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Are there meds currently available for gait issues for Progressive ms...will be starting ocrevus shortly for the gait issue..a bit nervous
I am unable to take even 1 step unless I'm holding onto a wall, a table, a stove etc...I use a walker when I leave the house...which is not very often...I'm so looking forward to the
ocrevus
therapy..,hopefully it will be the holy grail...anyone have positive results to
ocrevus
I am unable to take even 1 step unless I'm holding onto a wall, a table, a stove etc...I use a walker when I leave the house...which is not very often...I'm so looking forward to the
ocrevus
therapy..,hopefully it will be the holy grail...anyone have positive results to
ocrevus
geoghegan
in
My MSAA Community
7 years ago
RRMS TO PPMS
I'm on the one and only drug that is suppose to be for ppms (
Ocrevus
). I go back 4/18 & 4/20 for MRI's to see if anything show on MRI's. Doc will go over results 4/24. How do I stay positive? It's a blessing to wake up every morning!!
I'm on the one and only drug that is suppose to be for ppms (
Ocrevus
). I go back 4/18 & 4/20 for MRI's to see if anything show on MRI's. Doc will go over results 4/24. How do I stay positive? It's a blessing to wake up every morning!!
Diva1976
in
My MSAA Community
6 years ago
Let's do an Ocrevus poll!
I'll begin break the ice about my experience with
ocrevus
I'll begin break the ice about my experience with
ocrevus
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
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Deciding on treatment...
I would prefer something low maintenance and results like
Ocrevus
or Rituxan. I feel like I never fully get over my relapses - I have a lot of anxiety so I'm sure that doesn't help. I would love to hear your thoughts and advice on treatment. My next MRI is end of April. Oh!
I would prefer something low maintenance and results like
Ocrevus
or Rituxan. I feel like I never fully get over my relapses - I have a lot of anxiety so I'm sure that doesn't help. I would love to hear your thoughts and advice on treatment. My next MRI is end of April. Oh!
Debriley
in
My MSAA Community
7 years ago
ocrevus I'm new here
will be starting
ocrevus
within the next 2 weeks...what can I expect...and has anyone seen much improvement?
will be starting
ocrevus
within the next 2 weeks...what can I expect...and has anyone seen much improvement?
geoghegan
in
My MSAA Community
7 years ago
Ocrevus patient
I’m currently on
Ocrevus
. Anyone else on this med and if so, how are you doing?
I’m currently on
Ocrevus
. Anyone else on this med and if so, how are you doing?
THalcomb
in
My MSAA Community
7 years ago
Worried For Nothing
Today 3/30 I received my first infusion of
ocrevus
.....I could kick myself in the b--- for worrying like a fool the past few months while waiting for approval....If I didn't read the infusion bag myself I would think that I received saline solution... it was a walk in the park...absolutely no reaction
Today 3/30 I received my first infusion of
ocrevus
.....I could kick myself in the b--- for worrying like a fool the past few months while waiting for approval....If I didn't read the infusion bag myself I would think that I received saline solution... it was a walk in the park...absolutely no reaction
geoghegan
in
My MSAA Community
7 years ago
Neuro appt today - what's failing...don't know
But since I'm JCV+ and my index kept rising, I had to switch to something else and
Ocrevus
seemed like the only real option for me. My neuro had me wait 12 weeks from my last Tysabri infusion to the first
Ocrevus
infusion. I know it takes awhile for
Ocrevus
to show any affect.
But since I'm JCV+ and my index kept rising, I had to switch to something else and
Ocrevus
seemed like the only real option for me. My neuro had me wait 12 weeks from my last Tysabri infusion to the first
Ocrevus
infusion. I know it takes awhile for
Ocrevus
to show any affect.
Raingrrl
in
My MSAA Community
7 years ago
SPMS and Ocrevus
Is anybody here with SPMS on
Ocrevus
? My neurologist says it's not used for SPMS but I don't know why not. What do I have to lose? Any side effects, good effects? All info very much appreciated.
Is anybody here with SPMS on
Ocrevus
? My neurologist says it's not used for SPMS but I don't know why not. What do I have to lose? Any side effects, good effects? All info very much appreciated.
Ikeeptrying
in
My MSAA Community
7 years ago
Really???
Some of those medicines come in pill form: Tecfidera and Gilenya...but many are infusions, meaning given through an IV:
Ocrevus
, Rebif. There is huge variety of medications that can help a person. Whichever one would suit you your neurologist will check with you first to see which you prefer.
Some of those medicines come in pill form: Tecfidera and Gilenya...but many are infusions, meaning given through an IV:
Ocrevus
, Rebif. There is huge variety of medications that can help a person. Whichever one would suit you your neurologist will check with you first to see which you prefer.
crystaljarvis15
in
My MSAA Community
7 years ago
Approvals for Medicine
Anyone taking
Ocrevus
? How long did it take for your first infusion to be approved? My son was diagnosed on Dec 20th and we are still waiting for approvals. He has lost most of the vision in his right eye and the fatigue is getting the better of him.
