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Ocaliva
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2 MONTHS On Ocaliva
And then two months on
Ocaliva
. So, in the past two months on
Ocaliva
majority of numbers look good. But then they always were. Just my Alk-Phos has been routinely elevated. But on
Ocaliva
it seems to be going up. Not downđ. Now..
And then two months on
Ocaliva
. So, in the past two months on
Ocaliva
majority of numbers look good. But then they always were. Just my Alk-Phos has been routinely elevated. But on
Ocaliva
it seems to be going up. Not downđ. Now..
Ktltel
in
PBC Foundation
5 years ago
Taken off Ocaliva
After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos
After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos
Gioielli
in
PBC Foundation
6 years ago
Burning mouth syndrome?
Hi everyone So recently I had been feeling less pain. Still couldn't jog around the park or anything and still tired most days, but been able to get out of bed in the morning, no real stiffness, even been able to excercise without a backlashđ Actually felt almost normal. No clue why the sudden change
Hi everyone So recently I had been feeling less pain. Still couldn't jog around the park or anything and still tired most days, but been able to get out of bed in the morning, no real stiffness, even been able to excercise without a backlashđ Actually felt almost normal. No clue why the sudden change
Alanna012
in
Fibromyalgia Action UK
5 years ago
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Ocaliva
My mother is currently battling a liver condition and she is taking
Ocaliva
. but inside the US, its a pretty Pricey, and her Insurance no longer accepts it. i will try a different insurance, but i just thought i would ask around and see what other people might have to offer advice wise.
My mother is currently battling a liver condition and she is taking
Ocaliva
. but inside the US, its a pretty Pricey, and her Insurance no longer accepts it. i will try a different insurance, but i just thought i would ask around and see what other people might have to offer advice wise.
RobertCJ
in
PBC Foundation
6 years ago
Well....... Now what?
Albu... 3.5 After 30 days on 5mg
Ocaliva
& URSO My numbers aren't bad but I'm disappointed becsuse OCA didn't normalize my alk-phos. My numbers back in Oct. last year had spiked prompting my doctors to put me on
Ocaliva
. They took me off of my RA drug Sulfasalazine and my numbers when back down.
Albu... 3.5 After 30 days on 5mg
Ocaliva
& URSO My numbers aren't bad but I'm disappointed becsuse OCA didn't normalize my alk-phos. My numbers back in Oct. last year had spiked prompting my doctors to put me on
Ocaliva
. They took me off of my RA drug Sulfasalazine and my numbers when back down.
Ktltel
in
PBC Foundation
6 years ago
Does it matter what time of the day I take my medication?
Iâm on urso and
ocaliva
. I started a year ago for not responding to urso. In the beginning I gradually increased
ocaliva
dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare!
Iâm on urso and
ocaliva
. I started a year ago for not responding to urso. In the beginning I gradually increased
ocaliva
dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare!
Gilz1702
in
PBC Foundation
6 years ago
Are these ok for PBCers?
Also, I got approval for
Ocaliva
. Not sure the cost for me yet, but it's a green light from my insurance Co. I haven't picked up the prescription yet. I'm nervous about starting it and I'm going to do some research on here to read how others are getting on.
Also, I got approval for
Ocaliva
. Not sure the cost for me yet, but it's a green light from my insurance Co. I haven't picked up the prescription yet. I'm nervous about starting it and I'm going to do some research on here to read how others are getting on.
Ktltel
in
PBC Foundation
6 years ago
Experiences of Ocaliva
Hi everyone, Whatâs your experience of being put on
Ocaliva
? My Gastro is considering putting me on
Ocaliva
as the Urso doesnât seem to be working properly. Iâve googled the side effects and it seems to give conflicting advice.
Hi everyone, Whatâs your experience of being put on
Ocaliva
? My Gastro is considering putting me on
Ocaliva
as the Urso doesnât seem to be working properly. Iâve googled the side effects and it seems to give conflicting advice.
Hils67
in
PBC Foundation
6 years ago
New to the group but not PBC.
I am now on Urso Azithaprine and
Ocaliva
and off the Prednisone. Doing well. Muscle pains and foggy moments but keeping positive. I enjoy reading these posts, they are very helpful!! Thanks!!
I am now on Urso Azithaprine and
Ocaliva
and off the Prednisone. Doing well. Muscle pains and foggy moments but keeping positive. I enjoy reading these posts, they are very helpful!! Thanks!!
Chulachela
in
PBC Foundation
6 years ago
Quick update on me, bloodwork
I went off
ocaliva
last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. Iâm starting a fibrate this weekend, hoping I will respond to that.
