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Further Tips Please.
Thanks for the concern and advice in response to my first post 2 months ago.I am currently 5 weeks off the primipexol after 12 months of gradual weaning. Many people talk about experiencing the worst 3 weeks of your life after the final dose and my reactions are still extremely strong. It is like a convulsion
Thanks for the concern and advice in response to my first post 2 months ago.I am currently 5 weeks off the primipexol after 12 months of gradual weaning. Many people talk about experiencing the worst 3 weeks of your life after the final dose and my reactions are still extremely strong. It is like a convulsion
davealex
in
Restless Legs Syndrome
3 months ago
Anyone find cold plunge or sauna helpful?
I'm six weeks in on ADT. Working to stay ahead of fatigue with resistance training and weighted vest walking as I gear up for radiation and chemo in the next few months. Anyone done any cold plunge or sauna to help battle side effects or get better sleep? What was your experience?
I'm six weeks in on ADT. Working to stay ahead of fatigue with resistance training and weighted vest walking as I gear up for radiation and chemo in the next few months. Anyone done any cold plunge or sauna to help battle side effects or get better sleep? What was your experience?
PuraVida2024
in
Advanced Prostate Cancer
4 months ago
how to cope
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
Suzi88
in
Restless Legs Syndrome
4 months ago
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Pip help
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband 🫣 Thanks in advance ☺️
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband 🫣 Thanks in advance ☺️
Suzeinwoody
in
Fibromyalgia Action UK
4 months ago
Horizant versus pregabalin / gabapentin dosage effectiveness
Howdy folks! ....I've recently switched from pregabalin 200mg to Horizant - which I'm taking 300-600mg. Prior to that, I've used as much as 1800mg gabapentin. I'm getting some decent benefits from the relatively low dose of Horizant and was wondering if there are any others who have experienced
Howdy folks! ....I've recently switched from pregabalin 200mg to Horizant - which I'm taking 300-600mg. Prior to that, I've used as much as 1800mg gabapentin. I'm getting some decent benefits from the relatively low dose of Horizant and was wondering if there are any others who have experienced
AmazedAnt
in
Restless Legs Syndrome
4 months ago
Good News!!!
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
lorri214
in
Restless Legs Syndrome
4 months ago
Horizant
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
DocCookie
in
Restless Legs Syndrome
4 months ago
sotalol dizzynes
been taking sotalol 40 mg 2 times a day for a few week. Use to take bisoprolol from the beginning dizziness virtigo feeling. Hasn’t really gone away. A lot of the time feel week and Wobbly went on pushbike 2 minutes and got off and felt little bit dizzy. Anyone experiencing this side affect from
been taking sotalol 40 mg 2 times a day for a few week. Use to take bisoprolol from the beginning dizziness virtigo feeling. Hasn’t really gone away. A lot of the time feel week and Wobbly went on pushbike 2 minutes and got off and felt little bit dizzy. Anyone experiencing this side affect from
Goodguy1471
in
Atrial Fibrillation Support
4 months ago
Small fiber neuropathy
I was diagnosed with small fiber neuropathy last year. My symptoms started three years ago. I was fortunate to find a neurologist that took the time with me to get it figured out. My symptoms are burning, itching, pricking, sensitivity to textures. My burning symptoms mainly start when I lay down at
I was diagnosed with small fiber neuropathy last year. My symptoms started three years ago. I was fortunate to find a neurologist that took the time with me to get it figured out. My symptoms are burning, itching, pricking, sensitivity to textures. My burning symptoms mainly start when I lay down at
Meb60
in
Pain Concern
4 months ago
Does Anyone Ever Feel Like There Body Is Heavy Like Wearing Deep Sea Dive Suit When Walking
[i]Really feeling like I have mentioned above & was wondering if anyone else feels the same in the physical nature etc.[/i]
[i] [/i]
[i]Most oddest of feelings I must say.[/i]
[i] [/i]
[i]I'm not over weight at all infact I have a very good athletic physique [/i]
[i]Really feeling like I have mentioned above & was wondering if anyone else feels the same in the physical nature etc.[/i]
[i] [/i]
[i]Most oddest of feelings I must say.[/i]
[i] [/i]
[i]I'm not over weight at all infact I have a very good athletic physique [/i]
Fibroguy66
in
Fibromyalgia Action UK
4 months ago
Severe body hurting on wakening
well lately I have posted so many issues and complaints, but so depressed and fed up with body pain so severe on wakening, I have been diagnosed with osteo, hip , back especially, mow hands. But when I first get ip in am, I feel like have been run over by truck, sit in edge of bed try some stretching
well lately I have posted so many issues and complaints, but so depressed and fed up with body pain so severe on wakening, I have been diagnosed with osteo, hip , back especially, mow hands. But when I first get ip in am, I feel like have been run over by truck, sit in edge of bed try some stretching
arvine
in
Pain Concern
4 months ago
High dose Turmeric and links to low ferritin
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
Buddy195
Administrator
in
Thyroid UK
4 months ago
Thwarted again !
