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combining standard PCA care with alternative care
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
agnut
in
Fight Prostate Cancer
6 months ago
Overcoming anxiety about going out
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Gingergus
in
The Roy Castle Lung Cancer Foundation
23 days ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
24 days ago
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Pluvicto patient
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
Reltubs
in
Advanced Prostate Cancer
24 days ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
25 days ago
Piqray/alpelesib. Oncologists. And various.
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Timtam56
in
SHARE Metastatic Breast Cancer
25 days ago
PSA on the rise
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
JD-guy
in
Advanced Prostate Cancer
6 months ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
25 days ago
help determining stage
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
blackchurch
in
Advanced Prostate Cancer
26 days ago
My diagnosis after 6 years, Lymphoma EMZL, AL Amyloidosis and Myeloma
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Pipido36
in
The Roy Castle Lung Cancer Foundation
26 days ago
Why do MO have one stop Zytiga and Prednisone during Cabazitaxel And Carboplatin treatment for pca Adenocarcinoma liver Mets?
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
Shorehousejam
in
Advanced Prostate Cancer
27 days ago
Jak2 question and PV question (have medical anxiety so nervous)
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
HockeyFan47
in
MPN Voice
27 days ago
New treatment
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
JulieB76
in
SHARE Metastatic Breast Cancer
27 days ago
Cancer Clinical Trial Participation May Not Actually Improve Survival, Study Says, MedPage Today May 22, 2024
[i]While an admittedly imperfect pooled analysis (w/ PCa trials amounting to 7% of total), this paper illuminates the effects of patient selection bias in clinical trial outcomes. [/i][i]
(emphasis is added.)
[/i][i] Along with the accompanying editorial, it should serve to provide some new guidance
[i]While an admittedly imperfect pooled analysis (w/ PCa trials amounting to 7% of total), this paper illuminates the effects of patient selection bias in clinical trial outcomes. [/i][i]
(emphasis is added.)
[/i][i] Along with the accompanying editorial, it should serve to provide some new guidance
cujoe
in
Fight Prostate Cancer
27 days ago
PSA post Salvage Radiation
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Silverlings
in
Advanced Prostate Cancer
6 months ago
Can sibo cause bloody stools
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Sooty712
in
IBS Network
5 months ago
Fulvestrant and Kisquali
Hi All, I've recently found out I have a regional recurrence of my BC and my oncologist is recommending switching me to Fulvestrant and Kisquali . I was diagnosed 4 years ago with Stage 3 ,due to the size of the tumor and lymph node involvement, HR+ Her2-. I had a bilateral mastectomy with an
Hi All, I've recently found out I have a regional recurrence of my BC and my oncologist is recommending switching me to Fulvestrant and Kisquali . I was diagnosed 4 years ago with Stage 3 ,due to the size of the tumor and lymph node involvement, HR+ Her2-. I had a bilateral mastectomy with an
Jg1960
in
SHARE Breast Cancer Support
6 months ago
"8mm sclerotic focus noted T12 vertebrae within left superior acetabulum"
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
jjpeabody
in
Advanced Prostate Cancer
28 days ago
TRIAL OF FULVESTRANT PLUS ABERMACICLIB WITH RUN IN OF FULVESTRANT
I HAVE BEEEN ON LETROZOLE AND I-BRANCE 100 FOR APROX 3 1/2 YEARS AND my latest PET scan show more activity and the above study has been recommended to me by my Oncologist as the next course of action. Has anyone else been included in this study, funded by Eli Lily drug company, 28 patients, 15 from
I HAVE BEEEN ON LETROZOLE AND I-BRANCE 100 FOR APROX 3 1/2 YEARS AND my latest PET scan show more activity and the above study has been recommended to me by my Oncologist as the next course of action. Has anyone else been included in this study, funded by Eli Lily drug company, 28 patients, 15 from
25047
in
SHARE Metastatic Breast Cancer
28 days ago
Robotic Ureteral Reimplantation
Have any of you had this surgery? How did it turn out? My right ureter has a partial blockage that is believed to be radiation damage from my prostate cancer radiation treatments five years ago. The ureter is very narrow near the bladder, and urine flow is restricted. A surgeon at University of Chicago
Have any of you had this surgery? How did it turn out? My right ureter has a partial blockage that is believed to be radiation damage from my prostate cancer radiation treatments five years ago. The ureter is very narrow near the bladder, and urine flow is restricted. A surgeon at University of Chicago
Polaris1
in
Advanced Prostate Cancer
28 days ago
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