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Echinacea??
Hi, I'm currently on enbrel and methotrexate. I have had constant colds this year due to poor immunity, and wondered if it's worth taking echinacea to boost it. Anyone tried this or have any other ideas? All advice would be greatly received. Paula🤧🤧
Hi, I'm currently on enbrel and methotrexate. I have had constant colds this year due to poor immunity, and wondered if it's worth taking echinacea to boost it. Anyone tried this or have any other ideas? All advice would be greatly received. Paula🤧🤧
Taffsmum
in
NRAS
7 years ago
This MUCH fatigue on Cimzia?
My Dr decided I didn't need a starter dose, So I took only 1 injection of Cimzia, at the beginning. Since I had been on Ebrel weekly, Took 2nd dose a week later. (Oops) That First week I Slept 16-20 hours of the day! Once I had 2nd dose, things were better. i was able to do things I had dismissed as
My Dr decided I didn't need a starter dose, So I took only 1 injection of Cimzia, at the beginning. Since I had been on Ebrel weekly, Took 2nd dose a week later. (Oops) That First week I Slept 16-20 hours of the day! Once I had 2nd dose, things were better. i was able to do things I had dismissed as
Mtnwoman
in
NRAS
7 years ago
Enbrel, Benipali
Enbrel, Benipali. Hi everyone, put post up wee while ago about starting Enbrel well the biosimilar Benipali. Well have to start it next week, must say still scarey for me. Thing is going away next Thursday for 4 days and worry about how I might feel incase of any side effects etc due to the treatment
Enbrel, Benipali. Hi everyone, put post up wee while ago about starting Enbrel well the biosimilar Benipali. Well have to start it next week, must say still scarey for me. Thing is going away next Thursday for 4 days and worry about how I might feel incase of any side effects etc due to the treatment
Davy123
in
NRAS
7 years ago
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Joint pain
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
Heidi-B
in
Hughes Syndrome APS Forum
7 years ago
Chicken pox in school again but now using Cimzia- what to do?
Hi peeps- hope you're feeling the weekend? It looks like a sunny day here in the SE of England 😎 I have posted before about chicken pox (or pops as it's usually referred to in my workplace) but that was before Cimzia was added to my arsenal of meds. I was told by my nurse to be very aware of the virus
Hi peeps- hope you're feeling the weekend? It looks like a sunny day here in the SE of England 😎 I have posted before about chicken pox (or pops as it's usually referred to in my workplace) but that was before Cimzia was added to my arsenal of meds. I was told by my nurse to be very aware of the virus
Moomin8
in
NRAS
7 years ago
Enbrel fat belly
Since starting Enbrel 8 months ago I noticed a sudden weight gain and lots of fat on my stomach and to a lesser extent on the lower abdomen. At first it seemed to wax and wane as if it were fluid retention, but there is now a lot of fat. I'm shocked at this change. I often get even more of a bloated
Since starting Enbrel 8 months ago I noticed a sudden weight gain and lots of fat on my stomach and to a lesser extent on the lower abdomen. At first it seemed to wax and wane as if it were fluid retention, but there is now a lot of fat. I'm shocked at this change. I often get even more of a bloated
Megs4
in
NRAS
7 years ago
Etanercept
Hi everyone I'm just wondering who's on Enbrel and how long have you been on it? I've been taking it for 17 years and just thought if there's anyone out there that's been taking it for the same amount of time or longer?
Hi everyone I'm just wondering who's on Enbrel and how long have you been on it? I've been taking it for 17 years and just thought if there's anyone out there that's been taking it for the same amount of time or longer?
Em_tombs
in
NRAS
7 years ago
Wee bit of advice please
Hi and I hope everyone is feeling the best they can this evening. I'm looking for a little advice. Unfortunately , I needed to have 2 Teeth extracted on Friday 😓😓 and my mouth is still giving me Considerable pain and remains pretty swollen. I returned to the dentist today and he had advised that all
Hi and I hope everyone is feeling the best they can this evening. I'm looking for a little advice. Unfortunately , I needed to have 2 Teeth extracted on Friday 😓😓 and my mouth is still giving me Considerable pain and remains pretty swollen. I returned to the dentist today and he had advised that all
Eiram50
in
NRAS
7 years ago
White cell count and RA symptoms
Hi all, I've had RA for about 5yrs now,and I've been on subcutaneous MTX and Enbrel for 4 of them, so I should know by now, but I'm confused. My white cell count is low, (3.5 and neutrophils are 1.79) I'm feeling really fatigued, pain is up, but no inflammation at the moment and the glands in my neck
Hi all, I've had RA for about 5yrs now,and I've been on subcutaneous MTX and Enbrel for 4 of them, so I should know by now, but I'm confused. My white cell count is low, (3.5 and neutrophils are 1.79) I'm feeling really fatigued, pain is up, but no inflammation at the moment and the glands in my neck
PJsorefeet
in
NRAS
7 years ago
Benepali
How are others coping with this drug. I used to be on enbrel. Anyone else having problems with this new drug
How are others coping with this drug. I used to be on enbrel. Anyone else having problems with this new drug
Anndan
in
NRAS
7 years ago
All about Kay in France
Just realised I hadn't posted anything about myself! I was diagnosed in 2000 after a almost a year of misdiagnosis. I lived in Scotland when diagnosed and was put on sulphazaline which I supported for a few years. Moved to France (Picardie) in 2003 and have several major flares and drug changes since
Just realised I hadn't posted anything about myself! I was diagnosed in 2000 after a almost a year of misdiagnosis. I lived in Scotland when diagnosed and was put on sulphazaline which I supported for a few years. Moved to France (Picardie) in 2003 and have several major flares and drug changes since
KayEP
in
NRAS
7 years ago
Teeth and meds
Hi, I have Psoriatic Arthritis in all joints including jaw. I'm taking methotrexate and enbrel. My teeth are cracking. I had one out last week and another cracked today- so another trip to the dentist this week! My teeth have always been perfect. Has anyone experienced this? Could it be the disease or
Hi, I have Psoriatic Arthritis in all joints including jaw. I'm taking methotrexate and enbrel. My teeth are cracking. I had one out last week and another cracked today- so another trip to the dentist this week! My teeth have always been perfect. Has anyone experienced this? Could it be the disease or
LizzieR
in
NRAS
7 years ago
Compression gloves???
