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Ocrevus
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First full dose of Ocrevus went off without a hitch!
Just wanted to touch base and let everyone in the chat room know that my first full dose of
ocrevus
went off without a hitch. Had no problems whatsoever during the infusion or directly after. Now the next day was different.
Just wanted to touch base and let everyone in the chat room know that my first full dose of
ocrevus
went off without a hitch. Had no problems whatsoever during the infusion or directly after. Now the next day was different.
Fancy1959
CommunityAmbassador
in
My MSAA Community
6 years ago
Hair loss Ocrevus
Started in 2017. Having second 600mg dose in September. Always had to shave my legs and had abit of soft hair on my arms. Hair is gone. Take 5000iu of D3 and 5000iu of Biotin. Is the hair on my head next? Multiple Sclerosis. Have taken gylena, didn't stop lesions. Tysabri, JC positive after 5 treatments
Started in 2017. Having second 600mg dose in September. Always had to shave my legs and had abit of soft hair on my arms. Hair is gone. Take 5000iu of D3 and 5000iu of Biotin. Is the hair on my head next? Multiple Sclerosis. Have taken gylena, didn't stop lesions. Tysabri, JC positive after 5 treatments
cemiller101
in
My MSAA Community
6 years ago
Ocrevus
It's been six months since my two 1/2 infusions of
Ocrevus
and I'm going in tomorrow for the full dose. Is it worse than the half?
It's been six months since my two 1/2 infusions of
Ocrevus
and I'm going in tomorrow for the full dose. Is it worse than the half?
judymax
in
My MSAA Community
6 years ago
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Depression and Fatigue
Thankfully I have recovered from each relapse for the most part and have been on
OCrevus
since last summer. I’ve been having more depression lately and I think it’s causing my MS fatigue to worsen everyday. I get up at 7:00 am and am completely tired by 9:00 am. This is unusual for me.
Thankfully I have recovered from each relapse for the most part and have been on
OCrevus
since last summer. I’ve been having more depression lately and I think it’s causing my MS fatigue to worsen everyday. I get up at 7:00 am and am completely tired by 9:00 am. This is unusual for me.
nicoly3467
in
My MSAA Community
6 years ago
Another Ocrevus update
It’s now 6 weeks since my last full dose of
Ocrevus
. Im now getting sensations from my knee down thru my left foot. It feels like warm blood flowing thru lol. Maybe it’s the nerves waking up again! Whatever it is I’ll take it!
It’s now 6 weeks since my last full dose of
Ocrevus
. Im now getting sensations from my knee down thru my left foot. It feels like warm blood flowing thru lol. Maybe it’s the nerves waking up again! Whatever it is I’ll take it!
THalcomb
in
My MSAA Community
6 years ago
Infusion
Here I sit in the hospital having my
Ocrevus
my first full dose the only thing is I keep on falling to sleep. I know this is short but I keep on falling asleep. I'll let you know how I am l do latter. ssdw1958
Here I sit in the hospital having my
Ocrevus
my first full dose the only thing is I keep on falling to sleep. I know this is short but I keep on falling asleep. I'll let you know how I am l do latter. ssdw1958
ssdw1958
in
My MSAA Community
6 years ago
Privacy Concerns
I've been seeing the posts/push about volunteering for medical tests and now the
Ocrevus
poll. I just want to know that any information thru this website stays here and is not given to any drug manufacturers...well anybody. Thank you!
I've been seeing the posts/push about volunteering for medical tests and now the
Ocrevus
poll. I just want to know that any information thru this website stays here and is not given to any drug manufacturers...well anybody. Thank you!
SometimesCrazy
in
My MSAA Community
6 years ago
1st infusion great
So I went and received the first dose of
Ocrevus
. Was so easy and I luckily had no adverse reactions in the days to follow. The only thing I suggest is to make sure your doctor’s order calls for the IV Benadryl! Mine had me take the pills. Oh my gosh, I’ve never itched that intensely in my life!
So I went and received the first dose of
Ocrevus
. Was so easy and I luckily had no adverse reactions in the days to follow. The only thing I suggest is to make sure your doctor’s order calls for the IV Benadryl! Mine had me take the pills. Oh my gosh, I’ve never itched that intensely in my life!
Heyamy
in
My MSAA Community
6 years ago
Therapy Options.
Begin
ocrevus
in September of 2017. Am getting ready for my First full treatment or my third treatment overall. No noticeable side effects on
ocrevus
. Good luck with the post and I seriously hope it answers a lot of questions for new family members in the chat room.
Begin
ocrevus
in September of 2017. Am getting ready for my First full treatment or my third treatment overall. No noticeable side effects on
ocrevus
. Good luck with the post and I seriously hope it answers a lot of questions for new family members in the chat room.
