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Will we be seeing you at this year's Arrhythmia Alliance Patients Day?
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
There is still HOPE
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
yo207
in
My Ovacome
9 months ago
Statins for paroxysmal Atrial Fibulation?
Hello Everyone. I have P-Afib which is well managed with Verapamil 120mcg. I take Ramiprimil 5mg and Apixaban. I'm lucky my Afib has remained mild once on this treatment for the last two /three years - hopefully will stay that way- providing I keep taking Verapamil. I get the odd flutter for a few seconds
Hello Everyone. I have P-Afib which is well managed with Verapamil 120mcg. I take Ramiprimil 5mg and Apixaban. I'm lucky my Afib has remained mild once on this treatment for the last two /three years - hopefully will stay that way- providing I keep taking Verapamil. I get the odd flutter for a few seconds
waveylines
in
Atrial Fibrillation Support
1 year ago
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Partial thyroidectomy
Hi all, I had a partial thyroidectomy in 2021 for papillary thyroid cancer follicular variant. Had surveillance scan September last year, all good. Had another scan this week, there is a 1cm growth on the left side which I had removed, also increased vascularity . I have multinodular goiter and thyroditis
Hi all, I had a partial thyroidectomy in 2021 for papillary thyroid cancer follicular variant. Had surveillance scan September last year, all good. Had another scan this week, there is a 1cm growth on the left side which I had removed, also increased vascularity . I have multinodular goiter and thyroditis
MyJourney200
in
Thyroid UK
9 months ago
MRD testing not offered
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
xpetes
in
CLL Support
9 months ago
Accuracy of heart monitors during exercise
When I was recently diagnosed with AF I was told by a BHF nurse that the majority of HR monitors can't give an accurate reading due to the inconsistency of heartbeats. Yet I'm often reading concerns on this forum about HR readings on fitness monitors, fitbits etc. and wonder if there is a truly accurate
When I was recently diagnosed with AF I was told by a BHF nurse that the majority of HR monitors can't give an accurate reading due to the inconsistency of heartbeats. Yet I'm often reading concerns on this forum about HR readings on fitness monitors, fitbits etc. and wonder if there is a truly accurate
Rainfern
in
AF Association
1 year ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
9 months ago
CMV PCR for blood <2.0E+2 IU/mL
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
rcusher
in
CLL Support
9 months ago
new to this forum
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in Los Angeles at 9 years. ( for an ASD) There is still a small leak but mostly corrected
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in Los Angeles at 9 years. ( for an ASD) There is still a small leak but mostly corrected
Petaca
in
Anticoagulation Support
1 year ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
9 months ago
Tara, a chatbot that matches patients to clinical trials
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Is there such a thing as ‘slow AFib?’
Hello all! St Barts in London have offered me an ablation! Taunton referred me to Bristol but they were unwilling because I also have hypertrophic cardiomyopathy and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Hello all! St Barts in London have offered me an ablation! Taunton referred me to Bristol but they were unwilling because I also have hypertrophic cardiomyopathy and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Slidingdoors99
in
Atrial Fibrillation Support
1 year ago
CLL and mRNA Vaccines
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
BWHR
in
CLL Support
9 months ago
Ectopic beats , 7yrs after rf ablation
Hi all , I've been good now for around 7yrs after rf ablation , got on with life running, gym , all good , so this week I felt tight in my chest with a few thumps checked my pulse and there's ectopic beats , pulse is fine , blood pressure fine , attended a&e they picked up the ectopic on ecg , did bloods
Hi all , I've been good now for around 7yrs after rf ablation , got on with life running, gym , all good , so this week I felt tight in my chest with a few thumps checked my pulse and there's ectopic beats , pulse is fine , blood pressure fine , attended a&e they picked up the ectopic on ecg , did bloods
Runcrans
in
AF Association
1 year ago
Would you like to participate in an AF Study?
[u]To be eligible to take part in the study, you must:[/u] • Have known
atrial
fibrillation
(paroxysmal, persistent,
permanent
or lone) • Be aged ≥ 18 years • Be able to give informed consent • Be able to complete an interview in English [u]What does the study involve:[/u] If you agree to participate
[u]To be eligible to take part in the study, you must:[/u] • Have known
atrial
fibrillation
(paroxysmal, persistent,
permanent
or lone) • Be aged ≥ 18 years • Be able to give informed consent • Be able to complete an interview in English [u]What does the study involve:[/u] If you agree to participate
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
5 months ago
Would you like to participate in an AF Study?
[u]To be eligible to take part in the study, you must:[/u] • Have known
atrial
fibrillation
(paroxysmal, persistent,
permanent
or lone) • Be aged ≥ 18 years • Be able to give informed consent • Be able to complete an interview in English [u]What does the study involve:[/u] If you agree to participate
[u]To be eligible to take part in the study, you must:[/u] • Have known
atrial
fibrillation
(paroxysmal, persistent,
permanent
or lone) • Be aged ≥ 18 years • Be able to give informed consent • Be able to complete an interview in English [u]What does the study involve:[/u] If you agree to participate
TracyAdmin
Partner
in
AF Association
5 months ago
Walking in rhythm
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
diminished7th
in
Atrial Fibrillation Support
1 year ago
Parkinson's Disease Pipeline, Clinical Trials Assessment, and FDA Approvals 2023 (Updated)
https://www.benzinga.com/pressreleases/23/09/ab34834243/parkinsons-disease-pipeline-clinical-trials-assessment-and-fda-approvals-2023-updated?utm_source=dlvr.it&utm_medium=twitter
https://www.benzinga.com/pressreleases/23/09/ab34834243/parkinsons-disease-pipeline-clinical-trials-assessment-and-fda-approvals-2023-updated?utm_source=dlvr.it&utm_medium=twitter
Farooqji
in
Cure Parkinson's
9 months ago
Amiodarone
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
AblatedCyclist
in
AF Association
1 year ago
moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
9 months ago
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