Low lymphacytes on Ocrevus?: Anyone have... - My MSAA Community

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Low lymphacytes on Ocrevus?

Kel5 profile image
Kel5
4 Replies

Anyone have their lymphocytes fall dramatically after they went on ocrevus? If so, what did your Dr's say about it? I'm feeling nervous after my last labs. My lymphacytes are too low naturally but after ocrevus they plummeted.

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Kel5 profile image
Kel5
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CalfeeChick profile image
CalfeeChickCommunityAmbassador

I'm not on it but will be following your post. I'm thinking of talking to my Dr about changing from Symptomatic meds to some kind of MS drug. I have 6 month check up in April. I hope you get some good numbers soon.

Iona60 profile image
Iona60

My lymphocytes went up on ocrevus. They went low on gilenya. Neuro said they could go as low as 300 before he would take me off of gilenya. I was able to raise mine in gilenya by drinking Green tea and eating more protein (read this in the Mayo clinic website). They went from 500 to 800. How low are yours?

Raingrrl profile image
Raingrrl

How many infusions have you had Kel5 ?

briannalindsey profile image
briannalindsey

My husband was just notified of his being low. Our doctor is supposed to be the best in the area. She is the worst at communicating and following up. Called on a Friday and left to hang all weekend with even more questions. So upseting,

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