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Experiences with
Paroxysmal atrial fibrillation
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Still feeling dreadful after ablation
hello everyone i posted last week a few days after my ablation. I was experiencing AF each day and feeling miserable particularly as my life pre ablation wasn’t that bad. straight away on the ward after the ablation and GA i had a bad bout which settled with bisoprolol and magnesium infusion then
hello everyone i posted last week a few days after my ablation. I was experiencing AF each day and feeling miserable particularly as my life pre ablation wasn’t that bad. straight away on the ward after the ablation and GA i had a bad bout which settled with bisoprolol and magnesium infusion then
foxglove1
in
Atrial Fibrillation Support
2 years ago
New ED Gell FDA Approved
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
Cancer2x
in
Advanced Prostate Cancer
11 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
11 months ago
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Adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Here4ivfinfo
in
Fertility Network UK
11 months ago
Clinical trial results on 17p & tp53 variants in treatment naïve & relapsed patients by Dr. Furman - Oct 2022 to medical professionals
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
lankisterguy
Volunteer
in
CLL Support
11 months ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
11 months ago
help in understanding
hello hatten back again regarding this letter from the hospital, i cannot understand what this means but it does not look good. Normal biventricular size and function, mild LVH. Moderate,severe/ aortic stenosis Trace of AR PR mild MR TR The left atrium is dilated The aorta is is dilated at the
hello hatten back again regarding this letter from the hospital, i cannot understand what this means but it does not look good. Normal biventricular size and function, mild LVH. Moderate,severe/ aortic stenosis Trace of AR PR mild MR TR The left atrium is dilated The aorta is is dilated at the
Hatten28
in
Atrial Fibrillation Support
2 years ago
💔 I have lost to many people recently to RLS Let their deaths not be in-vain.I’ve have a plan to bring more exposure. Will u help me X
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
Shumbah
in
Restless Legs Syndrome
11 months ago
Drug side effects confusing
I have experienced afib a couple of times a year for about 4 years lasting about 24 hours. In early Dec i went into afib and it lated 4 days then a few days later another attack, gp put me on 120gm controlled release diltiazem, it worked for 3 days then another session, she put it up to 180gm but it
I have experienced afib a couple of times a year for about 4 years lasting about 24 hours. In early Dec i went into afib and it lated 4 days then a few days later another attack, gp put me on 120gm controlled release diltiazem, it worked for 3 days then another session, she put it up to 180gm but it
Renesch
in
AF Association
2 years ago
Low TSH
Hi just a quick question. I’ve posted before but not managed to fill in my profile yet. I had a partial Thyroidectomy in 1995. I’ve been on Thyroxine since then & been stable for years on 75mcgs. Briefly I saw Endocrine last year & was informed I had been undermedicated for several years.I had a dose
Hi just a quick question. I’ve posted before but not managed to fill in my profile yet. I had a partial Thyroidectomy in 1995. I’ve been on Thyroxine since then & been stable for years on 75mcgs. Briefly I saw Endocrine last year & was informed I had been undermedicated for several years.I had a dose
Otto11
in
Thyroid UK
11 months ago
SGLT-2 Inhibitors to (partially) “Starve” Glucose Dependent Cancers
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
MateoBeach
in
Fight Prostate Cancer
11 months ago
No more multiple PVCs after daily sauna
I am a 58 years old male. I went into cardiac arrest almost 2 years ago when I was rapid afib. I now have a pacemaker defibrilator. Thanks to my diet,rich in potassium and magnesium, I have been afib free most of the time. Though at times I still had multiple PVC's, bigeminy usually at lunch time.
I am a 58 years old male. I went into cardiac arrest almost 2 years ago when I was rapid afib. I now have a pacemaker defibrilator. Thanks to my diet,rich in potassium and magnesium, I have been afib free most of the time. Though at times I still had multiple PVC's, bigeminy usually at lunch time.
Sustainedvtach270
in
Atrial Fibrillation Support
2 years ago
Ablation update and reassurances.
