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Ocaliva
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Experiences of Ocaliva
Hi everyone, What’s your experience of being put on
Ocaliva
? My Gastro is considering putting me on
Ocaliva
as the Urso doesn’t seem to be working properly. I’ve googled the side effects and it seems to give conflicting advice.
Hi everyone, What’s your experience of being put on
Ocaliva
? My Gastro is considering putting me on
Ocaliva
as the Urso doesn’t seem to be working properly. I’ve googled the side effects and it seems to give conflicting advice.
Hils67
in
PBC Foundation
5 years ago
Are these ok for PBCers?
Also, I got approval for
Ocaliva
. Not sure the cost for me yet, but it's a green light from my insurance Co. I haven't picked up the prescription yet. I'm nervous about starting it and I'm going to do some research on here to read how others are getting on.
Also, I got approval for
Ocaliva
. Not sure the cost for me yet, but it's a green light from my insurance Co. I haven't picked up the prescription yet. I'm nervous about starting it and I'm going to do some research on here to read how others are getting on.
Ktltel
in
PBC Foundation
5 years ago
New to the group but not PBC.
I am now on Urso Azithaprine and
Ocaliva
and off the Prednisone. Doing well. Muscle pains and foggy moments but keeping positive. I enjoy reading these posts, they are very helpful!! Thanks!!
I am now on Urso Azithaprine and
Ocaliva
and off the Prednisone. Doing well. Muscle pains and foggy moments but keeping positive. I enjoy reading these posts, they are very helpful!! Thanks!!
Chulachela
in
PBC Foundation
5 years ago
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Quick update on me, bloodwork
I went off
ocaliva
last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this weekend, hoping I will respond to that.
I went off
ocaliva
last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this weekend, hoping I will respond to that.
Ottley3
in
PBC Foundation
6 years ago
Maybe I shouldn’t post OCALIVA side effects. I’m hoping everyone here knows them
OCALIVA
can affect the way certain medicines work. Certain other medicines may affect the way
OCALIVA
works. How should I take
OCALIVA
?
OCALIVA
can affect the way certain medicines work. Certain other medicines may affect the way
OCALIVA
works. How should I take
OCALIVA
?
SunnyXXOO
in
PBC Foundation
6 years ago
Ocaliva
Hi I have been on
Ocaliva
for 3 weeks and was wondering if anyone felt that it had caused them any low mood and depression. Really not liking this feeling at all. Thanks
Hi I have been on
Ocaliva
for 3 weeks and was wondering if anyone felt that it had caused them any low mood and depression. Really not liking this feeling at all. Thanks
Jayne1863
in
PBC Foundation
6 years ago
High ALP and itching
At my last Dr's appointment he mentioned that we'd discuss adding
Ocaliva
when I see him next month.
At my last Dr's appointment he mentioned that we'd discuss adding
Ocaliva
when I see him next month.
kp1234
in
PBC Foundation
6 years ago
MRE (Magnetic Resonance Elastography) "My Results" So much for trusting Biopsy and Ultrasound. Also... High ferritin may skew MRE score.
Plus, I start
Ocaliva
tomorrow.
Plus, I start
Ocaliva
tomorrow.
Ktltel
in
PBC Foundation
6 years ago
Non-responders
My hepatologist mentioned
Ocaliva
. I am not scheduled to see him until next year. Of course having normal LFT s doesn’t mean that you won’t progress but it’s supposed to mean you have better chance of not progressing. Also If you went obeticholic acid are you glad you did? Linda
My hepatologist mentioned
Ocaliva
. I am not scheduled to see him until next year. Of course having normal LFT s doesn’t mean that you won’t progress but it’s supposed to mean you have better chance of not progressing. Also If you went obeticholic acid are you glad you did? Linda
Twojer
in
PBC Foundation
6 years ago
I'm venting...... 🙁
My doctor didn't even know what
Ocaliva
was. She'd heard of it. Since 2016 when I went to a GI for stomach issues. I've had loads of labs, ultrasounds, CT'S an MRCP, an ERCP and my doctors gold standard and definitive PBC staging procedure, a biopsy.
My doctor didn't even know what
Ocaliva
was. She'd heard of it. Since 2016 when I went to a GI for stomach issues. I've had loads of labs, ultrasounds, CT'S an MRCP, an ERCP and my doctors gold standard and definitive PBC staging procedure, a biopsy.
