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Inflammatory Pain and T
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
Shozza1
in
Tinnitus UK
1 year ago
It's back after 7 years!
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
KarenBHorrocks
in
Endometriosis UK
7 months ago
Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
7 months ago
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QoLando Caliente El Sol 🌞
https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday pm, hubby & wife - pts for over 20 yrs, asked me to have beers/pizza with them😍 Also ran into quite a few other pts, even the cashier😂 Sat am
https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday pm, hubby & wife - pts for over 20 yrs, asked me to have beers/pizza with them😍 Also ran into quite a few other pts, even the cashier😂 Sat am
dockam
in
Advanced Prostate Cancer
7 months ago
Post treatment post ADT time to PSMA test
Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending adjuvant ADT therapy within a few months and am aware of the lasting effects on testosterone (will take 6-12 months for decent testosterone levels .
Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending adjuvant ADT therapy within a few months and am aware of the lasting effects on testosterone (will take 6-12 months for decent testosterone levels .
Yokohama2023
in
Advanced Prostate Cancer
7 months ago
PSA rising 10 weeks after Orgovyx Holiday
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
ac61418
in
Advanced Prostate Cancer
7 months ago
Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
7 months ago
HRT after Thyroid Cancer
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
DarkStar85
in
Thyroid UK
7 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
7 months ago
ADT or Orchiectomy & side effects
I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether? Currently on Xtandi and Orgovox. thanks
I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether? Currently on Xtandi and Orgovox. thanks
lookout4
in
Advanced Prostate Cancer
7 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
7 months ago
raised platelets
hi folks, I’ve been on the chat a few months now and I read everyone’s posts with great interest. I have developed great respect for the way you all support each other. I’ve had palindromic rheumatism for a few years which I managed with HRT (any change to this sends me into a flare that lasts till
hi folks, I’ve been on the chat a few months now and I read everyone’s posts with great interest. I have developed great respect for the way you all support each other. I’ve had palindromic rheumatism for a few years which I managed with HRT (any change to this sends me into a flare that lasts till
Memaw21
in
NRAS
7 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
7 months ago
Do i have PMR
Hi all i follow this site for help and advice .i appoligise in advance for bad spelling after having a stroke . In Feb this yr i was sent to see a specialist do to shoulder and bad hand pain which included pins and needles also numbness swollen knuckles ect,while there i asked about temple and jaw
Hi all i follow this site for help and advice .i appoligise in advance for bad spelling after having a stroke . In Feb this yr i was sent to see a specialist do to shoulder and bad hand pain which included pins and needles also numbness swollen knuckles ect,while there i asked about temple and jaw
pink123floyd
in
PMRGCAuk
9 months ago
Spontaneous remission of some blood counts after Dx
This just is a question of curiosity I've discussed briefly before. If any members have seen something like this it would be interesting to know. I've asked two MPN Drs about it and all I hear is "it's complicated" and/or "things fluctuate". -- These plots show some counts and when I started aspirin
This just is a question of curiosity I've discussed briefly before. If any members have seen something like this it would be interesting to know. I've asked two MPN Drs about it and all I hear is "it's complicated" and/or "things fluctuate". -- These plots show some counts and when I started aspirin
EPguy
in
MPN Voice
1 year ago
ADT & Mets
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
CJ1958
in
Advanced Prostate Cancer
7 months ago
Long term results of high dose radiation and long term ADT
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
Don_1213
in
Advanced Prostate Cancer
7 months ago
Need a group therapy or people to chat about social anxiety disorder. Thanks
Hi, I am EL and suffer from social anxiety disorder. I am introverted and fear being exposed to the public, interacting with people for more than a few minutes, or even struggle looking at people in the eyes. I tend to get my hands and armpits sweaty when I get anxious along with shortness of breath.
Hi, I am EL and suffer from social anxiety disorder. I am introverted and fear being exposed to the public, interacting with people for more than a few minutes, or even struggle looking at people in the eyes. I tend to get my hands and armpits sweaty when I get anxious along with shortness of breath.
PapaRocky39
in
Anxiety and Depression Support
11 months ago
Part Rant and Zoladex Question
Oh, the glamorous world of injections and their elusive promises! There I was declaring "No more injections for me!" But those consultants have a way of making you believe that they [i]"will help to shrink the fibroids so we can reach the endometriosis easier". [/i] The next line was basically [i]"It's
Oh, the glamorous world of injections and their elusive promises! There I was declaring "No more injections for me!" But those consultants have a way of making you believe that they [i]"will help to shrink the fibroids so we can reach the endometriosis easier". [/i] The next line was basically [i]"It's
SimplyDeeDee
in
Endometriosis UK
7 months ago
AlteraAI test
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
7OaksTom
in
Advanced Prostate Cancer
7 months ago
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