Had an ablation Dec.30. Afib episodes Jan. 2-5. I felt worse than ever before but Doc said to take 200mgs amiodarone on the 5th and would schedule a cardioversion if I didn't go back into NSR in next couple days. Well, lo and behold, went into NSR on the 6th and been afib free since. I have a follow
Had an ablation Dec.30. Afib episodes Jan. 2-5. I felt worse than ever before but Doc said to take 200mgs amiodarone on the 5th and would schedule a cardioversion if I didn't go back into NSR in next couple days. Well, lo and behold, went into NSR on the 6th and been afib free since. I have a follow
riffjack846
in
AF Association
2 years ago
Can you help with this Kardia ECG strip please? Kardia say it is sinus rhythm but I’m not so sure
Reported by Kardia as sinus rhythm. I wonder if it is slow atrial flutter or heart block. I have had permanent atrial fibrillation for years after ultimately unsuccessful ablations. I only take an anticoagulant but last night I was batting along at 112 per minute during a tense online chess game so
Reported by Kardia as sinus rhythm. I wonder if it is slow atrial flutter or heart block. I have had permanent atrial fibrillation for years after ultimately unsuccessful ablations. I only take an anticoagulant but last night I was batting along at 112 per minute during a tense online chess game so
Hidden
in
AF Association
2 years ago
Tonic Motor Activation (TOMAC)
There have been a couple of posts on TOMAC devices recently. I've just dug out an email I wrote in June this year to the company making one such device - Noctrix Health. Here's Noctrix Health's reply.. "The FDA has recently allowed us to start marketing and distributing our wearable medical device
There have been a couple of posts on TOMAC devices recently. I've just dug out an email I wrote in June this year to the company making one such device - Noctrix Health. Here's Noctrix Health's reply.. "The FDA has recently allowed us to start marketing and distributing our wearable medical device
Hidden
in
Restless Legs Syndrome
11 months ago
Pursuing Smaller, Faster Clinical Trials For Progressive Neurological Disorders
It’s easy to be pessimistic when it comes to investigating Parkinson’s disease. The condition, which causes progressive damage to brain cells over many years, has no therapy to halt its progression, with current treatments focusing only on symptom management. The challenges in Parkinson’s drug development
It’s easy to be pessimistic when it comes to investigating Parkinson’s disease. The condition, which causes progressive damage to brain cells over many years, has no therapy to halt its progression, with current treatments focusing only on symptom management. The challenges in Parkinson’s drug development
Farooqji
in
Cure Parkinson's
11 months ago
Clinical trial with monoclonal antibodies?
I've been asked to participate in a clinical trial in which I get an infusion of monoclonal antibodies. The team is wanting to know if this would help those with blood cancers have higher resistance to Covid. Any thoughts? I will discuss with my doctor but wanted more feedback.
I've been asked to participate in a clinical trial in which I get an infusion of monoclonal antibodies. The team is wanting to know if this would help those with blood cancers have higher resistance to Covid. Any thoughts? I will discuss with my doctor but wanted more feedback.
Tangolover
in
CLL Support
11 months ago
Promising treatments in the 2023 Parkinson's clinical trials pipeline
https://www.parkinson.ca/promising-treatments-in-the-2023-parkinsons-clinical-trials/ "Phase 3 DMT trials completing in 2023: Memantine : Alzheimer's drug that aims to reduce cognitive impairment in Parkinson's. Ganoderma/Lingzh : Mushrooms from traditional Chinese medicine are being studied
https://www.parkinson.ca/promising-treatments-in-the-2023-parkinsons-clinical-trials/ "Phase 3 DMT trials completing in 2023: Memantine : Alzheimer's drug that aims to reduce cognitive impairment in Parkinson's. Ganoderma/Lingzh : Mushrooms from traditional Chinese medicine are being studied
nednedned
in
Cure Parkinson's
11 months ago
Going in For Second Ablation
Hi folks! I had my first ablation over four years ago, at Texas Cardiac Arrythmia with Dr. Andrea Natale. I wasn't able to come off my medication after, but the meds then worked to control my afib and numerous PVCs where it didn't pre-ablation. During these four years I had been taking 50 mg of Flecainide
Hi folks! I had my first ablation over four years ago, at Texas Cardiac Arrythmia with Dr. Andrea Natale. I wasn't able to come off my medication after, but the meds then worked to control my afib and numerous PVCs where it didn't pre-ablation. During these four years I had been taking 50 mg of Flecainide
barbly1
in
AF Association
2 years ago
A Phase 2 trial of Risvodetinib (IkT-148009) by Inhibikase Therapeutics is currently recruiting untreated PwPs
A dedicated website for this trial has been set up by Inhibikase. The 201 Clinical Trial For Patients With Untreated Parkinson’s Disease: https://www.the201trial.com/ Study record: https://classic.clinicaltrials.gov/ct2/show/NCT05424276?term=inhibikase&draw=2&rank=1 Background information: https
A dedicated website for this trial has been set up by Inhibikase. The 201 Clinical Trial For Patients With Untreated Parkinson’s Disease: https://www.the201trial.com/ Study record: https://classic.clinicaltrials.gov/ct2/show/NCT05424276?term=inhibikase&draw=2&rank=1 Background information: https
jeffreyn
in
Cure Parkinson's
11 months ago
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