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RLS-UK Annual General Meeting, 03/09/16 - Professor K Ray Chaudhuri confirmed as Guest Speaker
He is the European Editor of Basal Ganglia and is in the editorial board of
Parkinsonism
and Related Disorders and Journal of Parkinson’s Disease..He also represents UK research and development in the National Institute of Health Research (NIHR) as well as at a local level for London South CLRN neurosciences
He is the European Editor of Basal Ganglia and is in the editorial board of
Parkinsonism
and Related Disorders and Journal of Parkinson’s Disease..He also represents UK research and development in the National Institute of Health Research (NIHR) as well as at a local level for London South CLRN neurosciences
Daragh
Restless Leg Syndrome
in
Restless Legs Syndrome
8 years ago
Please help desperate
Ok here's the story so Monday I found out I had candida doc prescribed me nystatin 3x a day for 6 weeks started it monday. Tuesday intense itching started,Wednesday got worse along with hives and sunburn look almost everywhere was advised by pharmacy to stop nystatin so I did Wednesday .took claritin
Ok here's the story so Monday I found out I had candida doc prescribed me nystatin 3x a day for 6 weeks started it monday. Tuesday intense itching started,Wednesday got worse along with hives and sunburn look almost everywhere was advised by pharmacy to stop nystatin so I did Wednesday .took claritin
lindsey1987
in
Thyroid UK
8 years ago
Ataxia to Atrophy
MSA can be `MSA-P (
parkinsonism
) or MSA-C (Cerebellar) The symptoms of Ataxia and MSA are very similar. At the appointment I met the Ataxia uk representative who was extremely helpful. Anyone else with MSA on this site ( I have joined the MSA site which is very similar to this one) Colin
MSA can be `MSA-P (
parkinsonism
) or MSA-C (Cerebellar) The symptoms of Ataxia and MSA are very similar. At the appointment I met the Ataxia uk representative who was extremely helpful. Anyone else with MSA on this site ( I have joined the MSA site which is very similar to this one) Colin
cymruralf
in
Ataxia UK
8 years ago
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probiotics recommendations please
Unrelated post - but I'm just finishing my second course of antibiotics for a nasty upper respiratory infection. My gut bacteria are going to need some serious replenishing and I don't believe generic live yoghurt from the supermarket is going to cut the mustard... I had a look on Amazon and am more
Unrelated post - but I'm just finishing my second course of antibiotics for a nasty upper respiratory infection. My gut bacteria are going to need some serious replenishing and I don't believe generic live yoghurt from the supermarket is going to cut the mustard... I had a look on Amazon and am more
Joburton
in
Thyroid UK
8 years ago
Group support - exercise etc
Hello fellow ataxians. This is by way of answer to two recent posts, on difficulty standing and on the media and support for ataxia. Doing more exercise to strengthen the body is the only way to help ourselves. My wife Jenny and I do 20 - 30 minutes yoga based stretching every morning before breakfast
Hello fellow ataxians. This is by way of answer to two recent posts, on difficulty standing and on the media and support for ataxia. Doing more exercise to strengthen the body is the only way to help ourselves. My wife Jenny and I do 20 - 30 minutes yoga based stretching every morning before breakfast
nigelrheath
in
Ataxia UK
8 years ago
Irregular heart beat
My husband has had Parkinsons for 6 years. He takes Sinemet and entacapone. Shortly after taking his medication (every 3hours) he feels very weak . When I check his BP it is often very low and shows "irregular heart beat" I feel it is the medication rather than "off" time. I don't often contribute to
My husband has had Parkinsons for 6 years. He takes Sinemet and entacapone. Shortly after taking his medication (every 3hours) he feels very weak . When I check his BP it is often very low and shows "irregular heart beat" I feel it is the medication rather than "off" time. I don't often contribute to
leojohn
in
Cure Parkinson's
8 years ago
Have you considered DBS? It is recommended for people with midstage PD who for whom meds are no longer working well!
