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Pegasys
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Possible side effects of interferon?
I started
Pegasys
at 45mcg per week about 2 months ago and for the most part I haven’t noticed obvious side effects. However in the last few weeks I’ve noticed pain in my hips, I think it’s muscular rather than in the actual joint.
I started
Pegasys
at 45mcg per week about 2 months ago and for the most part I haven’t noticed obvious side effects. However in the last few weeks I’ve noticed pain in my hips, I think it’s muscular rather than in the actual joint.
AlexWheek
in
MPN Voice
3 years ago
New Plots for Besremi & "Beneficial"
Interestingly there is no need to compare
Pegasys
since that is not FDA approved hence not "equivalent". Insurance rep looked for alternatives, expecting to find some. I told her you won't find any, she came back and said you're right.
Interestingly there is no need to compare
Pegasys
since that is not FDA approved hence not "equivalent". Insurance rep looked for alternatives, expecting to find some. I told her you won't find any, she came back and said you're right.
EPguy
in
MPN Voice
3 years ago
Pegasys Update
For now, we are continuing the
Pegasys
at 90mcg/week (dosed at 180mcg bi-weekly). I will have another full blood work-up in 5 weeks and we'll see at that time if platelets remain stable we might be able to reduce the Peg to 67mcg/week.
For now, we are continuing the
Pegasys
at 90mcg/week (dosed at 180mcg bi-weekly). I will have another full blood work-up in 5 weeks and we'll see at that time if platelets remain stable we might be able to reduce the Peg to 67mcg/week.
Solyesh
in
MPN Voice
3 years ago
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Splenomegaly after taking Pegasys
I know
Pegasys
reduces spleen size, but does it by chance increase the size temporarily at initiation of treatment? I didn't have splenomegaly before, just wondering why I feel like I do after taking
Pegasys
. Not having an enlarged spleen was the one thing I had going for me!
I know
Pegasys
reduces spleen size, but does it by chance increase the size temporarily at initiation of treatment? I didn't have splenomegaly before, just wondering why I feel like I do after taking
Pegasys
. Not having an enlarged spleen was the one thing I had going for me!
Emmyroos
in
MPN Voice
3 years ago
Update 5.9
The journey with
Pegasys
continues to go well. I continue to have no side effects at 45mcg/week. All CMP numbers look good. No sign of any issues with kidneys or liver.
The journey with
Pegasys
continues to go well. I continue to have no side effects at 45mcg/week. All CMP numbers look good. No sign of any issues with kidneys or liver.
hunter5582
in
MPN Voice
3 years ago
Pregnant with PV
I am on Aspirin and
Pegasys
right now. I was trying to google the management of PV pregnancies but haven't found much about it.
I am on Aspirin and
Pegasys
right now. I was trying to google the management of PV pregnancies but haven't found much about it.
DariBee
in
MPN Voice
3 years ago
Good news
Just had my 3rd hospital consultation and I was pleased to hear that after 9 weeks on
Pegasys
, 45mg weekly, my platelets have dropped from 590 to 375. All other blood levels in the normal range 😁
Just had my 3rd hospital consultation and I was pleased to hear that after 9 weeks on
Pegasys
, 45mg weekly, my platelets have dropped from 590 to 375. All other blood levels in the normal range 😁
Jynx93
in
MPN Voice
3 years ago
Any Experience with Pegasys and Wound Healing? UPDATED BELOW
We placed the question to my MPN doctors and they resisted a bit maintaining that there was no studies showing that
pegasys
would interfere with healing. We decided to continue the
pegasys
. I am 16 days out from surgery and saw the surgeon today.
We placed the question to my MPN doctors and they resisted a bit maintaining that there was no studies showing that
pegasys
would interfere with healing. We decided to continue the
pegasys
. I am 16 days out from surgery and saw the surgeon today.
gvibes
in
MPN Voice
3 years ago
Third covid vaccine tomorrow
I have ET Jak2+ and am on
Pegasys
. Feeling very relieved! Lou xx
I have ET Jak2+ and am on
Pegasys
. Feeling very relieved! Lou xx
Loubielou
in
MPN Voice
3 years ago
Has anyone moved from Pegasys to Ropeg?
Not sure if Ropeg is available in the U.K.? Is anyone here using it?
Not sure if Ropeg is available in the U.K.? Is anyone here using it?
