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A successful scan!!
I had an 8 week scan this morning and had convinced myself it would be bad news after an mmc back in April. But my little wigglebum was there, strong heartbeat and growing nicely ❤️ such a relief after weeks of anxiety! I know it's still early days but it was measuring perfectly and just looked so strong
I had an 8 week scan this morning and had convinced myself it would be bad news after an mmc back in April. But my little wigglebum was there, strong heartbeat and growing nicely ❤️ such a relief after weeks of anxiety! I know it's still early days but it was measuring perfectly and just looked so strong
Tiggle
in
Pregnancy and Parenting Support
4 years ago
Endoscopy results
I was diagnosed with PA about 5 years ago. Have had pre cancerous polyp removed and SI weekly but I have real tummy troubles with a fair amount of pain and lots of bloating. The results of my endoscopy were as follows: gastric mucosa of the antrum and body, where lesions of chronic gastritis are observed
I was diagnosed with PA about 5 years ago. Have had pre cancerous polyp removed and SI weekly but I have real tummy troubles with a fair amount of pain and lots of bloating. The results of my endoscopy were as follows: gastric mucosa of the antrum and body, where lesions of chronic gastritis are observed
lifegems
in
Pernicious Anaemia Society
4 years ago
Botox for Urinary issues post RP
I am nearly 16 months post RP, April 1st 2019. Started salvage radiation January 2020, 38 treatments with a six month run of ADT. I still have urgency and occasional leakage. I wear one thin pad a day usually and a depends at night. I have stopped even bothering with Kegels as I really haven't noticed
I am nearly 16 months post RP, April 1st 2019. Started salvage radiation January 2020, 38 treatments with a six month run of ADT. I still have urgency and occasional leakage. I wear one thin pad a day usually and a depends at night. I have stopped even bothering with Kegels as I really haven't noticed
SooHwa99
in
Advanced Prostate Cancer
4 years ago
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More surgery for an ovary that isn’t there
Over a year and a half since my hysterectomy and I’ve just been given a consent form for an oopherctomy with tube removal or cystectomy. Only I’m not supposed to have any ovaries or tubes :( there’s a cyst growing from somewhere and ever though I’ve had all the scans they still can’t tell where. Really
Over a year and a half since my hysterectomy and I’ve just been given a consent form for an oopherctomy with tube removal or cystectomy. Only I’m not supposed to have any ovaries or tubes :( there’s a cyst growing from somewhere and ever though I’ve had all the scans they still can’t tell where. Really
KimPV
in
Endometriosis UK
4 years ago
Denial of Axumin PET CT order
My insurance company (Premera) today denied my doctors request for the PET scan. Even a peer to peer didn’t help. I’d think after two surgeries and a rising PSA there’d be no doubt of the need but they apparently disagree. Anyone know any tricks to get them to reverse their decision? Thanks!
My insurance company (Premera) today denied my doctors request for the PET scan. Even a peer to peer didn’t help. I’d think after two surgeries and a rising PSA there’d be no doubt of the need but they apparently disagree. Anyone know any tricks to get them to reverse their decision? Thanks!
bean1008
in
Advanced Prostate Cancer
4 years ago
Having SABR radiotherapy to 61mm met on my hip
My Onco told me that my last PSMA scan (August 3rd) showed good reduction in seminal vesical site but an increase in the RH pelvic met. I went for planning session today and wanted to ask what the change in size from the scan last November was for example, had it increased from 3mm to 6mm?The Specialist
My Onco told me that my last PSMA scan (August 3rd) showed good reduction in seminal vesical site but an increase in the RH pelvic met. I went for planning session today and wanted to ask what the change in size from the scan last November was for example, had it increased from 3mm to 6mm?The Specialist
konichiwa12
in
Advanced Prostate Cancer
4 years ago
I have a scan tomorrow my belly button hurts!
