ,Apixiban, Avorstatin, Lansaprosol and Pizotifen. My problem is I feel so tired and lethargic. I am struggling to do all the things I want to do, even going for a walk takes it’s toll as my hips hurt quite a bit.

I gradually came off this med (Pizotifen) but also ran out of B12 tablets at the time & I think I have now worked out that it is actually the B12 causing the hot flushing. Has anyone else had this experience? I don't seem to get an increase in this symptom after injections (Hydroxocobalamin).

We have trialled many migraine tablets (triptans, periactin, etc, etc) aspirin, nuerofen, paracetamol, Pizotifen (Sandomigran), Endep (Amitriptyline).

At first I wasn't that concerned as my weight has always gone up and down..recently, over the last year I have hovered at about 8 stone 2 sometimes up to 8st 5 and during the Pizotifen experiemnt almost 8 st 3/4. when I stopped it went back to a more normal 8, 8st 1 or 2.