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Experiences with
Permanent atrial fibrillation
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moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
9 months ago
Amiodarone
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
AblatedCyclist
in
AF Association
1 year ago
ELON MUSK's BRAIN invention to (hopefully) restore movement to those who are paralyzed!
"The first human patient will soon receive a Neuralink device. This ultimately has the potential to restore full body movement," Musk posted on X, the social media platform formerly known as Twitter. " "In a blog post, Neuralink announced that recruitment is open for the first-in-human clinical trial
"The first human patient will soon receive a Neuralink device. This ultimately has the potential to restore full body movement," Musk posted on X, the social media platform formerly known as Twitter. " "In a blog post, Neuralink announced that recruitment is open for the first-in-human clinical trial
PDWarrior1900
in
Cure Parkinson's
9 months ago
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Online discussion opportunity about Patient Initiated Follow Up (PIFU)
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
Aribah-NRAS
NRAS
in
NRAS
9 months ago
DOACs
I have just read a 'Healthline' publication dated January 2023 about the long term effects of blood thinners and anticoagulants. I am a bit concerned with the content of this article and would like members of our group opinions. The article stated that there was no reversal agent for Riveroxaban and
I have just read a 'Healthline' publication dated January 2023 about the long term effects of blood thinners and anticoagulants. I am a bit concerned with the content of this article and would like members of our group opinions. The article stated that there was no reversal agent for Riveroxaban and
Karendeena
in
AF Association
1 year ago
We are incredibly excited to see you in-person at this year’s Arrhythmia Alliance Patients Day!
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Stroke Prevention Day
The Stroke Association are highlighting the link between AF and the possibility of a stroke. I can echo that, as I was cardio fit with none of the other risks from weight, smoking, drinking, but I had AF and I was not prescribed an anticoagulant. On 6 July 2016 I had a stroke. The following words
The Stroke Association are highlighting the link between AF and the possibility of a stroke. I can echo that, as I was cardio fit with none of the other risks from weight, smoking, drinking, but I had AF and I was not prescribed an anticoagulant. On 6 July 2016 I had a stroke. The following words
john-boy-92
in
Atrial Fibrillation Support
1 year ago
Xtandi vs Orgovyx
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Captj440
in
Advanced Prostate Cancer
10 months ago
why a stress test?
Been a while cause all has been “quiet.” I have been taking Flecainide 50 twice a day, Eliquis 5 twice a day, metoprolol 15 in am and 12.5 in evening. It’s been a year. Occasional blip but nothing to talk about really. I’m 66, female, and exercise aerobically 4-5 times a week. Sleep and eat well, work
Been a while cause all has been “quiet.” I have been taking Flecainide 50 twice a day, Eliquis 5 twice a day, metoprolol 15 in am and 12.5 in evening. It’s been a year. Occasional blip but nothing to talk about really. I’m 66, female, and exercise aerobically 4-5 times a week. Sleep and eat well, work
Cos56
in
AF Association
1 year ago
September 17 2023 11:20 AM EST
That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent injections rather than higher amounts only. I came up with that after reading clinical trials, protocols used, and many papers, books, case studies
That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent injections rather than higher amounts only. I came up with that after reading clinical trials, protocols used, and many papers, books, case studies
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
ERX-41
Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at present paid for clinical trials, as I understand in the UK offering those of a certain age a reward of a little over £7000. Posted this because
Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at present paid for clinical trials, as I understand in the UK offering those of a certain age a reward of a little over £7000. Posted this because
Hidden
in
My Ovacome
10 months ago
Sleeping aid with Afib.
Just curious to see what you folks that have problems going to sleep have been prescribed to help and not affect your Afib. I've tried, Benadryl, valarian, clemastine, and meletonin and they either aggravate my afib or just don't work. I might need to have a doctor call in a prescription as the over
Just curious to see what you folks that have problems going to sleep have been prescribed to help and not affect your Afib. I've tried, Benadryl, valarian, clemastine, and meletonin and they either aggravate my afib or just don't work. I might need to have a doctor call in a prescription as the over
riffjack846
in
AF Association
1 year ago
New ED Gell FDA Approved
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
Cancer2x
in
Advanced Prostate Cancer
10 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
10 months ago
Adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Here4ivfinfo
in
Fertility Network UK
10 months ago
Clinical trial results on 17p & tp53 variants in treatment naïve & relapsed patients by Dr. Furman - Oct 2022 to medical professionals
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
lankisterguy
Volunteer
in
CLL Support
10 months ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
10 months ago
💔 I have lost to many people recently to RLS Let their deaths not be in-vain.I’ve have a plan to bring more exposure. Will u help me X
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
Shumbah
in
Restless Legs Syndrome
10 months ago
Benadryl and afib
Hello everyone, just want to clear something up in case there were any with doubts. Just got back from the ER at local VA Hospital due to a blood pressure of 180/99, called 911 they sent paramedics, just before they got here took blood pressure it was 199/103. They came in the house did an ekg and blood
Hello everyone, just want to clear something up in case there were any with doubts. Just got back from the ER at local VA Hospital due to a blood pressure of 180/99, called 911 they sent paramedics, just before they got here took blood pressure it was 199/103. They came in the house did an ekg and blood
kocoach
in
Atrial Fibrillation Support
1 year ago
recurring problem to ablate or not
a couple of months ago i wrote asking for advice should itake up offer of ablation if it was made near to my travel to australia. for christmas. had lots of really helpful replies Bob, Buffafly and lotsmore. I felt reassured about the whole ablation thing (previous very undecided) gave myself a cut
a couple of months ago i wrote asking for advice should itake up offer of ablation if it was made near to my travel to australia. for christmas. had lots of really helpful replies Bob, Buffafly and lotsmore. I felt reassured about the whole ablation thing (previous very undecided) gave myself a cut
foxglove1
in
Atrial Fibrillation Support
1 year ago
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