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Rheumy Nurse?
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
Colaba
in
NRAS
5 months ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
5 months ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
5 months ago
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What were your first symptoms?
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
WitchingHour2point0
in
NRAS
5 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
5 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
5 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
5 months ago
FOOD ENZYMES
This is not a therapy for Prostate cancer specifically but helpful for people that may have: acid indigestion, heartburn, acid reflux, calcium deficiency, cystic fibrosis, fatigue, hypoglycemia, gas, bad breath, colitis, poor digestion and other digestion system weakness. If this is a silly and not
This is not a therapy for Prostate cancer specifically but helpful for people that may have: acid indigestion, heartburn, acid reflux, calcium deficiency, cystic fibrosis, fatigue, hypoglycemia, gas, bad breath, colitis, poor digestion and other digestion system weakness. If this is a silly and not
Lrv44221
in
Advanced Prostate Cancer
1 year ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
5 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
5 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
5 months ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
5 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
5 months ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
5 months ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
5 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
5 months ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
Getting tested after taking any supplements...
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
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