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
sdekozan
in
Cure Parkinson's
8 years ago
Dancing with the devil
I was brought up to be very considers about other people's views and openness. At a party you never discuss religion or politics and you always take the hostess a gift. unusually I am going to type a post that is more controversial than I would normally. What has prompted this is my pet hate assumption
I was brought up to be very considers about other people's views and openness. At a party you never discuss religion or politics and you always take the hostess a gift. unusually I am going to type a post that is more controversial than I would normally. What has prompted this is my pet hate assumption
Hidden
in
Cure Parkinson's
8 years ago
Can a smartphone unlock new discoveries in Parkinson’s?
The Cure Parkinson’s Trust are supporting a world-first global study to learn more about the health of people with Parkinson’s, to help bridge the long gap between visits to the doctor. You’re invited to become a citizen scientist, tracking the ten most important aspects of your health for 100 days
The Cure Parkinson’s Trust are supporting a world-first global study to learn more about the health of people with Parkinson’s, to help bridge the long gap between visits to the doctor. You’re invited to become a citizen scientist, tracking the ten most important aspects of your health for 100 days
CPT_Helen
Administrator
in
Cure Parkinson's
8 years ago
Nausea with my Sinement
I take carbidopa/levodopa 3x a day I was getting nausea about 25 minutes after taking it. But not all the time so my neurologist wants me to take Tigan it is $185.00 a month I told him I can't afford it he got mad, so he said take carbidopa 1 hrs before I take my carb/lev sometimes I get sick and sometimes
I take carbidopa/levodopa 3x a day I was getting nausea about 25 minutes after taking it. But not all the time so my neurologist wants me to take Tigan it is $185.00 a month I told him I can't afford it he got mad, so he said take carbidopa 1 hrs before I take my carb/lev sometimes I get sick and sometimes
sleddog
in
Cure Parkinson's
8 years ago
wellbutrin (bupropion) potential problems
downregulates BDNF possibly increasing risk of PD http://www.ncbi.nlm.nih.gov/pubmed/22507762
parkinsonism
induced by it (no abstract in last 3) http://www.ncbi.nlm.nih.gov/pubmed/1592841 (falling backwards) http://www.ncbi.nlm.nih.gov/pubmed/17133932 http://www.ncbi.nlm.nih.gov/pubmed/17534961 http
downregulates BDNF possibly increasing risk of PD http://www.ncbi.nlm.nih.gov/pubmed/22507762
parkinsonism
induced by it (no abstract in last 3) http://www.ncbi.nlm.nih.gov/pubmed/1592841 (falling backwards) http://www.ncbi.nlm.nih.gov/pubmed/17133932 http://www.ncbi.nlm.nih.gov/pubmed/17534961 http
zawy
in
Cure Parkinson's
8 years ago
Could the side effects of Neurofibromatosis type 2 [NF2] be mistaken for Parkinson's Disease?
Having NF2 with shaking hands, unsteady gait, small term memory loss, etc, be mistaken for the similar effects of Parkinson's Disease? Would they be related in some way?
Having NF2 with shaking hands, unsteady gait, small term memory loss, etc, be mistaken for the similar effects of Parkinson's Disease? Would they be related in some way?
