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Newly Diagnosed
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Mindini1964
in
The Roy Castle Lung Cancer Foundation
7 months ago
lung cancer
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Sally789
in
The Roy Castle Lung Cancer Foundation
7 months ago
Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
11 months ago
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Please Join us tomorrow, November 16th for our Coming Together Globally to Combat Stigma Living Room
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Michelezeh
Partner
in
Lung Cancer Support
8 months ago
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
8 months ago
tramadol
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
Shadowperson
in
Pain Concern
11 months ago
wax treatments
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
Clangerscat
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
ADHD-PI dad + ADHD-PH 4yo boy = Chaos
I’ll try to be brief. We both have ADHD with different classifications. All family goes to therapy. He takes Methylphenidate since 3 months ago and goes to occupational therapy. Also 1mg melatonin for sleep since he started those meds. He showed issues at school since over a year ago. Been kicked out
I’ll try to be brief. We both have ADHD with different classifications. All family goes to therapy. He takes Methylphenidate since 3 months ago and goes to occupational therapy. Also 1mg melatonin for sleep since he started those meds. He showed issues at school since over a year ago. Been kicked out
ADHDLatino
in
CHADD's ADHD Parents Together
9 months ago
Low B6... taking a complex with pyridoxine which obviously doesn't suit
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
TiggerMe
in
Thyroid UK
11 months ago
International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
8 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
8 months ago
immunotherapy damaging kidneys
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
SharonTan
in
The Roy Castle Lung Cancer Foundation
8 months ago
Please Join Us! Tuesday November 14th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
8 months ago
LDH high
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
JAKboy
in
MPN Voice
11 months ago
She doesn’t act that way with me…
I’ve known since my daughter was 2 years old that something was going on, but everyone around me tries to explain it away. It seems like to them having ADHD and sensory processing disorder is the kiss of death and all is lost for her. Why do I have to over explain her symptoms and diagnoses? If I say
I’ve known since my daughter was 2 years old that something was going on, but everyone around me tries to explain it away. It seems like to them having ADHD and sensory processing disorder is the kiss of death and all is lost for her. Why do I have to over explain her symptoms and diagnoses? If I say
yum_yum
in
CHADD's ADHD Parents Together
9 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
8 months ago
An exhaustive study that offers hope that some types of activities can improve symptoms even as disease progresses
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad325/7284004 ------- The article link above contains the entire pdf of the study results which is 44 pages. It might be hard to digest in a short time. I am providing here the analysis and summary of the study along with why the study
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad325/7284004 ------- The article link above contains the entire pdf of the study results which is 44 pages. It might be hard to digest in a short time. I am providing here the analysis and summary of the study along with why the study
pdpatient
in
Cure Parkinson's
9 months ago
Best natural anti anxiety remedy
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
woodman72
in
Tinnitus UK
11 months ago
Waiting game
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
purdeyspringer
in
Lung Conditions Community Forum
8 months ago
Pulsatile tinnitus
Hi there. Does anyone else have pulsatile T. Mostly it comes and goes, always one-sided as the T is that side. I can make it go away by turning my head to the opposite side. But when i turn it back the T comes back. Shrugging my shoulders helps as well as stretching my neck. Have spoken to the doctor
Hi there. Does anyone else have pulsatile T. Mostly it comes and goes, always one-sided as the T is that side. I can make it go away by turning my head to the opposite side. But when i turn it back the T comes back. Shrugging my shoulders helps as well as stretching my neck. Have spoken to the doctor
penelope2
in
Tinnitus UK
8 months ago
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