Symptom update: It’s been about a month... - My MSAA Community

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Symptom update

THalcomb profile image
42 Replies

It’s been about a month since I had my second Ocrevus infusion and I’m getting feeling back into my left foot! I felt so happy that I actually put on 2” heels and went out to dinner with the hubs. I haven’t been able to wear any type of shoe that isn’t flat because of fear of tripping. I’m feeling happy and blessed :) It’s just the little things ❤️

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THalcomb profile image
THalcomb
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42 Replies
jimeka profile image
jimeka

Wow, that’s incredible. I hope it continues to improve for you, blessings Jimeka 🦋 🍫 🤗

THalcomb profile image
THalcomb in reply to jimeka

Thank you!

janetb1968 profile image
janetb1968

Fab news xxxx 😁😁😁😁

THalcomb profile image
THalcomb in reply to janetb1968

Thank you!

Royjr profile image
Royjr

Excellent news 😀. I hope everything continues to improve.

THalcomb profile image
THalcomb in reply to Royjr

Thank you!

Morllyn profile image
Morllyn

😃👏

THalcomb profile image
THalcomb in reply to Morllyn

👍🏻🙏

greaterexp profile image
greaterexp

That’s wonderful! Those little things are huge!

THalcomb profile image
THalcomb in reply to greaterexp

They sure are 😊

Iona60 profile image
Iona60

Great news. I'm still waiting for ocrevus to kick in for me.

THalcomb profile image
THalcomb in reply to Iona60

Wishing you all the best

Kenu profile image
Kenu

That’s fabulous news 🤗 Pray that things continue for the positive 😀🙏🐾 Ken

THalcomb profile image
THalcomb in reply to Kenu

Thank you!

SueAB profile image
SueAB

THalcomb , Wow! Good for you! I have to tell you I am a little bit envious - I have a pair of wine eel skin heels I just can't get rid of!

THalcomb profile image
THalcomb in reply to SueAB

Thank you! Don’t throw them out yet 😊

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Wow, Congratulations.. Forward progress is so wonderful and I hope it continues. Gives the rest of us some hope!

THalcomb profile image
THalcomb in reply to CalfeeChick

Thank you! Never stop hoping and 🙏

SometimesCrazy profile image
SometimesCrazy in reply to THalcomb

I read this quickly and saw 'never stop shopping' . Now it is hoping and shopping(for shoes too!)

Diva1976 profile image
Diva1976

That is AWESOME THalcomb!! I would be ecstatic if i could wear some heels! Ocrevus is working!!

THalcomb profile image
THalcomb in reply to Diva1976

Thank you! So far I’m very happy 😊

Diva1976 profile image
Diva1976 in reply to THalcomb

You're welcome:)

Momjules profile image
Momjules

Good for you! That sounds wonderful.

I go for my first this coming Thursday .

I hope I have some good news to.

Congrats!!

THalcomb profile image
THalcomb in reply to Momjules

Sending you well wishes for your first infusion.

Linda3579 profile image
Linda3579 in reply to Momjules

I hope Thursday goes well for you. I am due for my forth infusion. They have all gone very well. I like to bring a special snack for myself. 😄. Linda

THalcomb profile image
THalcomb in reply to Linda3579

Hi Linda! So you’ve been on Ocrevus for almost 2 years now? Have you had improvements in your symptoms and if so, what kind?

Linda3579 profile image
Linda3579 in reply to THalcomb

I’m sorry, I was in error about my time on Ocrevus. Can I blame it on my MS brain?? 🤪 I have been on it a year. I noticed a few improvements at first, but have gotten a bit worse of late. I think it has to do with my age, 71, and how long it took me to get diagnosed. I have SPMS. I never noticed any big improvement like you have had. I think that’s a very good sign for you. I’m wishing you lots of good days ahead! Linda 💕

bxrmom profile image
bxrmom

THalcomb That is so great!! So very happy for you!! Hope things continue to improve for you!

Jessie

THalcomb profile image
THalcomb in reply to bxrmom

Thank you!

Linda3579 profile image
Linda3579

What GREAT news!!! Be careful in your heels. You will have to get use to them again. Maybe you can go out dancing!

THalcomb profile image
THalcomb in reply to Linda3579

Thank you! I held on to my husbands arm as I walked :)

Kitsey profile image
Kitsey

Such wonderful news. Praying that this is the first of many positive updates!🙏🏻

THalcomb profile image
THalcomb in reply to Kitsey

Thank you!

tombouy46 profile image
tombouy46

Hi THal. That is without a doubt the best news I’ve heard in a long time. Iam so Sykes for you, I know it’s somewhat early into the therapy. But WOW. I started the Lemtrada 2 yrs ago. My m.s. told me recently that when my counts come back up. His plan is to start me on the Ocrevus. After hearing this from you. Gives me more hope than the other Meds I’ve tried over the yrs. please. Keep us posted. And GOOD LUCK

THalcomb profile image
THalcomb in reply to tombouy46

Thank you!! I’ve been very happy with the Ocrevus so far. I’m looking forward to feeling better and better 😊

Angel006 profile image
Angel006

Great news,very happy for you,I refuse to throw away all my heels,and you just gave me the hope I needed not to,thanks and best of luck to you

THalcomb profile image
THalcomb in reply to Angel006

Thank you! Don’t throw away your heels just yet 😊

Raingrrl profile image
Raingrrl

Great news THalcomb ! My second dose isn't until early June and so far, I've not noticed anything positive. If anything, I have more fatigue.

THalcomb profile image
THalcomb in reply to Raingrrl

Thank you! I had fatigue right before my second infusion. Afterward I felt much better. Two weeks after the infusion I started to have some feeling in my big toe and now the feeling has been coming back in the whole foot. I’m having to retrain myself on how to walk “normal” again.

Momjules profile image
Momjules

Hi guys!

Linda, thanks for reminding me about bringing a snack! I never thought of that.

Everyone has a experience that is interesting.

I’m getting nervous .

Momjules profile image
Momjules

All your well wishes are incredible!

They make a nice thing to wake up to!

Thank you all!

WAshingtongirl profile image
WAshingtongirl

Wow, that’s wonderful THalcomb . So happy for you. 💕

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