Paul123456
in
MPN Voice
3 years ago
Besremi - 6 month update
I started on Besremi 6 months ago as I was proving to be HU resistant and
Pegasys
and Ruxolitnib were both considered inappropriate due to my medical history.
I started on Besremi 6 months ago as I was proving to be HU resistant and
Pegasys
and Ruxolitnib were both considered inappropriate due to my medical history.
JohnSC
in
MPN Voice
3 years ago
Just started taking Pegasys for myelofibrosis
Does anyone know if this is a side effect of
Pegasys
or a symptom of the disease itself?
Does anyone know if this is a side effect of
Pegasys
or a symptom of the disease itself?
Emmyroos
in
MPN Voice
3 years ago
Switched from Hydroxyurea to Pegylated Interferon (PEGASYS)
My hematologist has offered my
Pegasys
. I'm interested in how well different people tolerate it as a therapy and how effective they have found it. Looking forward to hearing from you.
My hematologist has offered my
Pegasys
. I'm interested in how well different people tolerate it as a therapy and how effective they have found it. Looking forward to hearing from you.
SuzanneMPD
in
MPN Voice
3 years ago
Pegasus interferon piles
I have been on
Pegasys
interferon for 9 weeks and I am increasingly being bothered by very painful piles I wondered if anyone else had experienced this problem which has only occurred after having Pegasus thank you
I have been on
Pegasys
interferon for 9 weeks and I am increasingly being bothered by very painful piles I wondered if anyone else had experienced this problem which has only occurred after having Pegasus thank you
Hughley
in
MPN Voice
3 years ago
Alcohol on same day as Pegasys shot, yay or nay?
Has anyone consumed alcohol prior to taking
pegasys
, on the same day? I’m normally well behaved but on holiday tonight and the cocktail menu looks hard to resist 😂 Can’t delay peg injection for logistical reasons.
Has anyone consumed alcohol prior to taking
pegasys
, on the same day? I’m normally well behaved but on holiday tonight and the cocktail menu looks hard to resist 😂 Can’t delay peg injection for logistical reasons.
IrishSarah
in
MPN Voice
3 years ago
Very high B12 blood results
I am post ET MF Calr2 ASXL and TET2 on
Pegasys
90 units per week for last 8 mths. MF diagnosed last November via BMB Aged 64.
I am post ET MF Calr2 ASXL and TET2 on
Pegasys
90 units per week for last 8 mths. MF diagnosed last November via BMB Aged 64.
AnBee
in
MPN Voice
3 years ago
Starting on Pegasys
Went to MPN specialist yesterday and had my first shot of Peg - starting on 90mg/week (I was on 1,500mg daily of Hydroxy). For the time being he is also keeping me on 1,000mg of HU which after my next blood draw we will either drop to 500mg or eliminate completely...of course continuing on baby aspirin
Went to MPN specialist yesterday and had my first shot of Peg - starting on 90mg/week (I was on 1,500mg daily of Hydroxy). For the time being he is also keeping me on 1,000mg of HU which after my next blood draw we will either drop to 500mg or eliminate completely...of course continuing on baby aspirin
Solyesh
in
MPN Voice
3 years ago
Third Covid Vaccine
I’m on
Pegasys
and wasn’t sure if I was considered “immunocompromised”. I just haven’t seen any data around this. Anyone have any experience? I am 44, diagnosed JAK2 PV 6 years ago. Thank you!
I’m on
Pegasys
and wasn’t sure if I was considered “immunocompromised”. I just haven’t seen any data around this. Anyone have any experience? I am 44, diagnosed JAK2 PV 6 years ago. Thank you!
DN515
in
MPN Voice
3 years ago
Boosting immune system.
I’m currently taking 90mcg
Pegasys
weekly and certainly has lowered my platelets but WCC and neutrophils too !
I’m currently taking 90mcg
Pegasys
weekly and certainly has lowered my platelets but WCC and neutrophils too !
21Rosie
in
MPN Voice
3 years ago
Update 5.9 = More good news
I continue to have no adverse effects from
Pegasys
45mcg/week at all. I am hopeful that things will get even better as my iron levels return to normal while the PEG continues to control the erythrocytosis. I would particularly like to see energy levels/stamina return to normal.
I continue to have no adverse effects from
Pegasys
45mcg/week at all. I am hopeful that things will get even better as my iron levels return to normal while the PEG continues to control the erythrocytosis. I would particularly like to see energy levels/stamina return to normal.
hunter5582
in
MPN Voice
3 years ago
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