Adlon57
in
Healthy Evidence
8 years ago
Am back for discussions
I have only just resumed on this site after an absence of nearly a year. I was dx'd 13 years ago and am now having to address a change in meds which is proving very difficult. Until I had brain surgery as part of a Clinical Trial (which did not work out for me) in October 2014, I was doing well with
I have only just resumed on this site after an absence of nearly a year. I was dx'd 13 years ago and am now having to address a change in meds which is proving very difficult. Until I had brain surgery as part of a Clinical Trial (which did not work out for me) in October 2014, I was doing well with
froggatt55
in
Cure Parkinson's
8 years ago
Medications for the Treatment of Parkinson's Disease
In this video, episode 5 of the series, we identify common medications used to treat Parkinson's disease and examine how they work, as well as their side effects. This unique series is designed to educate newly diagnosed patients and the general public about Parkinson's disease. Dr. Rajeev Kumar
In this video, episode 5 of the series, we identify common medications used to treat Parkinson's disease and examine how they work, as well as their side effects. This unique series is designed to educate newly diagnosed patients and the general public about Parkinson's disease. Dr. Rajeev Kumar
Hidden
in
Cure Parkinson's
8 years ago
Vascular Parkinsons
He said he is diagnosed with vascular
Parkinsonism
. It apparently affects the legs. Anyone here with more knowledge of this aspect of the PD problem?
He said he is diagnosed with vascular
Parkinsonism
. It apparently affects the legs. Anyone here with more knowledge of this aspect of the PD problem?
attyj
in
Cure Parkinson's
9 years ago
a-Syn misfolding blockers/repairers (updated)
This is an update of a previous post. The number of compounds that help in the test tube or mice is overwhelming. Unfortunately, there is not a standard test to determine which ones reach the human brain and work the best. It's not possible to take all of them. But the long list gives hope: there
This is an update of a previous post. The number of compounds that help in the test tube or mice is overwhelming. Unfortunately, there is not a standard test to determine which ones reach the human brain and work the best. It's not possible to take all of them. But the long list gives hope: there
zawy
in
Cure Parkinson's
9 years ago
Useful Supplements for Parkinson’s Disease
Useful Supplements for Parkinson’s Disease: Part 3 dose: 800 mg of magnesium citrate Magnesium is involved in a number of crucial bodily functions, from the creation of bone to the beating of the heart and the balance of sugar in the bloodstream, of special interest in Parkinson’s dementia. Magnesium
Useful Supplements for Parkinson’s Disease: Part 3 dose: 800 mg of magnesium citrate Magnesium is involved in a number of crucial bodily functions, from the creation of bone to the beating of the heart and the balance of sugar in the bloodstream, of special interest in Parkinson’s dementia. Magnesium
Hidden
in
Cure Parkinson's
9 years ago
Partners in Parkinson's event
Partners in Parkinson's events are a full day of sessions featuring clinicians, researchers, allied health care professionals and people living with Parkinson's. Whether you are newly diagnosed or have been living with Parkinson's for years, you'll learn about ways to optimize your care. RSVP today.
Partners in Parkinson's events are a full day of sessions featuring clinicians, researchers, allied health care professionals and people living with Parkinson's. Whether you are newly diagnosed or have been living with Parkinson's for years, you'll learn about ways to optimize your care. RSVP today.
Hidden
in
Cure Parkinson's
9 years ago
Kairos - "Gods special time or in the fullness of time." I am not a Parkinsons patient, my husband is and his Dad was.
I am here to learn as much as I can. My husband, David, was diagnosed in March of 2015 after I insisted he go. His neurologist has him on 3 medications but he is not very proactive about his condition. He does a few exercises in the morning, some he learned when attending his first round of PT w the
I am here to learn as much as I can. My husband, David, was diagnosed in March of 2015 after I insisted he go. His neurologist has him on 3 medications but he is not very proactive about his condition. He does a few exercises in the morning, some he learned when attending his first round of PT w the
Kairos
in
Cure Parkinson's
9 years ago
One step two step
One step two step Those of you who watch Star Trek will understand when I say Parkinson's Disease is like the Borg, it adapts to change so it continues to outwit you. In the early years you can stay a few steps ahead but there comes a time when it takes all your tenacity to stay afloat. My walking has
One step two step Those of you who watch Star Trek will understand when I say Parkinson's Disease is like the Borg, it adapts to change so it continues to outwit you. In the early years you can stay a few steps ahead but there comes a time when it takes all your tenacity to stay afloat. My walking has
Hidden
in
Cure Parkinson's
9 years ago
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