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Phlebotomy
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Worried about symptoms
Hi, I am 56 year old female and I was diagnosed with PV in March this year. At first I was fine with phlebotomies and baby asperin, but in August my platelets went to 1.2 mio and the doctor told me to start Hydroxyrea, 500mg/daily. I have always exercised every day and eaten pretty healthy. lots of
Hi, I am 56 year old female and I was diagnosed with PV in March this year. At first I was fine with phlebotomies and baby asperin, but in August my platelets went to 1.2 mio and the doctor told me to start Hydroxyrea, 500mg/daily. I have always exercised every day and eaten pretty healthy. lots of
love0826
in
MPN Voice
6 years ago
Phlebotomy or Hydroxyurea
Anyone out there with these type counts doing
phlebotomy
? Has it been effective? What side effects have you had?
Anyone out there with these type counts doing
phlebotomy
? Has it been effective? What side effects have you had?
Sklines
in
MPN Voice
7 years ago
Pvr morning into myolofibrosis
I am just on Aspirin and 3 monthly
phlebotomy
and now its monthly. He also told me to stop drinking so much water. When I rang back the next day to see if this is a definate timeline for me he said nothing is definate.
I am just on Aspirin and 3 monthly
phlebotomy
and now its monthly. He also told me to stop drinking so much water. When I rang back the next day to see if this is a definate timeline for me he said nothing is definate.
tracey1003
in
MPN Voice
7 years ago
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New to mpn/pv
I had
phlebotomy
last week. I have not had any symptom relief, which numbet 1 is a constant headache some have turned to migraines, low grade fever and pain under my left ribcage. What could it mean to still have these symptoms? Please help
I had
phlebotomy
last week. I have not had any symptom relief, which numbet 1 is a constant headache some have turned to migraines, low grade fever and pain under my left ribcage. What could it mean to still have these symptoms? Please help
Poogie49
in
Fight MPN
7 years ago
Help
Hello all! I need to vent........I live in Las Vegas, NV and medical here is the worse I've ever seen. I have PV diagnosed about 5 years ago. I also have Hemochromatosis which is basically too much iron. With PV the iron is like fertilizer so we attempt to keep my iron as low as possible. Last time
Hello all! I need to vent........I live in Las Vegas, NV and medical here is the worse I've ever seen. I have PV diagnosed about 5 years ago. I also have Hemochromatosis which is basically too much iron. With PV the iron is like fertilizer so we attempt to keep my iron as low as possible. Last time
Coco1965
in
MPN Voice
7 years ago
Starting to have a few doubts about Medichecks
To my surprise I hadn't noticed that my GP surgery had my CRP done on May 9th in the walk in
phlebotomy
clinic at our hospital in Cambridge, mainly for calcium and parathyroid, and it read 4mg/L (0.0 -6.0) but on May 17th according to Medichecks 0.9mg/L (0.00 - 5.00).
To my surprise I hadn't noticed that my GP surgery had my CRP done on May 9th in the walk in
phlebotomy
clinic at our hospital in Cambridge, mainly for calcium and parathyroid, and it read 4mg/L (0.0 -6.0) but on May 17th according to Medichecks 0.9mg/L (0.00 - 5.00).
elaine2447
in
Thyroid UK
7 years ago
GP today and no B12 yet
(Well she tried but my veins were being shy so I ended up going to the hospoital
phlebotomy
centre.) B12 196 (197-771) Folate 2.1 (2.0-16.7) Ferritin 60.9 (13-150) No vit D ordered until just before I am due to see the Endo again. Results on thyroid are in my other posts. Thanks.
(Well she tried but my veins were being shy so I ended up going to the hospoital
phlebotomy
centre.) B12 196 (197-771) Folate 2.1 (2.0-16.7) Ferritin 60.9 (13-150) No vit D ordered until just before I am due to see the Endo again. Results on thyroid are in my other posts. Thanks.
AngieAsh
in
Thyroid UK
7 years ago
PRIMUN NON NOCERE = First, do no harm,
In HIPPOCRATES'' DAY,
phlebotomy
(blood letting) was the accepted cure for many of the short list of common illnesses or injures which were known and treated.. In the PRESENT DAY the modern doctor has many more decisions to make and factors to consider.
In HIPPOCRATES'' DAY,
phlebotomy
(blood letting) was the accepted cure for many of the short list of common illnesses or injures which were known and treated.. In the PRESENT DAY the modern doctor has many more decisions to make and factors to consider.
ronn
in
Cure Parkinson's
7 years ago
Doing wel
I was diagnosed with PV (red blood) and ET (platelets) in 2014, at 57 years young. I'm a male. The first year was rough, but once doctors got my medications "tuned" things have been great since. I go to the gym every day, and work out 1 to 2 hours each day. Some of my hobbies include, boxing and hiking
I was diagnosed with PV (red blood) and ET (platelets) in 2014, at 57 years young. I'm a male. The first year was rough, but once doctors got my medications "tuned" things have been great since. I go to the gym every day, and work out 1 to 2 hours each day. Some of my hobbies include, boxing and hiking
lfindley
in
Fight MPN
7 years ago
HGB fluctuating what is typical-newbie
My HGB started at 22 and with weekly
phlebotomy
and the 500 mg HU it had gone down steadily to 18 over 4 weeks. However, today at
phlebotomy
my HGB was up to 18.5. Also, my WBC is up and it had been steady. Is this common to see swings like this? Thanks for reading this!
