Coming off pizotifen after 6 years - Migraine Support

Migraine Support

3,564 members495 posts

Coming off pizotifen after 6 years

Langley-Loper profile image
1 Reply

At my latest drug review, it was suggested I taper off pizotifen as I've been on it 6+ years and there may be long term effects on my liver if I keep taking it forever. Blood results ok at the moment.Anyone on here come off it after such a long time? I'm worried about my headaches coming back more frequently (obviously), but also all the effects listed in the leaflet like weight loss, nausea, etc.

Would love to hear some real life experiences.

Written by
Langley-Loper profile image
Langley-Loper
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Sugartits profile image
Sugartits

I tapered off it after about seven or eight years, but only because it had gradually become less effective and I couldn't increase the dose any more. No one ever suggested I should stop taking it.Since then, I've trialled all the available migraine prophylactics that a GP can prescribe and never had as good control as I did with pizotifen, so I kind-of regret it. (Of course, this may have happened anyway as my attacks were becoming more frequent, which I think was partly due to a change of climate.)

If it works for you and you don't want to come off it, I would ask for the research/clinical guidelines that the doctor is using to say you should come off it. What are they suggesting you take instead, or do they want you to not have any migraine prophylaxis at all?

Not what you're looking for?

You may also like...

Pizotifen for preventing migraine

Hi I have a disabled son who has no speech and suffers from regular bouts of vomiting .this is...
Shaynec profile image

Weaning off topirimate

I'm weaning off topirimate for migraine due to side effects. I've been on this for 2 years but...

Coming off sandomigrane

Hi my doctor wants me to come off sandomigrane and won't give me a repeat prescription. I'm...
Dfraser profile image

Coming off Amitriptyline for Migraine Relief...there is hope!!

Hi, I'm a newbie to this site but just thought I'd share my experience so far with Amitriptyline....
KassieO profile image

Coming off amitryptyline.Any advice please.

I was prescribed amitriptyline 9 years ago to help prevent chronic migraines.Started on 10mg per...

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.