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Ten Months After All Treatments Ended
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
TottenhamMan
in
Advanced Prostate Cancer
11 months ago
RLS and HRT
I’ve always suffered mild rls in the evenings but some leg lifts and going to sleep stopped it , last few months it’s severe , I was up every half hour all last night walking the floors with restless legs , arms and stomach , my mind going haywire 🥴I think it could be linked to HRT and menopause but
I’ve always suffered mild rls in the evenings but some leg lifts and going to sleep stopped it , last few months it’s severe , I was up every half hour all last night walking the floors with restless legs , arms and stomach , my mind going haywire 🥴I think it could be linked to HRT and menopause but
Ronniebongo
in
Restless Legs Syndrome
11 months ago
Extreme sweats will they diminish; Zitiga is it worth it
I am 74 years of age and was initially diagnosed with prostate cancer Gleason 5+4 2011. I did not want and have had no surgery, no radiation and no treatment until starting ADT July, 2023. March of this year, I was hospitalized for what turned out to be kidney failure do to urine backing up into
I am 74 years of age and was initially diagnosed with prostate cancer Gleason 5+4 2011. I did not want and have had no surgery, no radiation and no treatment until starting ADT July, 2023. March of this year, I was hospitalized for what turned out to be kidney failure do to urine backing up into
Falcon10
in
Advanced Prostate Cancer
11 months ago
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Coincidentally ...
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
pca2004
in
Fight Prostate Cancer
11 months ago
... what, then, do we die of?
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
pca2004
in
Fight Prostate Cancer
11 months ago
how fit can one be on ADT and abiraterone?
I have been on Lupron and abiraterone for less than two months and I have gone from doing 50 consecutive push ips to 10. I am slim on KETO diet but am disenchanted with the lack of ability to maintain any muscle. How much strength can be maintained on these meds?
I have been on Lupron and abiraterone for less than two months and I have gone from doing 50 consecutive push ips to 10. I am slim on KETO diet but am disenchanted with the lack of ability to maintain any muscle. How much strength can be maintained on these meds?
Nowhereman9
in
Advanced Prostate Cancer
11 months ago
Specialty to start with?
Originally joined group because 55 yr son diagnosed with stage 4 PCa. Been tracking my own PSA for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy. I had an
Originally joined group because 55 yr son diagnosed with stage 4 PCa. Been tracking my own PSA for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy. I had an
Billyeff
in
Advanced Prostate Cancer
1 year ago
I'm so frustrated with my GP!
As per the title really! I'm incredibly frustrated, and frankly angry, with the standard of care - or rather the lack thereof - that I've received from my local surgery. I initially went to the doctor 18 months or so ago complaining of feeling constantly exhausted, gaining weight, and struggling to
As per the title really! I'm incredibly frustrated, and frankly angry, with the standard of care - or rather the lack thereof - that I've received from my local surgery. I initially went to the doctor 18 months or so ago complaining of feeling constantly exhausted, gaining weight, and struggling to
Hux71
in
Thyroid UK
11 months ago
Started MRI Guided SBRT at MSK
After 2.5 years on active surveillance with Dr. Ehdaie at Memorial Sloan Kettering, my cancer progressed to GL 4+3 (Unfavorable Intermediate Risk) and I needed definitive treatment. I opted for MRI guided SBRT with Dr. Sean McBride after getting a second opinion from Dr. Kishan at UCLA. I started
After 2.5 years on active surveillance with Dr. Ehdaie at Memorial Sloan Kettering, my cancer progressed to GL 4+3 (Unfavorable Intermediate Risk) and I needed definitive treatment. I opted for MRI guided SBRT with Dr. Sean McBride after getting a second opinion from Dr. Kishan at UCLA. I started
rosenjpj
in
Prostate Cancer Network
11 months ago
grade and normal embryos link? help!?
Hi I am 27, no fertility issue (that i know of) non smoker, non drinking, took vitamins for 6 months prior to egg collection. Donor sperm used. I got 3 - 5day blastocysts from short protocol (8 eggs retrieved 6 fertilised) but all grade 3bb/3bc/3bc. 1st transfer failed - other 2 frozen. Someone
Hi I am 27, no fertility issue (that i know of) non smoker, non drinking, took vitamins for 6 months prior to egg collection. Donor sperm used. I got 3 - 5day blastocysts from short protocol (8 eggs retrieved 6 fertilised) but all grade 3bb/3bc/3bc. 1st transfer failed - other 2 frozen. Someone
Tryingforbabynow
in
Fertility Network UK
1 year ago
Introducing Myself
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Simswim
in
Care Community
1 year ago
Into the 4th year, updates and next step
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
Juliane314
in
Advanced Prostate Cancer
11 months ago
Need help in understanding PSA level recurrence after treatment.
In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During that treatment, my PSA fell to < 0.01 and remained there until the end of the treatment. I had a blood test taken last Friday and it shows that
In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During that treatment, my PSA fell to < 0.01 and remained there until the end of the treatment. I had a blood test taken last Friday and it shows that
Mascouche
in
Advanced Prostate Cancer
11 months ago
Erleada side effects
Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that. Want to hear real
Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that. Want to hear real
wilcoxsaw
in
Advanced Prostate Cancer
11 months ago
NHS agrees to roll out Olaparib (Lynparza) April 2023.
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
Sailing-Todd
in
Advanced Prostate Cancer
1 year ago
QOL … how about a fun lighthearted uplifting post about “ manziers “ …
manziers …. Love ‘em ….hate them. Don’t use one , never thought about it ? Most of men here have big man boobs, some of us giant boobs … some have had them reduced / controlled with shots or radiation. If you are a male member of this group, you probably have had this issue on your mind more than
manziers …. Love ‘em ….hate them. Don’t use one , never thought about it ? Most of men here have big man boobs, some of us giant boobs … some have had them reduced / controlled with shots or radiation. If you are a male member of this group, you probably have had this issue on your mind more than
Kaliber
in
Advanced Prostate Cancer
11 months ago
Intermittent ADT
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
John347
in
Advanced Prostate Cancer
11 months ago
hysterectomy?
hello ladies Can I ask those have had a hysterectomy have any of you regretted the decision to have one? I am due to have on next month due to fibroids and heavy bleeding, but my symptoms have drastically improved in the last 9-12 months as I had a Merina coil fitted whilst I have been waiting for
hello ladies Can I ask those have had a hysterectomy have any of you regretted the decision to have one? I am due to have on next month due to fibroids and heavy bleeding, but my symptoms have drastically improved in the last 9-12 months as I had a Merina coil fitted whilst I have been waiting for
Toddyboy12
in
Menopause and Perimenopause Support
11 months ago
Is creatine safe?
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Coggeshall
in
Prostate Cancer Network
11 months ago
Living life after a prostatectomy
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
Studio1954
in
Prostate Cancer And Gay Men
11 months ago
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