I was diagnosed with Polycythemia Vera last week after lots and lots of blood tests and a CT scan. Fortunately, no enlarged spleen or problems with any of my internal organs. Am eager to learn more from those who have had this for a while and how it, or if it, has altered your quality of life. My husband and I like to travel and I'm not sure how often I need phlebotomies. Talked to my sister's friend who has had PV for a decade or more and he goes in around 4 times/year. I have my 1st one next week and found that some people have them as often as 1/week or 1/month. Ouch.
Thanks in advance for your guidance