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Information is the key to helping yourself.
Some useful info on this site, in particular, take note of the info that caffeine seems neuroprotective, also the bit about Acetyl L Carnitine helping the myalin sheath around the nerve. https://www.intechopen.com/books/a-synopsis-of-parkinson-s-disease/melatonin-in-parkinson-s-disease
Some useful info on this site, in particular, take note of the info that caffeine seems neuroprotective, also the bit about Acetyl L Carnitine helping the myalin sheath around the nerve. https://www.intechopen.com/books/a-synopsis-of-parkinson-s-disease/melatonin-in-parkinson-s-disease
slippy
in
Cure Parkinson's
6 years ago
Share your thiamin hcl success with others
Thank you for reaching out to the Davis Phinney Foundation. We'd love to have you submit your story to possibly be featured in our monthly Moment of Victory https://www.davisphinneyfoundation.org/get-involved/moments-of-victory/. This is the platform in which our community can share their successes and
Thank you for reaching out to the Davis Phinney Foundation. We'd love to have you submit your story to possibly be featured in our monthly Moment of Victory https://www.davisphinneyfoundation.org/get-involved/moments-of-victory/. This is the platform in which our community can share their successes and
Hidden
in
Cure Parkinson's
6 years ago
Confused and floundering!
Parkinsons or Peroxetine induced
parkinsonism
. I saw a consultant last October who wants to see me again this October. A year? I don't really know who I should be contacting when I need help. The G.P isn't switched on . Contacting a specialist nurse is hit and miss. I feel a little isolated.
Parkinsons or Peroxetine induced
parkinsonism
. I saw a consultant last October who wants to see me again this October. A year? I don't really know who I should be contacting when I need help. The G.P isn't switched on . Contacting a specialist nurse is hit and miss. I feel a little isolated.
Honeybunnie
in
Cure Parkinson's
6 years ago
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Roy's Pull Test Result
Pull Test Roys Pull Test 08/14/2018 First result is typical when one has Parkinson's. Second pull after foot is positioned for better recovery and balance. I was first diagnosed with Parkinson's in the year 2012. I credit my good condition to Doc. Costantini's high dose thiamine hcl advice. (continue
Pull Test Roys Pull Test 08/14/2018 First result is typical when one has Parkinson's. Second pull after foot is positioned for better recovery and balance. I was first diagnosed with Parkinson's in the year 2012. I credit my good condition to Doc. Costantini's high dose thiamine hcl advice. (continue
Hidden
in
Cure Parkinson's
6 years ago
Anyone taking 5- HTP?
Is anyone taking 5-htp for mild depression and severe anxiety? How long did it takw to work? Im taking the 50mg one from holland and barrett the one with magnesium in it. Please if u leave a comment please can u only talk about 5-htp and its benefits nothing else e.g (vitamins, thyroid levels) as i already
Is anyone taking 5-htp for mild depression and severe anxiety? How long did it takw to work? Im taking the 50mg one from holland and barrett the one with magnesium in it. Please if u leave a comment please can u only talk about 5-htp and its benefits nothing else e.g (vitamins, thyroid levels) as i already
ThyroidObsessed
in
Thyroid UK
6 years ago
Best Magnesium?
Ok...tapping the hive mind! Would be grateful for people's thoughts and recommendations regarding magnesium supplements. Doseage (minimum and maximum). Brands. Type of magnesium (this is blowing my mind in particular. The different types of magnesium like citrate, l-threonate, glycinate, ionic!). Things
Ok...tapping the hive mind! Would be grateful for people's thoughts and recommendations regarding magnesium supplements. Doseage (minimum and maximum). Brands. Type of magnesium (this is blowing my mind in particular. The different types of magnesium like citrate, l-threonate, glycinate, ionic!). Things
Portia1974
in
Thyroid UK
6 years ago
Redicalm
Hi...anyone come across Redicalm supplement for anxiety. It contains Ashwagandha, Passion Flower, L-Theanine, Lemom Balm and 5 HTP. Anyone know if this is okay to take with Thyroid meds? I seem to remember reading that Asgwaganda was not a good idea. Thanks xx
Hi...anyone come across Redicalm supplement for anxiety. It contains Ashwagandha, Passion Flower, L-Theanine, Lemom Balm and 5 HTP. Anyone know if this is okay to take with Thyroid meds? I seem to remember reading that Asgwaganda was not a good idea. Thanks xx
sophiethecat2003
in
Thyroid UK
6 years ago
Feeling Guilty: PSP at a distance.
