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Quick update on my journey
My bio has most of the brief history of my recent diagnosis. I’m on month 3 of Xtandi plus Orgovyx and just met with Rad Onc at Duke for initial consultation. Plan is low dose IMRT over 20 days (every day for 5 days in a row each week). Expect to remain on existing doublet Tx for at least the next
My bio has most of the brief history of my recent diagnosis. I’m on month 3 of Xtandi plus Orgovyx and just met with Rad Onc at Duke for initial consultation. Plan is low dose IMRT over 20 days (every day for 5 days in a row each week). Expect to remain on existing doublet Tx for at least the next
Clippedwingz
in
Prostate Cancer Under 60
14 days ago
PSMA scan
I spoke with RO and we are going to radiate the autocaval lymph node lit up per the above scan. My PSA was .027. I hope this knocks it out. I am also contemplating ADT but unsure which would work first or second generation.
I spoke with RO and we are going to radiate the autocaval lymph node lit up per the above scan. My PSA was .027. I hope this knocks it out. I am also contemplating ADT but unsure which would work first or second generation.
Howard53545
in
Advanced Prostate Cancer
4 months ago
anyone else struggling with high levels on medication?
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
Carinagravesdisease
in
Thyroid UK
4 months ago
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Waiting for the Other Shoe to Drop
61 with oligometastatic prostate cancer. PSA is currently down to 0.02 today after 6 months of Lupron and Erleada from PSA 150 in late Dec. '23. Started on Megestrol Acetate back in April, really reduced the side effects of ADT for me. My figure also looks about the as before treatment. I had a trans-rectal
61 with oligometastatic prostate cancer. PSA is currently down to 0.02 today after 6 months of Lupron and Erleada from PSA 150 in late Dec. '23. Started on Megestrol Acetate back in April, really reduced the side effects of ADT for me. My figure also looks about the as before treatment. I had a trans-rectal
TheLarch
in
Advanced Prostate Cancer
17 days ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
4 months ago
Light Therapy Celeste
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Pegcity
in
Cure Parkinson's
9 months ago
rising PSA and 'light' advancement of mets in hip bones. Diagnosed stage 4 in March 2021.
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Newdiag-NC
in
Advanced Prostate Cancer
4 months ago
estradiol cream
I know this was discussed 8 years ago but has it changed for the better regarding reducing the ADT SE? I am on ADT for 2 + years and going on Xtandti this month. I want to control the SE as best I can. Great diet and heavy exercise every day. Also stopped the Vit Cal & D.
I know this was discussed 8 years ago but has it changed for the better regarding reducing the ADT SE? I am on ADT for 2 + years and going on Xtandti this month. I want to control the SE as best I can. Great diet and heavy exercise every day. Also stopped the Vit Cal & D.
Stevegr
in
Advanced Prostate Cancer
4 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
7 months ago
Should I increase T4 or T3?
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
elkewilliams
in
Thyroid UK
4 months ago
What to expect with mets and no treatment
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
Nwdx
in
Advanced Prostate Cancer
4 months ago
Eliminating ADT.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Stevegr
in
Advanced Prostate Cancer
4 months ago
Treatment Recommendation for father with advanced PCA to regional lymph nodes
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
MissMel2024
in
Advanced Prostate Cancer
4 months ago
ADT and Increased Blood Sugar
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
805guy
in
Prostate Cancer And Gay Men
24 days ago
Advice Please
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
CecilyParsley
in
Pelvic Pain Support Network
4 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
4 months ago
Stopping Zoladex & HRT
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
x_b_x
in
Endometriosis UK
4 months ago
Watching and waiting
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
Pastaking
in
Advanced Prostate Cancer
4 months ago
Starting Chemo in May via trial
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
4tunate1
in
Advanced Prostate Cancer
4 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
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