Fancy1959
CommunityAmbassador
in
My MSAA Community
6 years ago
new medicine
i have recently been "upgraded" to secondary ms. has anyone tried the newish medicine
Ocrevus
?I am alittle nervous about an infusion that stays in your system for 6 months, gotta do something though
i have recently been "upgraded" to secondary ms. has anyone tried the newish medicine
Ocrevus
?I am alittle nervous about an infusion that stays in your system for 6 months, gotta do something though
pamgarner
in
My MSAA Community
6 years ago
LEMTRADA/OCREVUS
Has anyone done
Ocrevus
after having Lemtrada, I have been told that I cannot have any new med till after 5 years of Lemtrada, I do not have any active lesions. Lemtrada made my walking a lot worse then it was. Was thinking that maybe
Ocrevus
would help. I see my Nuro. on 4/17.
Has anyone done
Ocrevus
after having Lemtrada, I have been told that I cannot have any new med till after 5 years of Lemtrada, I do not have any active lesions. Lemtrada made my walking a lot worse then it was. Was thinking that maybe
Ocrevus
would help. I see my Nuro. on 4/17.
REDLIPS44
in
My MSAA Community
7 years ago
Med not in your system
why cant I add
Ocrevus
to my meds
why cant I add
Ocrevus
to my meds
Russso
in
My MSAA Community
7 years ago
Ocrevus
Help, need to know more about
Ocrevus
Scheduled in 2 weeks, but I am scared. Thanks
Help, need to know more about
Ocrevus
Scheduled in 2 weeks, but I am scared. Thanks
Shan58
in
My MSAA Community
7 years ago
Symptom update
It’s been about a month since I had my second
Ocrevus
infusion and I’m getting feeling back into my left foot! I felt so happy that I actually put on 2” heels and went out to dinner with the hubs. I haven’t been able to wear any type of shoe that isn’t flat because of fear of tripping.
It’s been about a month since I had my second
Ocrevus
infusion and I’m getting feeling back into my left foot! I felt so happy that I actually put on 2” heels and went out to dinner with the hubs. I haven’t been able to wear any type of shoe that isn’t flat because of fear of tripping.
THalcomb
in
My MSAA Community
7 years ago
Feet falling asleep
Could this be the
Ocrevus
??? I was just wondering if you know that tingling feeling you get when they fall asleep. ???
Could this be the
Ocrevus
??? I was just wondering if you know that tingling feeling you get when they fall asleep. ???
ssdw1958
in
My MSAA Community
7 years ago
Low lymphacytes on Ocrevus?
Anyone have their lymphocytes fall dramatically after they went on
ocrevus
? If so, what did your Dr's say about it? I'm feeling nervous after my last labs. My lymphacytes are too low naturally but after
ocrevus
they plummeted.
Anyone have their lymphocytes fall dramatically after they went on
ocrevus
? If so, what did your Dr's say about it? I'm feeling nervous after my last labs. My lymphacytes are too low naturally but after
ocrevus
they plummeted.
Kel5
in
My MSAA Community
7 years ago
Ocrevus experiences & opinions
I am supposed to start
Ocrevus
soon and would love to have your advice on two things... how were your side effects and do u think I’m crazy being that my Aunt and mom just had Breast cancer. The MS specialist said if it was her that she would start it.
I am supposed to start
Ocrevus
soon and would love to have your advice on two things... how were your side effects and do u think I’m crazy being that my Aunt and mom just had Breast cancer. The MS specialist said if it was her that she would start it.
Heyamy
in
My MSAA Community
7 years ago
OCREVUS - I NEED INFO
While waiting for
Ocrevus
I had steroid treatment, but once
Ocrevus
was released and all the bad press about the breast cancer incidents, my doctor felt I should go on Zinbryta.
While waiting for
Ocrevus
I had steroid treatment, but once
Ocrevus
was released and all the bad press about the breast cancer incidents, my doctor felt I should go on Zinbryta.
SueStu
in
My MSAA Community
7 years ago
Ocrevus after Lemtrada
has anyone done Lemtrada and then tried Ocervs sorry I know the spelling is probly wrong. and if so has it helped.
has anyone done Lemtrada and then tried Ocervs sorry I know the spelling is probly wrong. and if so has it helped.
REDLIPS44
in
My MSAA Community
7 years ago
New to HealthUnlocked
I was on Copaxone, then Tecfidera, and now
Ocrevus
. I am always looking for an eventual cure to MS, so staying as healthy as possible is key. Approaches to staying healthy, eating well, exercising, and being positive is a good thing.
I was on Copaxone, then Tecfidera, and now
Ocrevus
. I am always looking for an eventual cure to MS, so staying as healthy as possible is key. Approaches to staying healthy, eating well, exercising, and being positive is a good thing.
carolek572
CommunityAmbassador
in
My MSAA Community
7 years ago
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