Hello Everyone, It's taken me a long time to come to writing this post. I'm still not sure how to feel and it changes from day to day, moment to moment. My mother is dying from PSP and I feel helpless. She is on the other side of the country in a nursing home and I am just settling into being a
Hello Everyone, It's taken me a long time to come to writing this post. I'm still not sure how to feel and it changes from day to day, moment to moment. My mother is dying from PSP and I feel helpless. She is on the other side of the country in a nursing home and I am just settling into being a
Callunas
in
PSP Association
6 years ago
Introducing myself -Terri & Anthony USA (fairfax va)
His is a generous mix of Ataxia,
Parkinsonism
, NOH and headed toward PAF. My days are about staying in front of this anmuch as I can. He wants to stay home, so I have taken a long term sebatical from working in commercial accounting to stay with him. Please feel free to message me if you’d like.
His is a generous mix of Ataxia,
Parkinsonism
, NOH and headed toward PAF. My days are about staying in front of this anmuch as I can. He wants to stay home, so I have taken a long term sebatical from working in commercial accounting to stay with him. Please feel free to message me if you’d like.
Tbird0112
in
Multiple System Atrophy Trust
6 years ago
Off perios - review 2018
Parkinsonism
Relat Disord. 2018. https://www.ncbi.nlm.nih.gov/m/pubmed/29456046/ Abstract. The terms "on" and "off" were used by Marsden and his contemporaries over 40 years ago to describe times when Parkinson's disease patients experienced good motor function ("on") and immobility ("off").
Parkinsonism
Relat Disord. 2018. https://www.ncbi.nlm.nih.gov/m/pubmed/29456046/ Abstract. The terms "on" and "off" were used by Marsden and his contemporaries over 40 years ago to describe times when Parkinson's disease patients experienced good motor function ("on") and immobility ("off").
aspergerian
in
Cure Parkinson's
6 years ago
Magnesium and Vit C
Afternoon everyone, I am just about to order some Magnesium and wondered which is the best Gluten/soya free version. Citrate Chelate the list goes on........ which one do I choose, I understand some may caused tummy problems. Thanks
Afternoon everyone, I am just about to order some Magnesium and wondered which is the best Gluten/soya free version. Citrate Chelate the list goes on........ which one do I choose, I understand some may caused tummy problems. Thanks
barb62
in
Thyroid UK
6 years ago
Cardiovascular autonomic dysfunction in PD
I am to have a heart/autonomic ultrasound next week. Cardiovascular autonomic dysfunction in Parkinson's disease. Review article. Ziemssen T, et al. J Neurol Sci. 2010. https://www.ncbi.nlm.nih.gov/m/pubmed/19740484/ Cardiovascular autonomic neuropathy Niamh McCarty and Barry Silverman, MD
I am to have a heart/autonomic ultrasound next week. Cardiovascular autonomic dysfunction in Parkinson's disease. Review article. Ziemssen T, et al. J Neurol Sci. 2010. https://www.ncbi.nlm.nih.gov/m/pubmed/19740484/ Cardiovascular autonomic neuropathy Niamh McCarty and Barry Silverman, MD
aspergerian13
in
Cure Parkinson's
6 years ago
Gamble
For only 29$ you can start thiamin hcl high dose treatment. Such a waste of the time you could be living in better shape. Even if you do not believe all the testimonies herein, take the "gamble". What you have to loose is nothing compared to the surety awaiting you with Parkinson's. It baffles me, saddens
For only 29$ you can start thiamin hcl high dose treatment. Such a waste of the time you could be living in better shape. Even if you do not believe all the testimonies herein, take the "gamble". What you have to loose is nothing compared to the surety awaiting you with Parkinson's. It baffles me, saddens
Hidden
in
Cure Parkinson's
6 years ago
Oral Voltaren for pain and rigidity?
