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Photodynamic therapy
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Cortisone Injections?
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
jfoesq
in
Advanced Prostate Cancer
8 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
8 months ago
Ruxolitinib
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Ameliav
in
MPN Voice
10 months ago
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UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
6 months ago
Acupuncture and Hot Flashes
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Huzzah1
in
Advanced Prostate Cancer
8 months ago
Is Adrenal Fatigue caused by ADT/Abiraterone?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Derf4223
in
Advanced Prostate Cancer
8 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
7 months ago
anaemia and ADT
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
SimMartin
in
Advanced Prostate Cancer
8 months ago
Fragility score on Osteoscan and different meds.
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Nightingales
in
PMRGCAuk
8 months ago
Women are not taken seriously by most doctors when experiencing health problems.
I went through a really rough time a couple of years after I had my first child when I was about 31 years old. I had never experienced PMT prior to the birth. I was lucky. However, I became aware of gradual fatigue, and anxiety, and hot flushes. I went to my GP to ask if I could be going through the
I went through a really rough time a couple of years after I had my first child when I was about 31 years old. I had never experienced PMT prior to the birth. I was lucky. However, I became aware of gradual fatigue, and anxiety, and hot flushes. I went to my GP to ask if I could be going through the
DandyButch
in
Thyroid UK
8 months ago
NON SURGICAL OPTIONS?
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
jawsbar75
in
SHARE Breast Cancer Support
8 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
6 months ago
Do I need to stop taking estrogen? Feel as if I'm choosing between mental and physical health.
So I've read a lot now- probably too much. From what I can gather from things (and I am new to this - didnt know I had endometriosis until Tuesday when they aborted my hysterectomy as my bowel is fused to my cervix) estrogen seems to be the driving force behind endometriosis. Is that true? It also seems
So I've read a lot now- probably too much. From what I can gather from things (and I am new to this - didnt know I had endometriosis until Tuesday when they aborted my hysterectomy as my bowel is fused to my cervix) estrogen seems to be the driving force behind endometriosis. Is that true? It also seems
Sunset-lady
in
Endometriosis UK
8 months ago
Over range copper and zinc
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
Noelnoel
in
Thyroid UK
8 months ago
Is my recovery typical or more novel
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
Hidden
in
Advanced Prostate Cancer
8 months ago
Heme iron versus ferrous gluconate
Recent bloodwork shows a low iron problem accross several measures. PCP says to take ferrous gluconate. I remember iron discussions from a previous site in which heme iron was recommended for its better absorption, though ferrous gluconate is superior to some other forms in terms of absorption. I
Recent bloodwork shows a low iron problem accross several measures. PCP says to take ferrous gluconate. I remember iron discussions from a previous site in which heme iron was recommended for its better absorption, though ferrous gluconate is superior to some other forms in terms of absorption. I
cigafred
in
Fight Prostate Cancer
8 months ago
Tasigna off label for parkinson's disease. What happens when the smallest kid on the block gets run out of town. Time for a vote.
Hello People With Parkinson's (PWP). I started this post two weeks ago. It wasn't worth the effort so I deleted it. I was hurting at the tim, my levodopa tank was running on fumes. I reminded myself that if I couldn't be cured I would try to make it easier for the next person. I am in my
Hello People With Parkinson's (PWP). I started this post two weeks ago. It wasn't worth the effort so I deleted it. I was hurting at the tim, my levodopa tank was running on fumes. I reminded myself that if I couldn't be cured I would try to make it easier for the next person. I am in my
Isthistheone
in
Cure Parkinson's
1 year ago
think I’ve found my trigger.
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
Patters56
in
Restless Legs Syndrome
8 months ago
Varian Trubeam Rapidarc to do VMAT
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
pj1121
in
Advanced Prostate Cancer
8 months ago
grade and normal embryos link? help!?
Hi I am 27, no fertility issue (that i know of) non smoker, non drinking, took vitamins for 6 months prior to egg collection. Donor sperm used. I got 3 - 5day blastocysts from short protocol (8 eggs retrieved 6 fertilised) but all grade 3bb/3bc/3bc. 1st transfer failed - other 2 frozen. Someone
Hi I am 27, no fertility issue (that i know of) non smoker, non drinking, took vitamins for 6 months prior to egg collection. Donor sperm used. I got 3 - 5day blastocysts from short protocol (8 eggs retrieved 6 fertilised) but all grade 3bb/3bc/3bc. 1st transfer failed - other 2 frozen. Someone
Tryingforbabynow
in
Fertility Network UK
10 months ago
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