Has anyone tried either Rimagepant or galcanezumab for vestibular migraine?

[Vieille]

It take pizotifen and amitriptyline for vestibular migraine which seems to reduce the headaches but doesn't help with the constant feeling of being on the deck of a ship or walking on a marshmallow floor. Is anyone else experiencing that?

[soul22]

Hi

I take amitriptyline

And in daytime

For visual & postural vertigo with vestibular migraine I take

Betahistine 16 mg 3 times day with food

I saw too vestibular consultant guys hospital

I know there's other treatments but one has to go to her headache clinic for that

I haven't as yet

A teeth guard at night reduces done pressure feeling

Bless you your really suffering

[Vieille in reply to soul22]

thank you

[1567]

hi,

I have been on both of these separately not together, is there any way of upping one of them to see if it would help?

I have also found that sometimes a side effect of these tablets are also dizziness and feeling of moving so it can be hard to figure out if it’s a side effect or the condition.

xx

[Vieille in reply to 1567]

Thank you that's helpful

[chris608]

Hi I take amitriptyline with no side effects apart from having vivid dreams. I did previous up the dosage but had palpitations and had to return to a lower dose which is still giving me very good results combined with Riboflavin supplement and co enzyme q 10

[Vieille in reply to chris608]

Chris, thanks for your help

[Xandi123]

What dose are you on? Like someone else said can you speak to your neurologist about what your maximum dose is and carry on titrating up say once every 6 weeks until you feel some relief? I also have what you have. I was on nortriptyline and went 40mg initially and then had to go up to 75mg and took 2 pizotifen tablets in the evening and morning I think ( it was a few years ago now) but my neuro-otologist told me what my maximum dose allowable was. Alex

[Xandi123]

I got to 40mg and found relief for about 6 months of the boat feeling.

[Vieille in reply to Xandi123]

Thank you, that's helpful to know. I'm now on Rimegepant and it's made a huge difference. Headaches are almost gone and the boat feeling is more tolerable. I'm now trying gradually reducing amitriptyline. I hope you are still getting some relief.