Any feedback on use of oral Voltaire’s to deal with pain and rigidity?
Any feedback on use of oral Voltaire’s to deal with pain and rigidity?
Wolfepower22
in
Cure Parkinson's
6 years ago
Supplements along with Carbidopa
Is it safe to take Macuna pruriens while taking 25/100 of Carbidopa or any other supplements like Magnesium or thyamine? I began taking my Carbidopa 3 doses per day spread out every 5 hours. First one at 7 am, second one at 12 pm and the third at 5 pm. Is it safe to not take three capsules a day and
Is it safe to take Macuna pruriens while taking 25/100 of Carbidopa or any other supplements like Magnesium or thyamine? I began taking my Carbidopa 3 doses per day spread out every 5 hours. First one at 7 am, second one at 12 pm and the third at 5 pm. Is it safe to not take three capsules a day and
procaffeinator
in
Cure Parkinson's
6 years ago
Wretched disease
Hi folks This weather is really playing havoc with my cbd/
Parkinsonism
. Saw the consultant on Tuesday as things have been getting worse quite quickly.
Hi folks This weather is really playing havoc with my cbd/
Parkinsonism
. Saw the consultant on Tuesday as things have been getting worse quite quickly.
Aprilfool20
in
PSP Association
6 years ago
Dr Costantini’s Thiamine treatment
Can it be used instead of Hinz amino acids to treat Parkinson’s symptoms?
Can it be used instead of Hinz amino acids to treat Parkinson’s symptoms?
jaybird53
in
Cure Parkinson's
6 years ago
More from Prof Gregor Wenning et al...
This time on what distinguishes atypical
Parkinsonism
(eg MSA) from Parkinson’s Disease. https://www.prd-journal.com/#/article/S1353-8020(18)30274-8/fulltext
This time on what distinguishes atypical
Parkinsonism
(eg MSA) from Parkinson’s Disease. https://www.prd-journal.com/#/article/S1353-8020(18)30274-8/fulltext
Janeyl
in
Multiple System Atrophy Trust
6 years ago
Drug induced Parkinsonism
Anyone have experience with drug induced
Parkinsonism
? I’ve been on high doses of Zoloft for years but my doctor says it can’t be the cause because my symptoms are asymmetric. I have found several studies that found the rate of asymmetry in DIP is around 20%. Any suggestions appreciated.
Anyone have experience with drug induced
Parkinsonism
? I’ve been on high doses of Zoloft for years but my doctor says it can’t be the cause because my symptoms are asymmetric. I have found several studies that found the rate of asymmetry in DIP is around 20%. Any suggestions appreciated.
Bif1986
in
Cure Parkinson's
6 years ago
Nightmares, Night terrors torture me.🤤😓
I am on PD meds for about 6 years now. I have academy award winning nightmares from hell, starring, yours trtuely, along with night terrors galore. My wife has to shake me awake to stop my yelling, talking, cursing out loud..etc. I have tried many things to remedy this pproblem. I just dread sleeping
I am on PD meds for about 6 years now. I have academy award winning nightmares from hell, starring, yours trtuely, along with night terrors galore. My wife has to shake me awake to stop my yelling, talking, cursing out loud..etc. I have tried many things to remedy this pproblem. I just dread sleeping
ihateparkinsons
in
Cure Parkinson's
6 years ago
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