Good morning folks.....Hope the sunshine is helping you all. I am waiting to start on Enbrel but because of planned eye operation, my wait will be even longer. I've been on prednisolone prior to and during my Enbrel assessment but unless i take large doses (which my rheumatologist doesn't want) I'm
Good morning folks.....Hope the sunshine is helping you all. I am waiting to start on Enbrel but because of planned eye operation, my wait will be even longer. I've been on prednisolone prior to and during my Enbrel assessment but unless i take large doses (which my rheumatologist doesn't want) I'm
Californiadreamer
in
NRAS
7 years ago
Hello
Just a note to say hi really, my name is Paula, I'm 49 and was diagnosed with acute RA when I was 32. Failed on various DMARDS and was eventually put on enbrel in 2003 along with methotrexate. I'm currently in remission but still on the meds and have been taking BP and statin medication for some time
Just a note to say hi really, my name is Paula, I'm 49 and was diagnosed with acute RA when I was 32. Failed on various DMARDS and was eventually put on enbrel in 2003 along with methotrexate. I'm currently in remission but still on the meds and have been taking BP and statin medication for some time
Taffsmum
in
NRAS
7 years ago
White blood count
Hospital phoned to say my white blood count was 1.8 instead of 2 - not to worry will see what next month's say! I inject 15mg of methotrexate and Enbrel! Easy to say not to worry - I could just be more prone to infection - but I'm sure someone on here can tell me more!
Hospital phoned to say my white blood count was 1.8 instead of 2 - not to worry will see what next month's say! I inject 15mg of methotrexate and Enbrel! Easy to say not to worry - I could just be more prone to infection - but I'm sure someone on here can tell me more!
Grandimose
in
NRAS
7 years ago
Enbrel injections .... Injecting less frequent
Has anyone experimented with just taking Enbrel injections every two weeks instead of every week . it's helping me but I'm scared of side effects ? ....... Low dose less side effects ?
Has anyone experimented with just taking Enbrel injections every two weeks instead of every week . it's helping me but I'm scared of side effects ? ....... Low dose less side effects ?
AbbieJ55
in
NRAS
7 years ago
Benepali not working as well as Enbrel???
Hi everyone, I'm currently having an awful flare. I switched to Benepali 6 months ago from Enbrel. Since then, I've been getting worse. Terrible fatigue, lots of swollen joints, my knee has ballooned...but my blood tests aren't showing anything? I rang my Rheumatology nurse who wasn't very sympathetic
Hi everyone, I'm currently having an awful flare. I switched to Benepali 6 months ago from Enbrel. Since then, I've been getting worse. Terrible fatigue, lots of swollen joints, my knee has ballooned...but my blood tests aren't showing anything? I rang my Rheumatology nurse who wasn't very sympathetic
juliecooper74
in
NRAS
7 years ago
Ra and Benepali
Hi everyone, due to start Benepali a biosimilar of Enbrel for Ra. Long story short, crapping myself worrying about side effects etc due to what I've read about biologics. Anyone have any views on Enbrel or Benepali. Thanks
Hi everyone, due to start Benepali a biosimilar of Enbrel for Ra. Long story short, crapping myself worrying about side effects etc due to what I've read about biologics. Anyone have any views on Enbrel or Benepali. Thanks
Davy123
in
NRAS
7 years ago
Swings and roundabouts
That's how things feel for me at the minute! I developed a really bad cough that hurts my ribs and back and leaves me breathless, even when not coughing so I saw gp on Monday and was given a course of antibiotics and told to stop taking the methotrexate. After speaking to rhuemy, I was told to stop the
That's how things feel for me at the minute! I developed a really bad cough that hurts my ribs and back and leaves me breathless, even when not coughing so I saw gp on Monday and was given a course of antibiotics and told to stop taking the methotrexate. After speaking to rhuemy, I was told to stop the
Eiram50
in
NRAS
7 years ago
Employer insisting I work overtime
Hi all, Sorry for the long post... I have AS and am currently on Enbrel which has been a godsend painwise. I still suffer fatigue and the exhaustion is hard to manage. I am a Detective on a child abuse unit which is very demanding. For the most part I juggle my health issues well and sustain full
Hi all, Sorry for the long post... I have AS and am currently on Enbrel which has been a godsend painwise. I still suffer fatigue and the exhaustion is hard to manage. I am a Detective on a child abuse unit which is very demanding. For the most part I juggle my health issues well and sustain full
sappy
in
NRAS
7 years ago
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