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Pegasys
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painkillers for toothache
I have ET and am on
Pegasys
Interferon. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ?
I have ET and am on
Pegasys
Interferon. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ?
Abrams
in
MPN Voice
10 months ago
Peg and Ear infection
I was diagnosed with PV recently at age 53 and started a
Pegasys
a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics.
I was diagnosed with PV recently at age 53 and started a
Pegasys
a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics.
Fabfam5
in
MPN Voice
9 months ago
Interferon effects
Hi,I've started my journey with
Pegasys
about 5 weeks ago. I am on 45mcg weekly. Before
Pegasys
my platelets were close to 600 and HCT around 0.55 Today my platelets dropped to 297 and HCT to 0.47 in just 5 or 6 weeks. Should I be happy or concern for fast adjustment ?
Hi,I've started my journey with
Pegasys
about 5 weeks ago. I am on 45mcg weekly. Before
Pegasys
my platelets were close to 600 and HCT around 0.55 Today my platelets dropped to 297 and HCT to 0.47 in just 5 or 6 weeks. Should I be happy or concern for fast adjustment ?
kamiilos
in
MPN Voice
11 months ago
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Pegasys and autoimmune response
I have been taking
Pegasys
for little less than a year at a fairly low dose. I had some warning signs of migraine (painful to move head) a few times, which I attributed to dehydration, but then had a vicious migraine for 2 days within 7 days of a
Pegasys
injection (45 mcg).
I have been taking
Pegasys
for little less than a year at a fairly low dose. I had some warning signs of migraine (painful to move head) a few times, which I attributed to dehydration, but then had a vicious migraine for 2 days within 7 days of a
Pegasys
injection (45 mcg).
Smithjoa
in
MPN Voice
1 year ago
Autoimmune issues -- should I try Pegasys?
Also, I'm interested in the possibility of remission that
Pegasys
can offer. Note that I have discussed this with my regular hematologist and an MPN specialist. They seem to be willing for me to try the
Pegasys
.
Also, I'm interested in the possibility of remission that
Pegasys
can offer. Note that I have discussed this with my regular hematologist and an MPN specialist. They seem to be willing for me to try the
Pegasys
.
blue_reader
in
MPN Voice
1 year ago
Finally failed at side-stepping the “rona”
The day before I tested positive I had my
Pegasys
injection and I am curious to see if the Peg will help once it reaches its peak of release ( from past experience with Peg first dose side effects , apparently I am textbook with 36 hours).
The day before I tested positive I had my
Pegasys
injection and I am curious to see if the Peg will help once it reaches its peak of release ( from past experience with Peg first dose side effects , apparently I am textbook with 36 hours).
Aldebaran25
in
MPN Voice
8 months ago
immune system
GPwanted to put me on Statins but Haem said Statins don’t go with
Pegasys
, I cannot see any contraindications between
Pegasys
and Statins in the BNF I am currently off
Pegasys
due to the pains I am experiencing which are actually worse than when I was taking it.
GPwanted to put me on Statins but Haem said Statins don’t go with
Pegasys
, I cannot see any contraindications between
Pegasys
and Statins in the BNF I am currently off
Pegasys
due to the pains I am experiencing which are actually worse than when I was taking it.
lindyloulou
in
MPN Voice
1 year ago
Pregnancy and ET
I was told the only medication you can take is
Pegasys
if I want to get pregnant. Curious about the risks as well. There is little research about this.
I was told the only medication you can take is
Pegasys
if I want to get pregnant. Curious about the risks as well. There is little research about this.
Zeppelin11
in
MPN Voice
1 year ago
On Pegasys 180 for 2 months.
At first just when I did injections now all the time Dr has taken me off
Pegasys
immediately put me back on Hu, only 500mg until Jakavi, is approved. Last time on Hu only platlet 1.99 million. Concerned that the kidneys and liver will need to recover. Has anyone else experienced this?
At first just when I did injections now all the time Dr has taken me off
Pegasys
immediately put me back on Hu, only 500mg until Jakavi, is approved. Last time on Hu only platlet 1.99 million. Concerned that the kidneys and liver will need to recover. Has anyone else experienced this?
ETMF
in
MPN Voice
11 months ago
Aspirin Question
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on
Pegasys
? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on
Pegasys
? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Golfersmom
in
MPN Voice
1 year ago
Being taking off Pegasys. :( Looking for alternatives
I have been on aspirin for over 10 years, but had to start
Pegasys
3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and arythmia.