Ktltel
in
PBC Foundation
6 years ago
Question for Ocaliva patients - 5 mg or 10?
A question for my fellow
Ocaliva
people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? I’ve been on 5 mg for almost a year. AST and ALT are close to normal but ALP is very high and my doctor has suggested going to 10.
A question for my fellow
Ocaliva
people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? I’ve been on 5 mg for almost a year. AST and ALT are close to normal but ALP is very high and my doctor has suggested going to 10.
Ottley3
in
PBC Foundation
6 years ago
immunotherapy
Hi everyone, Does anyone takes immunotherapy session for pbc, i am not responce udca .. 2 years past i didnt find a solution and
ocaliva
didnt comfirmed turkey yet...
Hi everyone, Does anyone takes immunotherapy session for pbc, i am not responce udca .. 2 years past i didnt find a solution and
ocaliva
didnt comfirmed turkey yet...
bozcan
in
PBC Foundation
6 years ago
Alternative pbc treatment if can’t take Urso or Ocaliva
What can I take for pbc if I can’t tolerate Urso or
Ocaliva
?
What can I take for pbc if I can’t tolerate Urso or
Ocaliva
?
Gangee
in
PBC Foundation
6 years ago
OCALIVA /Fibroscan Results
Last year my fibroscan result showed my fibrosis to be early stage. Now it is early stage 3 fibrosis. I m disappointed to say the least. Dr is not worried at this point. He said fibroscan results can fluctuate & it might be lower with next scan. He told me to not get depressed about this, especially
Last year my fibroscan result showed my fibrosis to be early stage. Now it is early stage 3 fibrosis. I m disappointed to say the least. Dr is not worried at this point. He said fibroscan results can fluctuate & it might be lower with next scan. He told me to not get depressed about this, especially
gwillistexas
in
PBC Foundation
6 years ago
Pbc trigger and possible treatment
My thinking is that Urso/
Ocaliva
is only flushing the liver and is lowering the effect of our Nkt cells actions but this is not what we really want. i think that we want to stop Nkt to do what they are doing So if Nkt is triggered by a bacteria like : Escherichia coli Mycoplasma.
My thinking is that Urso/
Ocaliva
is only flushing the liver and is lowering the effect of our Nkt cells actions but this is not what we really want. i think that we want to stop Nkt to do what they are doing So if Nkt is triggered by a bacteria like : Escherichia coli Mycoplasma.
Andrei
in
PBC Foundation
6 years ago
Crawling feeling on right side of my head
I am on Urso and
OCaliva
. My itch and fatigue are in control but Since last year I got this creepy thing. Has anyone experienced this?
I am on Urso and
OCaliva
. My itch and fatigue are in control but Since last year I got this creepy thing. Has anyone experienced this?
Mg40
in
PBC Foundation
6 years ago
Any connection between dairy and itching?
Happy Friday everyone - PS i’ve Been on Urso since 1/17 and
ocaliva
since 10/17.
Happy Friday everyone - PS i’ve Been on Urso since 1/17 and
ocaliva
since 10/17.
Ottley3
in
PBC Foundation
6 years ago
Ocaliva, dosage, elevated cholesterol
Or seen the liver enzymes elevate on
ocaliva
? Thanks. PS I do itch already from
ocaliva
.
Or seen the liver enzymes elevate on
ocaliva
? Thanks. PS I do itch already from
ocaliva
.
Ottley3
in
PBC Foundation
6 years ago
Update:
Well, the Urso hasn’t worked like before, so my doctor has added
Ocaliva
to my list of medication. I started taking it once a day and had the itching side effect. So, instead of wanting to literally peel off the first layer of skin, I wanted to go deeper.
Well, the Urso hasn’t worked like before, so my doctor has added
Ocaliva
to my list of medication. I started taking it once a day and had the itching side effect. So, instead of wanting to literally peel off the first layer of skin, I wanted to go deeper.
Pamela372
in
PBCers Organization
6 years ago
Cost of Ocaliva in the US.
Pharmacy couldn't give me any idea of cost with my insurance...but the look on the pharmacy clerks face was priceless when she looked up the cost
Ocaliva
. Thanks.
Pharmacy couldn't give me any idea of cost with my insurance...but the look on the pharmacy clerks face was priceless when she looked up the cost
Ocaliva
. Thanks.
kp1234
in
PBC Foundation
6 years ago
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