I have just seen a new gp, who was actually rather lovely compared to the AH who was the last one.I actually saw him for my back pain and did mention rls. Now, what he wants to try is 10 mg amitrytamine (bah, can't spell it !)in the morning, 1000 mg of naprogesic and 25mg of pregabalin in the morning
I have just seen a new gp, who was actually rather lovely compared to the AH who was the last one.I actually saw him for my back pain and did mention rls. Now, what he wants to try is 10 mg amitrytamine (bah, can't spell it !)in the morning, 1000 mg of naprogesic and 25mg of pregabalin in the morning
Oscarcat63
in
Restless Legs Syndrome
4 months ago
Amitripalyn Doctor wants me to increase my night time dose to 49 mgs
I get Neuropathy in my arms and lower legs and I feet I also take Ibuprofen my pain level can change sometimes bearable other times it’s off the pain scale I have acupuncture which I pay for privately and it does work and I get long periods of pain free .
I get Neuropathy in my arms and lower legs and I feet I also take Ibuprofen my pain level can change sometimes bearable other times it’s off the pain scale I have acupuncture which I pay for privately and it does work and I get long periods of pain free .
Glenkerry40
in
Neuropathy Support
4 months ago
Vitamin B6 in B Complexes
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
chrysalis56
in
Thyroid UK
4 months ago
Electromyography
Hello, I just got back from neurology. After testing my reflexes with little response he's decided to book me in for electromyography to see what's happening with the nerves ....which is a good step forward. He mentioned all DA I said ...no ,he also mentioned amitriptoline but I explained this wasn't
Hello, I just got back from neurology. After testing my reflexes with little response he's decided to book me in for electromyography to see what's happening with the nerves ....which is a good step forward. He mentioned all DA I said ...no ,he also mentioned amitriptoline but I explained this wasn't
Baz33
in
Restless Legs Syndrome
4 months ago
Sotalol
My newly found Consultant Cardiologist has prescribed me two new drugs. Sotalol and Flecainide. In respect of the Sotalol he prescribed .... " one tablet twice a day". My tablets are 40mg dose. This replaces Bisoprolol and Nebivolol that I have taken at different times in past years gone by. Anyone
My newly found Consultant Cardiologist has prescribed me two new drugs. Sotalol and Flecainide. In respect of the Sotalol he prescribed .... " one tablet twice a day". My tablets are 40mg dose. This replaces Bisoprolol and Nebivolol that I have taken at different times in past years gone by. Anyone
BenHall1
in
Atrial Fibrillation Support
4 months ago
Numbness after methyl injections
Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. The first few injections I felt euphoric and normal again, had wake up symptoms like tingling, twitches and burning pain. But as I continue to inject, it seems like the effect has dulled and now I have more numbness than anything
Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. The first few injections I felt euphoric and normal again, had wake up symptoms like tingling, twitches and burning pain. But as I continue to inject, it seems like the effect has dulled and now I have more numbness than anything
QianYunxi
in
Pernicious Anaemia Society
4 months ago
Moving Forward with Neuropathy
6 years ago my feet began feeling tingly and burning. Now they are completely numb up to my knees. My legs are weak and even with exercise and weights, I cannot get them stronger. I'm wondering if the weakness is a neurological issue. I e had a Laminectomy in my low back but received no relief from that
6 years ago my feet began feeling tingly and burning. Now they are completely numb up to my knees. My legs are weak and even with exercise and weights, I cannot get them stronger. I'm wondering if the weakness is a neurological issue. I e had a Laminectomy in my low back but received no relief from that
Murdochsmama
in
Neuropathy Support
5 months ago
Thinking of switching to Gabapentin or Pregabalin
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
Baldrick123
in
Restless Legs Syndrome
5 months ago
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