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looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
11 days ago
ADT side effects
Which has worse side effects : Bacalumatide or Lupron ?
Which has worse side effects : Bacalumatide or Lupron ?
Bacalutamide
in
Prostate Cancer Network
11 days ago
HRt - side effects
Hi I’ve recently started 2 pumps of oestrogel per day. Has anyone else experienced strong nausea and loss of appetite when starting this? It is concerning me. Kind Regards Lara
Hi I’ve recently started 2 pumps of oestrogel per day. Has anyone else experienced strong nausea and loss of appetite when starting this? It is concerning me. Kind Regards Lara
Lara1244
in
Menopause and Perimenopause Support
11 days ago
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Chemo Docetaxel
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
JolleySprings
in
Advanced Prostate Cancer
11 days ago
ADT prior to RT
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
FredNick
in
Prostate Cancer Network
11 days ago
Does HBOT stimulate cancerous tissue?
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
SongofFred
in
Advanced Prostate Cancer
11 days ago
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
APCFighter
in
Advanced Prostate Cancer
12 days ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
Advanced Prostate Cancer
12 days ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
PCOS UK (Verity)
12 days ago
Blood in urine/uti symptoms but no infection
I'm currently in a flare up, following a hysterectomy nearly 5 months ago for Fibroids and Adenomyosis. They now think I have Occult endometriosis, as my pelvic pain has flared up again since starting hrt. Ive been referred to a bsge centre.My bladder symptoms are awful I feel like I have a raging uti
I'm currently in a flare up, following a hysterectomy nearly 5 months ago for Fibroids and Adenomyosis. They now think I have Occult endometriosis, as my pelvic pain has flared up again since starting hrt. Ive been referred to a bsge centre.My bladder symptoms are awful I feel like I have a raging uti
Mindfullness4791
in
Endometriosis UK
13 days ago
Darolutamide (Nubeqa) Vs Enzalutamide ( Xtandi)
Are there any studies comparing efficacy and side effect profile of darolutamide Vs enzalutamide when given together with first generation ADT ? I read that darolutamide does not cross blood brain barrier so may have lesser side effects ?
Are there any studies comparing efficacy and side effect profile of darolutamide Vs enzalutamide when given together with first generation ADT ? I read that darolutamide does not cross blood brain barrier so may have lesser side effects ?
Tinkudi
in
Advanced Prostate Cancer
13 days ago
Low TSH advice and breast cancer
I’ve been hypo for 25 years . October 23, non fasted , 12 hours after last dose of Levi , annual bloods showed TSH 0.1 (0.2-6) and T4 18.9.(12-22). Recommended retest in 6 months . I saw private endo ( useless ) who did fasted bloods . TSH 4.5 , T4 16.8 and T3 3.9 Levo was 24 hours before bloods
I’ve been hypo for 25 years . October 23, non fasted , 12 hours after last dose of Levi , annual bloods showed TSH 0.1 (0.2-6) and T4 18.9.(12-22). Recommended retest in 6 months . I saw private endo ( useless ) who did fasted bloods . TSH 4.5 , T4 16.8 and T3 3.9 Levo was 24 hours before bloods
farrellkl68
in
Thyroid UK
14 days ago
PD and Prostate Cancer
...that is, there is never an end to the worst. I will soon have to undergo radiotherapy for prostate cancer. I am currently undergoing hormone therapy. I am looking for similar experiences and above all advice on how to manage this new situation in cohabitation with PD. Thank you very much.
...that is, there is never an end to the worst. I will soon have to undergo radiotherapy for prostate cancer. I am currently undergoing hormone therapy. I am looking for similar experiences and above all advice on how to manage this new situation in cohabitation with PD. Thank you very much.
Fed1000
in
Cure Parkinson's
14 days ago
Ritalin
I’ve been trying a new regime of Clonidine 100mcg at night and 30mg Elvanse on waking. I don’t think it’s working and as before the Elvanse seems to give my a physical feeling of angst which is hard to not focus on…also somebody wrote on hear recently that they feel they ruminate more especially in
I’ve been trying a new regime of Clonidine 100mcg at night and 30mg Elvanse on waking. I don’t think it’s working and as before the Elvanse seems to give my a physical feeling of angst which is hard to not focus on…also somebody wrote on hear recently that they feel they ruminate more especially in
Greenbeeps
in
CHADD's Adult ADHD Support
14 days ago
Treatment awaited
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Sisyphus
in
Advanced Prostate Cancer
14 days ago
My History to date
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Sisyphus
in
Advanced Prostate Cancer
14 days ago
Gleason 6 Treatment options .
Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?
Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?
Conlig1940
in
Advanced Prostate Cancer
15 days ago
Please share your experiences and thoughts.
My last psma scan results are below. Please share your thoughts and experiences regarding my psma results. Is this a bad report or reasonably good?. My psa is undetectable. I am on ADT vacation now for the last 7 months. Should I start ADT now or wait untill psa is detectable? 1. SPLEEN: No new
My last psma scan results are below. Please share your thoughts and experiences regarding my psma results. Is this a bad report or reasonably good?. My psa is undetectable. I am on ADT vacation now for the last 7 months. Should I start ADT now or wait untill psa is detectable? 1. SPLEEN: No new
Ahk1
in
Advanced Prostate Cancer
15 days ago
Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
Pharmacophobia and severe depression and anxiety
I have been suffering with pharmocophobia ( the fear of taking medicine) for 10 years , I'm going through the change of life so my hormones are off making my depression and anxiety even worse. I'm falling apart daily and can't do anything since I'm given medication and hrt but can't take it regularly
I have been suffering with pharmocophobia ( the fear of taking medicine) for 10 years , I'm going through the change of life so my hormones are off making my depression and anxiety even worse. I'm falling apart daily and can't do anything since I'm given medication and hrt but can't take it regularly
Amen9771
in
Major Depressive Disorder (MDD) Support
16 days ago
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