My HGB started at 22 and with weekly
phlebotomy
and the 500 mg HU it had gone down steadily to 18 over 4 weeks. However, today at
phlebotomy
my HGB was up to 18.5. Also, my WBC is up and it had been steady. Is this common to see swings like this? Thanks for reading this!
Johnsb
in
MPN Voice
7 years ago
Polycythemia
Seems one treatment is regular blood removal by
phlebotomy
. Anyone on here had similar condition? Thanks
Seems one treatment is regular blood removal by
phlebotomy
. Anyone on here had similar condition? Thanks
James53
in
NRAS
7 years ago
Blue Horizon have a new website!
•If you choose the Nurse Visit or BMI
phlebotomy
appointment, you will notice that the price has gone up by £4. However, we can now guarantee a successful blood draw or give you a full refund in the event of a failed blood draw.
•If you choose the Nurse Visit or BMI
phlebotomy
appointment, you will notice that the price has gone up by £4. However, we can now guarantee a successful blood draw or give you a full refund in the event of a failed blood draw.
lynmynott
Thyroid UK
in
Thyroid UK
7 years ago
Question about terms
Hello, I am from the USA and would like some clarification. I was diagnosed with PV due to elevated platelets and HCT and a positive JAC 2. I am currently managed by 500 mg of Hydroxyurea and baby aspirin, and have weaned down my therapeutic phlebotomies to one every three months. I notice that most
Hello, I am from the USA and would like some clarification. I was diagnosed with PV due to elevated platelets and HCT and a positive JAC 2. I am currently managed by 500 mg of Hydroxyurea and baby aspirin, and have weaned down my therapeutic phlebotomies to one every three months. I notice that most
tsperl
in
MPN Voice
7 years ago
Why did you start medication for pv
But what I can't grasp is why some people are only on aspirin and
phlebotomy
and others take other medicine. Can I ask what it was that moved you to extra treatment and how long had you been diagnosed? Thanks.
But what I can't grasp is why some people are only on aspirin and
phlebotomy
and others take other medicine. Can I ask what it was that moved you to extra treatment and how long had you been diagnosed? Thanks.
Emeraldpv
in
MPN Voice
7 years ago
Hereditary Hemochromatosis Mutation 2
In the mean time no doctor started
phlebotomy
treatments and my iron has been high and Oct 2016 iron was 300. Still no help or treatments. Since I've been sick as of December 23 2016. My symptoms have gotten worse. Here ya go. Sugar is out of wack.
In the mean time no doctor started
phlebotomy
treatments and my iron has been high and Oct 2016 iron was 300. Still no help or treatments. Since I've been sick as of December 23 2016. My symptoms have gotten worse. Here ya go. Sugar is out of wack.
r_12
in
British Liver Trust
7 years ago
PV getting attention
They included
phlebotomy
, chemo, life expectancy etc. I was totally stunned when I saw this brought out in a soap opera. The rareness of PV and it being a cancer was also detailed along with the ability to manage it. This was wonderful to see PV brought to nation wide attention.
They included
phlebotomy
, chemo, life expectancy etc. I was totally stunned when I saw this brought out in a soap opera. The rareness of PV and it being a cancer was also detailed along with the ability to manage it. This was wonderful to see PV brought to nation wide attention.
Kinsalelady
in
MPN Voice
7 years ago
Thriva
The
phlebotomy
stuff wouldn't be an issue anyway as I'm a nurse so could get someone to take blood. It's just some of the similar tests offered by others are so expensive!
The
phlebotomy
stuff wouldn't be an issue anyway as I'm a nurse so could get someone to take blood. It's just some of the similar tests offered by others are so expensive!
salsapixie
in
Thyroid UK
7 years ago
Is there a Blue Horizon voucher code?
There used to be a TUK discount and this page says there should be a voucher code but I can't find one. http://www.thyroiduk.org.uk/tuk/testing/blue_horizon.html Trying to buy the Thyroid + 12 and arranging my own
phlebotomy
. http://bluehorizonmedicals.co.uk/epages/89289b91-b6f9-4318-864a-f492cbae7827
There used to be a TUK discount and this page says there should be a voucher code but I can't find one. http://www.thyroiduk.org.uk/tuk/testing/blue_horizon.html Trying to buy the Thyroid + 12 and arranging my own
phlebotomy
. http://bluehorizonmedicals.co.uk/epages/89289b91-b6f9-4318-864a-f492cbae7827
puncturedbicycle
in
Thyroid UK
7 years ago
Fatigue
I am on Hydrea, have been for some years now, and have not needed
phlebotomy
for a couple of years, although the haematocrit remains steady (between 40 and 45%). I am not sure whether I should just adapt to how I feel and concentrate on walking exercise, or whether I should push myself to do more.
I am on Hydrea, have been for some years now, and have not needed
phlebotomy
for a couple of years, although the haematocrit remains steady (between 40 and 45%). I am not sure whether I should just adapt to how I feel and concentrate on walking exercise, or whether I should push myself to do more.
lucieboo
in
MPN Voice
7 years ago
The lab ignored the doctor's test request
I had blood tests at private hospital when I saw the endocrinologist privately and they charged me £157 for the
phlebotomy
and three blood tests. Looks like I will have to pay this again if I want to see what is actually going on with my blood levels. Grr.
I had blood tests at private hospital when I saw the endocrinologist privately and they charged me £157 for the
phlebotomy
and three blood tests. Looks like I will have to pay this again if I want to see what is actually going on with my blood levels. Grr.
Coachv
in
Thyroid UK
7 years ago
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