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Pelizaeus–Merzbacher-like disease
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switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
5 months ago
Fibroscan update
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Dontworrydarling
in
British Liver Trust
7 months ago
Ambroxol update
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
CuriousMe12
in
Cure Parkinson's
7 months ago
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questions after tadiotherapy?
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
pj1121
in
Advanced Prostate Cancer
7 months ago
husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
7 months ago
I just need to vent!
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Bramble2000
in
PMRGCAuk
7 months ago
lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
5 months ago
Cardioversion with amiodarone or straight to ablation?
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
Hallane
in
Atrial Fibrillation Support
4 months ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
Commenced Bisoprolol
Hi I suffer from Paroxysmal AF. I have been taking Rivaroxaban for 2 months. I saw the cardiologist and he has started me on 2.5mg Bisoprolol daily. I took my first dose at 10am and by 2.30pm my Heart Rate had dropped to 50 bpm. My question is to others who take Bisoprolol for rhythm control and who
Hi I suffer from Paroxysmal AF. I have been taking Rivaroxaban for 2 months. I saw the cardiologist and he has started me on 2.5mg Bisoprolol daily. I took my first dose at 10am and by 2.30pm my Heart Rate had dropped to 50 bpm. My question is to others who take Bisoprolol for rhythm control and who
Cat715
in
Atrial Fibrillation Support
4 months ago
potential DILI - advice?
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
4 days ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
5 days ago
Treadmill test
As an aid to diagnosing persistent chest pains - the consultant thinks they are non-cardiac but wants to investigate a bit more-I’m to be given a treadmill test in a few weeks. I asked for this instead of the more rigourous but not very pleasant “stress test”. The heart rate will be raised to 100 during
As an aid to diagnosing persistent chest pains - the consultant thinks they are non-cardiac but wants to investigate a bit more-I’m to be given a treadmill test in a few weeks. I asked for this instead of the more rigourous but not very pleasant “stress test”. The heart rate will be raised to 100 during
Samazeuilh2
in
Atrial Fibrillation Support
4 months ago
Low dose <5mg eliquis
I am taking Eliquis 5 mg twice a day. I get some significant bruising. I am also taking ibrutinib 140 mg which is lowest dose...blood counts are good. I was also diagnosed with afib. I'm wondering if anyone is taking less than 5 mg Eliquis twice daily and if that works? I've talked with a couple friends
I am taking Eliquis 5 mg twice a day. I get some significant bruising. I am also taking ibrutinib 140 mg which is lowest dose...blood counts are good. I was also diagnosed with afib. I'm wondering if anyone is taking less than 5 mg Eliquis twice daily and if that works? I've talked with a couple friends
Bobsterguy
in
Atrial Fibrillation Support
4 months ago
GGT Marker
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
Gaspereaux
in
British Liver Trust
13 days ago
Worried about these results please help
Had this blood test done in January and had text to say book a non urgent appointment and just put it off also getting print out from docs they’ve requested a telephone consultation which I’ve eventually booked but looking at it I know the TSH is low in their opinion and obviously cholesterol too high
Had this blood test done in January and had text to say book a non urgent appointment and just put it off also getting print out from docs they’ve requested a telephone consultation which I’ve eventually booked but looking at it I know the TSH is low in their opinion and obviously cholesterol too high
Silverlady5
in
Thyroid UK
4 months ago
Arrhythmias
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Wilkie1
in
Atrial Fibrillation Support
4 months ago
fluoxetine
hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m anxious of taking drugs and wondered what experience anyone has had with fluoxetine. Effectiveness, side effects and is alcohol ok? Thanks all
hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m anxious of taking drugs and wondered what experience anyone has had with fluoxetine. Effectiveness, side effects and is alcohol ok? Thanks all
Enjoyswalking
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
cardioversion and Flecainide
An update - I had my cardioversion privately a week ago - all good, so far….. I feel so much better. HR now around 55-60 instead of 90-100 ( on high dose drugs) I was immediately taken off Digoxin and told to continue the BB Nebivolol 10mg a day. Then started on Flecainide 100mg daily, with the BB.
An update - I had my cardioversion privately a week ago - all good, so far….. I feel so much better. HR now around 55-60 instead of 90-100 ( on high dose drugs) I was immediately taken off Digoxin and told to continue the BB Nebivolol 10mg a day. Then started on Flecainide 100mg daily, with the BB.
Canteringon
in
Atrial Fibrillation Support
4 months ago
The Shelagh Cheesman Lupus Information Day - 16th March
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
michaellasmith
Administrator
in
LUPUS UK
5 months ago
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