Long story short my Pain is back after 3 years and 2 laps one round of zolodex and a baby.. I’m back in pain.. anyway I paid privately to see myL Consultant so it would be faster. 1 day later I’m having a scan with the lady he works with who’s an expert at seeing Endometriosis on internal scans he just
Long story short my Pain is back after 3 years and 2 laps one round of zolodex and a baby.. I’m back in pain.. anyway I paid privately to see myL Consultant so it would be faster. 1 day later I’m having a scan with the lady he works with who’s an expert at seeing Endometriosis on internal scans he just
Kate345
in
Endometriosis UK
4 years ago
Update on ARV-110 for anyone looking for a trial with a new drug approach - first in class - fast tracked May 2019
"Arvinas is currently evaluating ARV-110 in a Phase 1 study for men with castration-resistant metastatic prostate cancer (mCRPC) who have progressed on standards of care." arvinas.com/pipeline-progra... "In a patient-derived xenograft (PDX) model derived from a patient not treated with, but insensitive
"Arvinas is currently evaluating ARV-110 in a Phase 1 study for men with castration-resistant metastatic prostate cancer (mCRPC) who have progressed on standards of care." arvinas.com/pipeline-progra... "In a patient-derived xenograft (PDX) model derived from a patient not treated with, but insensitive
George71
in
Advanced Prostate Cancer
4 years ago
Urinary tract infections?
Is anyone else having lots of urinary tract infections? I have to control constipation or I get severe bladder infection that cause septic cells in the urethra. Taking miralax helps, but I still have frequent urinary infections. Any ideas?
Is anyone else having lots of urinary tract infections? I have to control constipation or I get severe bladder infection that cause septic cells in the urethra. Taking miralax helps, but I still have frequent urinary infections. Any ideas?
Sschlichting
in
Cure Parkinson's
4 years ago
Nebuliser query
Hi there, I’ve just started using a nebuliser for my amikacin antibiotic. While using it I noticed it was going on a bit long. Once I checked I noticed the chamber had some foam build up, clearly I hadn’t rinsed it well enough. That has mixed with the antibiotic. Should I potentially worry about this
Hi there, I’ve just started using a nebuliser for my amikacin antibiotic. While using it I noticed it was going on a bit long. Once I checked I noticed the chamber had some foam build up, clearly I hadn’t rinsed it well enough. That has mixed with the antibiotic. Should I potentially worry about this
Fillyfat
in
Lung Conditions Community Forum
4 years ago
Supplement - Ganocellium
Hi, does anyone hear about Ganocelium, this is the product prescription, "it is a pulverized mycelium of ganoderma lucidium (450 mg capsules). As a dietary supplement, Ganocelium supports the body with antioxidant effects. It contains Triterpenes, which increases oxygen consumption, tones up the liver
Hi, does anyone hear about Ganocelium, this is the product prescription, "it is a pulverized mycelium of ganoderma lucidium (450 mg capsules). As a dietary supplement, Ganocelium supports the body with antioxidant effects. It contains Triterpenes, which increases oxygen consumption, tones up the liver
dasyluo
in
Advanced Prostate Cancer
4 years ago
Trends in Diagnosis and Disparities in Initial Management of High-Risk Prostate Cancer in the US
New study below [1] & [2]. "The proportional rates of high-risk prostate cancer increased from 11.8% to 20.4%" "Prostatectomy rates increased from 22.8% in 2004 to 40.5% in 2016, nearly equaling radiotherapy rates by 2016. Randomized data comparing modalities do not and likely will not exist in the foreseeable
New study below [1] & [2]. "The proportional rates of high-risk prostate cancer increased from 11.8% to 20.4%" "Prostatectomy rates increased from 22.8% in 2004 to 40.5% in 2016, nearly equaling radiotherapy rates by 2016. Randomized data comparing modalities do not and likely will not exist in the foreseeable
pjoshea13
in
Advanced Prostate Cancer
4 years ago
49 years old Gleason 7 leaning towards Tulsa what do you think?
I’m 49 years old, I had a 3 tmri and biopsy at Busch Center, he said it was contained. I sent for second opinion at John Hopkins Gleason 7 3+4, 18 mm tumor running 10 mm along wall no bulging. 6 mm tumor 4+3 perineural invasion. 7 mm tumor 3+4 perineural invasion . Pattern 4 Cribriform morphology. I
I’m 49 years old, I had a 3 tmri and biopsy at Busch Center, he said it was contained. I sent for second opinion at John Hopkins Gleason 7 3+4, 18 mm tumor running 10 mm along wall no bulging. 6 mm tumor 4+3 perineural invasion. 7 mm tumor 3+4 perineural invasion . Pattern 4 Cribriform morphology. I
Paver1
in
Advanced Prostate Cancer
4 years ago
First phone visit with academic hospital on my biochemical recurrence post robotic radical prostatectomy (University of Wisconsin - Madison)
Met with Dr. David Jarrard from UW Madison today over the phone. He is recommending the Axumin scan and I will most likely proceed with that as my next step. UW Madison has a similar perspective to my local urologist (Dr. Robert Vlach at the Wisconsin Institute of Urology) of having the scan, and then
Met with Dr. David Jarrard from UW Madison today over the phone. He is recommending the Axumin scan and I will most likely proceed with that as my next step. UW Madison has a similar perspective to my local urologist (Dr. Robert Vlach at the Wisconsin Institute of Urology) of having the scan, and then
searchingtom
in
Advanced Prostate Cancer
4 years ago
What To Expect After RP?
