Infusion : Here I sit in the hospital... - My MSAA Community

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Infusion

ssdw1958 profile image
10 Replies

Here I sit in the hospital having my Ocrevus my first full dose the only thing is I keep on falling to sleep.

I know this is short but I keep on falling asleep. I'll let you know how I am l do latter.

ssdw1958

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ssdw1958
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10 Replies
SometimesCrazy profile image
SometimesCrazy

Naps are good! I just had my first Tsyabri and the nurses basically told me to shut up and take a nap. Sweet dreams xxoo.

greaterexp profile image
greaterexp

Enjoy that restorative sleep!

Royjr profile image
Royjr

Keep us informed

ssdw1958 profile image
ssdw1958 in reply to Royjr

Keep on reading I keep on add in different sections😃

THalcomb profile image
THalcomb

That’s the Benadryl they give you thru your IV. It knocks me out every time! But it makes the time go by much faster. I actually enjoy going in and getting my infusion.

ssdw1958 profile image
ssdw1958 in reply to THalcomb

Yes it was the benadryl that made me tired. I got to the hospital for 8a.m. finally they found a vein around 8:45 a.m. they were waiting for another tech to do it then another nurse said let me try it first try and she did it. YEAH here we go about 1p.m I woke up and my legs were killing me. Know you have to know my legs are really weak so I stood up with help.i entered the hospital with a wheelchair after

that I sat down and the nurse as asked me if I was hungry and I was so she got me a turkey sandwich meal which helped me around 2:00p.m. medicine was done them you wait for 45 minutes just in case you have any reactions to the meds to make a long story short I walk at home with a rollator I use a wheelchair out side the house. When I got home and had to go to the bathroom and I was able to get up and down by my self yeah and my husband had to do the something my husband said to me wait for me, and I will help you I didn't wait I went by my self with my rollator. Then through the night till about 12 a.m. I had some problem, going slow but that is normal but I did pretty good..I will see tomorrow. We have to go and get our taxes

oh joy oh bliss NOT. I give an update tomorrow.

Good night for now.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

How are you feeling today? ssdw1958

J🌠

ssdw1958 profile image
ssdw1958 in reply to Jesmcd2

This is too everyone I really don’t know how to say this but the sole of my right foot which has had the feeling of being totally numb and now I have a little bit more feeling in it. Last night I got up to go to the bathroom and while walking I could feel the sole of my right foot. touching the floor. I can also curl my toes down would. Which I haven’t done in years. This is so strange a feeling which is good and I wouldn’t say anything if it wasn’t true.

Atlproctor profile image
Atlproctor

Yes. How are you today?

ssdw1958 profile image
ssdw1958 in reply to Atlproctor

I put an update under Jesmcd2 just above this comment. I’ll let you know if things change. But I will say I never thought this would happen. In a good way.

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