I went off
ocaliva
last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. Iâm starting a fibrate this weekend, hoping I will respond to that.
Ottley3
in
PBC Foundation
6 years ago
Maybe I shouldnât post OCALIVA side effects. Iâm hoping everyone here knows them
OCALIVA
can affect the way certain medicines work. Certain other medicines may affect the way
OCALIVA
works. How should I take
OCALIVA
?
OCALIVA
can affect the way certain medicines work. Certain other medicines may affect the way
OCALIVA
works. How should I take
OCALIVA
?
SunnyXXOO
in
PBC Foundation
6 years ago
Ocaliva
Hi I have been on
Ocaliva
for 3 weeks and was wondering if anyone felt that it had caused them any low mood and depression. Really not liking this feeling at all. Thanks
Hi I have been on
Ocaliva
for 3 weeks and was wondering if anyone felt that it had caused them any low mood and depression. Really not liking this feeling at all. Thanks
Jayne1863
in
PBC Foundation
6 years ago
High ALP and itching
At my last Dr's appointment he mentioned that we'd discuss adding
Ocaliva
when I see him next month.
At my last Dr's appointment he mentioned that we'd discuss adding
Ocaliva
when I see him next month.
kp1234
in
PBC Foundation
6 years ago
MRE (Magnetic Resonance Elastography) "My Results" So much for trusting Biopsy and Ultrasound. Also... High ferritin may skew MRE score.
Plus, I start
Ocaliva
tomorrow.
Plus, I start
Ocaliva
tomorrow.
Ktltel
in
PBC Foundation
6 years ago
Non-responders
My hepatologist mentioned
Ocaliva
. I am not scheduled to see him until next year. Of course having normal LFT s doesnât mean that you wonât progress but itâs supposed to mean you have better chance of not progressing. Also If you went obeticholic acid are you glad you did? Linda
My hepatologist mentioned
Ocaliva
. I am not scheduled to see him until next year. Of course having normal LFT s doesnât mean that you wonât progress but itâs supposed to mean you have better chance of not progressing. Also If you went obeticholic acid are you glad you did? Linda
Twojer
in
PBC Foundation
6 years ago
I'm venting...... đ
My doctor didn't even know what
Ocaliva
was. She'd heard of it. Since 2016 when I went to a GI for stomach issues. I've had loads of labs, ultrasounds, CT'S an MRCP, an ERCP and my doctors gold standard and definitive PBC staging procedure, a biopsy.
My doctor didn't even know what
Ocaliva
was. She'd heard of it. Since 2016 when I went to a GI for stomach issues. I've had loads of labs, ultrasounds, CT'S an MRCP, an ERCP and my doctors gold standard and definitive PBC staging procedure, a biopsy.
Ktltel
in
PBC Foundation
6 years ago
Question for Ocaliva patients - 5 mg or 10?
A question for my fellow
Ocaliva
people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? Iâve been on 5 mg for almost a year. AST and ALT are close to normal but ALP is very high and my doctor has suggested going to 10.
A question for my fellow
Ocaliva
people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? Iâve been on 5 mg for almost a year. AST and ALT are close to normal but ALP is very high and my doctor has suggested going to 10.
Ottley3
in
PBC Foundation
6 years ago
immunotherapy
Hi everyone, Does anyone takes immunotherapy session for pbc, i am not responce udca .. 2 years past i didnt find a solution and
ocaliva
didnt comfirmed turkey yet...
Hi everyone, Does anyone takes immunotherapy session for pbc, i am not responce udca .. 2 years past i didnt find a solution and
ocaliva
didnt comfirmed turkey yet...
bozcan
in
PBC Foundation
6 years ago
Alternative pbc treatment if canât take Urso or Ocaliva
What can I take for pbc if I canât tolerate Urso or
Ocaliva
?
What can I take for pbc if I canât tolerate Urso or
Ocaliva
?
Gangee
in
PBC Foundation
6 years ago
OCALIVA /Fibroscan Results
Last year my fibroscan result showed my fibrosis to be early stage. Now it is early stage 3 fibrosis. I m disappointed to say the least. Dr is not worried at this point. He said fibroscan results can fluctuate & it might be lower with next scan. He told me to not get depressed about this, especially
Last year my fibroscan result showed my fibrosis to be early stage. Now it is early stage 3 fibrosis. I m disappointed to say the least. Dr is not worried at this point. He said fibroscan results can fluctuate & it might be lower with next scan. He told me to not get depressed about this, especially
gwillistexas
in
PBC Foundation
6 years ago
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