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Thyroid/post viral fatigue/perimenopause/CFS - help!
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Dahliasanddaisies
in
Thyroid UK
7 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
4 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
7 months ago
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Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
7 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
7 months ago
Improved thyroid levels since HRT ?
hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very
hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very
Cup-cake7
in
Thyroid UK
7 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
7 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
Menopause/HRT Question.
I recently changed over to the Evorel 50 HRT patches from oral HRT tablets, well what a waste of time, they are absolutely useless. They wont stay on even though I put a sticky plaster and surgical tape on over the top. I used 4 in a week! They are definitely not for me. I had a consult today with a
I recently changed over to the Evorel 50 HRT patches from oral HRT tablets, well what a waste of time, they are absolutely useless. They wont stay on even though I put a sticky plaster and surgical tape on over the top. I used 4 in a week! They are definitely not for me. I had a consult today with a
Sparklingsunshine
in
Thyroid UK
7 months ago
Bleeding on prostab
Hi anyone in a similar situation would be helpful to me right now, I have been on prostab injections for 11 months with everoll hrt patches, in November I started having a flare up of pain and it hasn't settled down, now I am bleeding and in alot of pain. I think the injections have stopped working
Hi anyone in a similar situation would be helpful to me right now, I have been on prostab injections for 11 months with everoll hrt patches, in November I started having a flare up of pain and it hasn't settled down, now I am bleeding and in alot of pain. I think the injections have stopped working
Deedee112345
in
Endometriosis UK
7 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
7 months ago
Delay date for Lupron injection
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
John347
in
Advanced Prostate Cancer
7 months ago
It's Back!
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
Tjc1
in
Advanced Prostate Cancer
7 months ago
vestibular migraine nightmare
Hi everyone. I just at my wits end and wondered if anyone can help?’! Diagnosed with vestibular migraine 10 years ago by default as they did every test imaginable both ENT and Neurological and decided it had to be that and gave me propranolol and the following day it was a miracle. Hadn’t left house
Hi everyone. I just at my wits end and wondered if anyone can help?’! Diagnosed with vestibular migraine 10 years ago by default as they did every test imaginable both ENT and Neurological and decided it had to be that and gave me propranolol and the following day it was a miracle. Hadn’t left house
dobbo1234
in
National Migraine Centre
7 months ago
The "other" symptoms of PMR?
I was diagnosed with PMR in July 2022 after 2 months of sudden onset of symptoms. I was very fit & healthy at time of first symptoms. I am using DSNS weaning regime & down to 7mg & had 2 flares during this time. Currently stuck on 7mg for a month due to slight hip discomfort. My question is less
I was diagnosed with PMR in July 2022 after 2 months of sudden onset of symptoms. I was very fit & healthy at time of first symptoms. I am using DSNS weaning regime & down to 7mg & had 2 flares during this time. Currently stuck on 7mg for a month due to slight hip discomfort. My question is less
Flinders61
in
PMRGCAuk
1 year ago
QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
5 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
5 months ago
Results out of range. Deal with high cholesterol
Hello All. I have an appointment with the Endo next week. Last week blood test shows both TSH and free T4 is out of range. Serum TSH level Result: 0.04 mu/L * Normal range: 0.27 - 4.2mu/L Serum free T4 level Result: 23.8 pmol/L * Normal range: 12 -
Hello All. I have an appointment with the Endo next week. Last week blood test shows both TSH and free T4 is out of range. Serum TSH level Result: 0.04 mu/L * Normal range: 0.27 - 4.2mu/L Serum free T4 level Result: 23.8 pmol/L * Normal range: 12 -
sunbee
in
Thyroid UK
7 months ago
PSA still undectable
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
Brysonal
in
Fight Prostate Cancer
7 months ago
Genitourinary Cancers Symposium Meeting Coverage, MedPage Today, January 2024
Latest 2024 PCa-related GuCS Meeting Coverage from MedPage Today: [i]
More Evidence That ARSIs for Prostate Cancer Differ in Cognitive Effects -More fatigue, depression, worse reaction time with enzalutamide as compared with abiraterone, January 29, 2024:
[/i] https://www.medpagetoday.com/meetingcoverage
Latest 2024 PCa-related GuCS Meeting Coverage from MedPage Today: [i]
More Evidence That ARSIs for Prostate Cancer Differ in Cognitive Effects -More fatigue, depression, worse reaction time with enzalutamide as compared with abiraterone, January 29, 2024:
[/i] https://www.medpagetoday.com/meetingcoverage
cujoe
in
Fight Prostate Cancer
7 months ago
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