how does anyone feel after a TAVI - British Heart Fou...

British Heart Foundation

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how does anyone feel after a TAVI

BuonaSalute0823 profile image
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Good morning.. albeit it doesn’t seem that way from where I am .. but nonetheless see the blessings of waking up ….I have had a TAVI performed on Thursday & am still in hospital feeling really sick & am struggling with pain management as I was refused paracetamol IV pain meds but told to take oral paracetamol which I can’t due to stomach upset & fear I would vomit at the moment so am feeling pretty rough 😖🥺😢 I’ve a spinal injury so can’t move easily & feel so stressed out. The doctors are taking the attitude of if it’s not heart related pain the it’s not their problem so I am so fed up & exhausted with trying to explain that I need the IV as that way they can see how much I’ve had rather than just trying to estimate & then being unable to take more if I then vomited . I’ve a catheter in place because I can’t shuffle up the bed nor can have a bed pan nor walk to the toilet . This is so stressing me out as I had a care plan in place but everything hasn’t gone to plan . I’ve multiple allergies so am restricted to what I can take for pain . The fact I had it was a huge deal as normally they do a TAVI under local anaesthetic but I am allergic to LA so my procedure was a complex 3 hours as I can t have morphine or other opiates plus am allergic to anti sickness meds after having Cyclizine & Domperidon. I feel so annoyed that my doctors on the ward who are the consultant or Professor I've got as my lead haven’t been to check up on how I’m doing & the plan is I discharge today so I’m extremely upset plus nervous on how I’m supposed to cope going home when I can hardly even get myself up in the bed ! I refused a echocardiogram as I wasn’t up to it yesterday nor did I want the catheter removed as it is serving its purpose while I lay in bed . It’s like they are putting their foot down with giving me IV ! I have two cannula in place & but they are still refusing their arguments is how do I cope at home with stomach up & pain .. my response is I stay still until the pain & nausea subsides ! But neither are alongside my two holes in my groin &.back sciatica pain it’s a living nightmare for which I hadn’t signed up for! I’ve still to wait up to a month for a possible rejection of this heart valve which has taken over 6 years to come to fruition. I am so disappointed that this has happened . I had only agreed to having a TAVI as it came with a plethora of health risks . I have tried several times to get them on board with my needing surgery to my back & I wouldn’t be having it unless deemed necessary. But being treated like a number not an individual is unacceptable . Fact you wouldn’t treat an animal & deny them pain meds having explained my stomach issues has gallon on deaf ears . My anger is on same scale as the 8 stents in situ . So upset

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