how does anyone feel after a TAVI

[BuonaSalute0823]

Good morning.. albeit it doesn’t seem that way from where I am .. but nonetheless see the blessings of waking up ….I have had a TAVI performed on Thursday & am still in hospital feeling really sick & am struggling with pain management as I was refused paracetamol IV pain meds but told to take oral paracetamol which I can’t due to stomach upset & fear I would vomit at the moment so am feeling pretty rough 😖🥺😢 I’ve a spinal injury so can’t move easily & feel so stressed out. The doctors are taking the attitude of if it’s not heart related pain the it’s not their problem so I am so fed up & exhausted with trying to explain that I need the IV as that way they can see how much I’ve had rather than just trying to estimate & then being unable to take more if I then vomited . I’ve a catheter in place because I can’t shuffle up the bed nor can have a bed pan nor walk to the toilet . This is so stressing me out as I had a care plan in place but everything hasn’t gone to plan . I’ve multiple allergies so am restricted to what I can take for pain . The fact I had it was a huge deal as normally they do a TAVI under local anaesthetic but I am allergic to LA so my procedure was a complex 3 hours as I can t have morphine or other opiates plus am allergic to anti sickness meds after having Cyclizine & Domperidon. I feel so annoyed that my doctors on the ward who are the consultant or Professor I've got as my lead haven’t been to check up on how I’m doing & the plan is I discharge today so I’m extremely upset plus nervous on how I’m supposed to cope going home when I can hardly even get myself up in the bed ! I refused a echocardiogram as I wasn’t up to it yesterday nor did I want the catheter removed as it is serving its purpose while I lay in bed . It’s like they are putting their foot down with giving me IV ! I have two cannula in place & but they are still refusing their arguments is how do I cope at home with stomach up & pain .. my response is I stay still until the pain & nausea subsides ! But neither are alongside my two holes in my groin &.back sciatica pain it’s a living nightmare for which I hadn’t signed up for! I’ve still to wait up to a month for a possible rejection of this heart valve which has taken over 6 years to come to fruition. I am so disappointed that this has happened . I had only agreed to having a TAVI as it came with a plethora of health risks . I have tried several times to get them on board with my needing surgery to my back & I wouldn’t be having it unless deemed necessary. But being treated like a number not an individual is unacceptable . Fact you wouldn’t treat an animal & deny them pain meds having explained my stomach issues has gallon on deaf ears . My anger is on same scale as the 8 stents in situ . So upset

[Maydayuk]

I won't lie the pain initially is intense but I was given paracetamol in tablet form, I was given lanzaprazol and anti sickness tablets so I could take pain killers. They gave me tramadol the first few days. . I could not eat or drink for throwing up. I lost a stone. The nausea may last a few weeks whilst taking pain killers. You'll get through this.

[Maydayuk]

You've got to remember you can't be on iv paracetamol at home. So you've got to decide what's your normal meds you take at home when you are in pain. To some extent your pain management is between you and your gp when you are discharged. I could not move, lift myself up. I had open heart valve replacement. Like you I'm diabetic which felt like another hurdle. It's been a challenge. I hope you get sorted and get some relief from some form of pain meds. All the best.