Hi, I'm wanting to hear from people who have changed treatments. I'm especially keen to know what doses you were taking of HU and what doses of PI.
I have polycythemia vera with JAK2 variant. I was diagnosed sometime ago. Maybe 7 years. Have had various treatments including venesection, interferon alpha. And most recently for the last few years hydroxyurea/hydroxycarbamide. I was quite stable on a low dose 500mg a week until this late 2020. I am currently on 1000mg a week and blood results are a little outside the normal range. HCT great though.
My hematologist has offered my Pegasys. I'm interested in how well different people tolerate it as a therapy and how effective they have found it.
Looking forward to hearing from you.