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Life insurance
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hidden
in
Lung Conditions Community Forum
5 months ago
Aspirin Question
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on Pegasys? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on Pegasys? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Golfersmom
in
MPN Voice
9 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
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new procedure
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Trevor6
in
COPD Friends
5 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 months ago
X-ray vs Ct scan
Hi All, I just wanted to ask if anyone has had a clear normal X-ray result of their lungs then had different result from CT scan with contrast please thank you xx
Hi All, I just wanted to ask if anyone has had a clear normal X-ray result of their lungs then had different result from CT scan with contrast please thank you xx
Nat107
in
The Roy Castle Lung Cancer Foundation
6 months ago
Radiotherapy for lung cancer
After an oncologist appointment I was left deflated. I did know the risk of extra damage to the lung and possibly needing oxygen. She was talking like she didn't want me to try. At the moment they said I have 18 months to 2 years left and the Radiotherapy would give me an extra year . All of this is
After an oncologist appointment I was left deflated. I did know the risk of extra damage to the lung and possibly needing oxygen. She was talking like she didn't want me to try. At the moment they said I have 18 months to 2 years left and the Radiotherapy would give me an extra year . All of this is
Lizzielock
in
The Roy Castle Lung Cancer Foundation
6 months ago
Lung damage, ECMO, time taken to recover.
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
shivnajain
in
ICUsteps
6 months ago
Mum getting biopsy results tomorrow
Hi all, my beautiful mum is getting her biopsy results tomorrow (Friday) but has been told she has a tumour and there is potential spread to lymph nodes and that the plan will be chemotherapy and immunotherapy. She has had two x rays, a chest CT and bronchoscope/biopsies but no further tests just yet
Hi all, my beautiful mum is getting her biopsy results tomorrow (Friday) but has been told she has a tumour and there is potential spread to lymph nodes and that the plan will be chemotherapy and immunotherapy. She has had two x rays, a chest CT and bronchoscope/biopsies but no further tests just yet
DaughterofDiane
in
The Roy Castle Lung Cancer Foundation
6 months ago
Gym Circuits - good idea?
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
Ninapod
in
Fibromyalgia Action UK
10 months ago
Mycophenolate instead of Perfinedine or Nintenanib?
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
DaveLister
in
Lung Conditions Community Forum
6 months ago
diffuse idiopathic pulmonary neuroendocrine cell hyperplasia. DIPNECH. I was diagnosed with this in Aug 2023 by Royal Brompton.
nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar with lung problems. But this is working in the dark.
nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar with lung problems. But this is working in the dark.
Bellaowl
in
Lung Conditions Community Forum
10 months ago
Stopping Tagrisso
Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side
Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side
Goldmoon
in
The Roy Castle Lung Cancer Foundation
6 months ago
Another Xray but why ?
Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story
Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story
Danni54
in
Lung Cancer Support
6 months ago
Please Join Us! Tuesday January 9th, Gathering HOPE Community Social
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Michelezeh
Partner
in
Lung Cancer Support
6 months ago
Do I declare Esophageal varices (no longer found) on travel insurance?
Hi All, I've booked a holiday for April next year and I'm looking for a bit of advice regarding my travel insurance. Due to having a blood clot in my portal vein because of my MPN I was diagnosed with having Esophageal varices (bloated blood vessels). However, I recently had an endoscopic examination
Hi All, I've booked a holiday for April next year and I'm looking for a bit of advice regarding my travel insurance. Due to having a blood clot in my portal vein because of my MPN I was diagnosed with having Esophageal varices (bloated blood vessels). However, I recently had an endoscopic examination
MarkD6701
in
MPN Voice
10 months ago
Appointment update
Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if
Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if
Mindini1964
in
The Roy Castle Lung Cancer Foundation
6 months ago
new diagnosis
Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have
Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have
Clairemc0974
in
The Roy Castle Lung Cancer Foundation
7 months ago
Robert
Robert was diagnosed with Parkinson’s in 2018 PSP in 2021 progression was slow at first. Last year Robert was walking with a cane and dragging his feet. In September he began to fall daily sometimes more. He got weaker every day and finally allowed me to call a rescue. What followed was a whirlwind
Robert was diagnosed with Parkinson’s in 2018 PSP in 2021 progression was slow at first. Last year Robert was walking with a cane and dragging his feet. In September he began to fall daily sometimes more. He got weaker every day and finally allowed me to call a rescue. What followed was a whirlwind
Wrski
in
PSP Association
8 months ago
threadworm fibromyalgia link?
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Emmybird2
in
Fibromyalgia Action UK
11 months ago
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