Well, after nearly a year of contemplating prostate surgery and taking supplements for many months, I had my prostate removed two weeks ago. I was Gleason 4+3. Glad to learn there was no spread and the surgeon attempted to do nerve-sparing. Previously, I was glad to have gotten good advice and information
Well, after nearly a year of contemplating prostate surgery and taking supplements for many months, I had my prostate removed two weeks ago. I was Gleason 4+3. Glad to learn there was no spread and the surgeon attempted to do nerve-sparing. Previously, I was glad to have gotten good advice and information
CarrotBoy
in
Advanced Prostate Cancer
4 years ago
Urine retention
I told my urologist that I saw a little blood in my urine. It only happened once, but 5 weeks later and after 2 negative urinalysis tests, he insisted on scoping my bladder for tumors (none seen). While in there, he showed me scar tissue in my prostate from radiotherapy and cryotherapy. I never had surgery
I told my urologist that I saw a little blood in my urine. It only happened once, but 5 weeks later and after 2 negative urinalysis tests, he insisted on scoping my bladder for tumors (none seen). While in there, he showed me scar tissue in my prostate from radiotherapy and cryotherapy. I never had surgery
xpbdb
in
Advanced Prostate Cancer
4 years ago
Is somatostatin an anticancer drug?
My husband was operated in 1996, 2000 and 2003 for a thymoma, and had two times RT after the first and the second treatment. The control CT were ok until 2020, he had only very small encapsulated nodules. But then he's got a prostate cancer in 2018. In 2018, November, he was operated for a Gleason 9
My husband was operated in 1996, 2000 and 2003 for a thymoma, and had two times RT after the first and the second treatment. The control CT were ok until 2020, he had only very small encapsulated nodules. But then he's got a prostate cancer in 2018. In 2018, November, he was operated for a Gleason 9
Claud68
in
Advanced Prostate Cancer
4 years ago
Has anyone got Pemphigoid
Hi Has anyone on here been diagnosed with pemphigoid ( it’s a rare autoimmune condition of the skin ) there’s not loads of information out there I’ve also got PBC but this is so different, I had a biopsy of my skin which has confirmed this but now waiting for my appointment to start treatment Hoping
Hi Has anyone on here been diagnosed with pemphigoid ( it’s a rare autoimmune condition of the skin ) there’s not loads of information out there I’ve also got PBC but this is so different, I had a biopsy of my skin which has confirmed this but now waiting for my appointment to start treatment Hoping
Rozm2004
in
PBC Foundation
4 years ago
FDA Approves Foundation Medicine's FoundationOne®Liquid CDx, a Comprehensive Pan-Tumor Liquid Biopsy Test for Patients with Advanced Cancer
Good News for PCa patients with advanced disease and on Medicare/Medicaid. This expands the coverage to genetic testing for all solid tumors using blood samples alone.
From the Foundation Medicine Press Release:
[i]"From a clinical perspective, I believe physicians should discuss tumor
Good News for PCa patients with advanced disease and on Medicare/Medicaid. This expands the coverage to genetic testing for all solid tumors using blood samples alone.
From the Foundation Medicine Press Release:
[i]"From a clinical perspective, I believe physicians should discuss tumor
cujoe
in
Fight Prostate Cancer
4 years ago
Focused Ultrasound Therapy, FDA-approved for Essential Tremors
Focused ultrasound is a completely non-invasive method of thalamotomy - a procedure in which a predefined small volume of brain tissue containing nerve cells causing the tremor is destroyed - that could be an effective option for certain patients. It is performed while the patient is awake and involves
Focused ultrasound is a completely non-invasive method of thalamotomy - a procedure in which a predefined small volume of brain tissue containing nerve cells causing the tremor is destroyed - that could be an effective option for certain patients. It is performed while the patient is awake and involves
Pa-zzi69
in
Cure Parkinson's
4 years ago
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