I have been on aspirin for over 10 years, but had to start
Pegasys
3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and arythmia.
JustKeepSw1mming
in
MPN Voice
1 year ago
Leg Cramps
Could this be a symptom of PV or a side effect of
Pegasys
? Taking extra magnesium doesn’t seem to help unfortunately. Seeing my Haematologist in 10 days so I will be asking her advice then.
Could this be a symptom of PV or a side effect of
Pegasys
? Taking extra magnesium doesn’t seem to help unfortunately. Seeing my Haematologist in 10 days so I will be asking her advice then.
21Rosie
in
MPN Voice
11 months ago
Am I at a higher risk from Covid ?
I have ET which is currently being treated with
Pegasys
and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December. Thanks
I have ET which is currently being treated with
Pegasys
and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December. Thanks
Scarlett500
in
MPN Voice
1 year ago
Low Platelets Help
I’m taking 105mcg of
Pegasys
with 1500 mgs of Hydrea per week for PV. I’m concerned that my platelets are falling lower every month. I just dropped to Under 100. I’m wondering if anyone else has experienced this? Thanks
I’m taking 105mcg of
Pegasys
with 1500 mgs of Hydrea per week for PV. I’m concerned that my platelets are falling lower every month. I just dropped to Under 100. I’m wondering if anyone else has experienced this? Thanks
russkatt
in
MPN Voice
5 months ago
Looking for an MPN specialist near Washington DC
Currently on very low dose of
Pegasys
that might be working *too* well, and need to figure out next steps. Willing to drive a reasonable distance (4-5 hours is acceptable) for the right doc!
Currently on very low dose of
Pegasys
that might be working *too* well, and need to figure out next steps. Willing to drive a reasonable distance (4-5 hours is acceptable) for the right doc!
110srh
in
MPN Voice
1 year ago
A bit worried
I’ve been on
Pegasys
for a few years and with ET CALR2. Platelets are well controlled at 329 but these results have WBC at 10.9. This is still only just in the normal range but previous results in March this year were a WBC OF 4.9. I’m worried that it has gone up so much.
I’ve been on
Pegasys
for a few years and with ET CALR2. Platelets are well controlled at 329 but these results have WBC at 10.9. This is still only just in the normal range but previous results in March this year were a WBC OF 4.9. I’m worried that it has gone up so much.
hall2
in
MPN Voice
1 year ago
2 months on pegasys - first follow up
Started
pegasys
2 months ago and platelets were in the 900 range with 2x500mg HU daily. Platelets were 1.2m before starting HU. Hoping this means I can start to ween off HU! 🎉 hope everyone is doing ok. Hang in there, good things can happen!
Started
pegasys
2 months ago and platelets were in the 900 range with 2x500mg HU daily. Platelets were 1.2m before starting HU. Hoping this means I can start to ween off HU! 🎉 hope everyone is doing ok. Hang in there, good things can happen!
dbus1417
in
MPN Voice
1 year ago
Pegasys and increasingly low haemoglobin count
Has anyone else experienced a steady drop in haemoglobin counts whilst on
pegasys
, after a similar period of time (5 years)? Did reducing the dosage reverse the situation? Thanks in advance. Pete
Has anyone else experienced a steady drop in haemoglobin counts whilst on
pegasys
, after a similar period of time (5 years)? Did reducing the dosage reverse the situation? Thanks in advance. Pete
PT99
in
MPN Voice
1 year ago
Big Question
I have been in complete haematologic remission on
Pegasys
(45 ug every 2 weeks for the last year). I have never had an official allele burden as it is not available here. Though I did send saliva and nail clippings to the study in California on familial MPNs under Dr. Angela Fleischman.
I have been in complete haematologic remission on
Pegasys
(45 ug every 2 weeks for the last year). I have never had an official allele burden as it is not available here. Though I did send saliva and nail clippings to the study in California on familial MPNs under Dr. Angela Fleischman.
Planti
in
MPN Voice
11 months ago
Pegasys treatment
Hi there,I am about to start my PV treatment with
Pegasys
. My doctor says to start at 90 mg as that's minimum dosage. However, I noticed others start at 45mg due to side effects and so to let the body get use to it. How was your experience with
Pegasys
?
Hi there,I am about to start my PV treatment with
Pegasys
. My doctor says to start at 90 mg as that's minimum dosage. However, I noticed others start at 45mg due to side effects and so to let the body get use to it. How was your experience with
Pegasys
?
kamiilos
in
MPN Voice
1 year ago
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