Anyone taking
Ocrevus
? How long did it take for your first infusion to be approved? My son was diagnosed on Dec 20th and we are still waiting for approvals. He has lost most of the vision in his right eye and the fatigue is getting the better of him.
JennS77
in
My MSAA Community
7 years ago
FULL DOSE OF OCREVUS
I had my first full dose of
Ocrevus
, with no real side effects. I took it easy on Thursday just in case, then of Fri. my husband had the day off so we went out and ran errands much of the day and I was fine.
I had my first full dose of
Ocrevus
, with no real side effects. I took it easy on Thursday just in case, then of Fri. my husband had the day off so we went out and ran errands much of the day and I was fine.
bavery207
in
My MSAA Community
7 years ago
Since I'm already a science experiment by taking Ocrevus...what's a little more experiementation?
So...on top of trying out
Ocrevus
, I'm also trying acupuncture.
Ocrevus
is a science experiment for me because it was NOT tested in people my age nor was it compared to any of the more powerful DMT's. And it remains to be seen whether or not there is a PML risk.
So...on top of trying out
Ocrevus
, I'm also trying acupuncture.
Ocrevus
is a science experiment for me because it was NOT tested in people my age nor was it compared to any of the more powerful DMT's. And it remains to be seen whether or not there is a PML risk.
Raingrrl
in
My MSAA Community
7 years ago
Howdy
Lab rat in early phase II clinical trial of what's now
ocrevus
. It works for me. Bad lassitude and heat sensitivity. I had a really dramatic mri that scared people until they narrowed it all down over 8 days in a hospital. It's been a long ride already! Wishing everyone health and patience
Lab rat in early phase II clinical trial of what's now
ocrevus
. It works for me. Bad lassitude and heat sensitivity. I had a really dramatic mri that scared people until they narrowed it all down over 8 days in a hospital. It's been a long ride already! Wishing everyone health and patience
Texascubbie
in
My MSAA Community
7 years ago
Ocrevus
Just finished my 1st full dose 6 month
Ocrevus
infusion yesterday. Went smoothly and I feel okay this morning. I sure hope and pray this helps all of us that are now using it. God's blessings and peace to all of you 🙏.
Just finished my 1st full dose 6 month
Ocrevus
infusion yesterday. Went smoothly and I feel okay this morning. I sure hope and pray this helps all of us that are now using it. God's blessings and peace to all of you 🙏.
Yooper
in
My MSAA Community
7 years ago
Lemtrada
Considering
Ocrevus
as well. I have my VEP and EMG on Wednesday and I hope those results will be enough for my MS dr to recommend DMT.
Considering
Ocrevus
as well. I have my VEP and EMG on Wednesday and I hope those results will be enough for my MS dr to recommend DMT.
Qt314grl
in
My MSAA Community
7 years ago
Experience with UHC
I'm on
Ocrevus
infusions. Does anyone have any experience or input with UHC approving
Ocrevus
? So frustrating! Thanks! Lori
I'm on
Ocrevus
infusions. Does anyone have any experience or input with UHC approving
Ocrevus
? So frustrating! Thanks! Lori
lcrosby3
in
My MSAA Community
7 years ago
Was you to weak to drive after getting Ocrevus?
This question is to all
Ocrevus
users. I realize we are all different but share the same illness. I'm getting my first dose come 1/16/18. I usually sometimes have someone ride with me to appointments but they're not able to drive.
This question is to all
Ocrevus
users. I realize we are all different but share the same illness. I'm getting my first dose come 1/16/18. I usually sometimes have someone ride with me to appointments but they're not able to drive.
Diva1976
in
My MSAA Community
7 years ago
Ocrevus - second 1/2 of first dose today
I don't have any idea if its the
Ocrevus
or because I'm stuck sitting in the infusion center for 6+ hours. Dose two is scheduled for the first week in June.
I don't have any idea if its the
Ocrevus
or because I'm stuck sitting in the infusion center for 6+ hours. Dose two is scheduled for the first week in June.
Raingrrl
in
My MSAA Community
7 years ago
First Ocrevus Infusion Today
Hi all...wish me luck with the first 1/2 of the first
Ocrevus
Infusion today! I'll post later how it went. I'm nervous about how it will go especially since I'll be stuck at the infusion center for so many hours. I'm not happy about that. My Tysabri infusions took a lot less time.
Hi all...wish me luck with the first 1/2 of the first
Ocrevus
Infusion today! I'll post later how it went. I'm nervous about how it will go especially since I'll be stuck at the infusion center for so many hours. I'm not happy about that. My Tysabri infusions took a lot less time.
Raingrrl
in
My MSAA Community
7 years ago
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