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Introducing Myself
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Simswim
in
Care Community
1 year ago
Medical oncologist and radiology oncologist
Good morning fellow travelers. We are returning to Phoenix Mayo next month for his 3 month visit post RARP. Expecting that husband may be given a treatment plan that includes ADT and radiation, maybe chemo. Gleason 9, bladder neck and seminal vesicular invasion , N1. My question- if you are receiving
Good morning fellow travelers. We are returning to Phoenix Mayo next month for his 3 month visit post RARP. Expecting that husband may be given a treatment plan that includes ADT and radiation, maybe chemo. Gleason 9, bladder neck and seminal vesicular invasion , N1. My question- if you are receiving
Lokicliff
in
Advanced Prostate Cancer
11 months ago
Bleeding on HRT
Have been on continuous combined HRT for about 3 years with no problems. (Had a fibroid removed in 2021).3 months ago the GP recommended I increase oestrogel pumps from x2 to x3 daily as I was complaining of fatigue. 5 days ago I started bleeding with period pain/cramps. GP advised I stop HRT and review
Have been on continuous combined HRT for about 3 years with no problems. (Had a fibroid removed in 2021).3 months ago the GP recommended I increase oestrogel pumps from x2 to x3 daily as I was complaining of fatigue. 5 days ago I started bleeding with period pain/cramps. GP advised I stop HRT and review
Hel66
in
Menopause and Perimenopause Support
11 months ago
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NHS agrees to roll out Olaparib (Lynparza) April 2023.
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
Sailing-Todd
in
Advanced Prostate Cancer
1 year ago
Decipher and Prolaris and Oncotype...oh my.
In reading about the many uses of these genomic tests, it seems that there is a wide consensus/opinions on how they should be used for decision making. Looks like these tests can change how the prostate cancer is treated or not treated. Also, seems to be a wide consensus/opinion to go with ADT or not
In reading about the many uses of these genomic tests, it seems that there is a wide consensus/opinions on how they should be used for decision making. Looks like these tests can change how the prostate cancer is treated or not treated. Also, seems to be a wide consensus/opinion to go with ADT or not
TFU589
in
Prostate Cancer Network
11 months ago
Advice on results please
(All my blood tests were taken fasting and early morning. I stop biotin a week before and all other supplements 5 days before (to be safe!). I take T4 and T3 - currently 100mcg T4 and 20mcg T3). I generally take my last dose of T3 24hrs then 12 hrs before my blood test, but this time it was about
(All my blood tests were taken fasting and early morning. I stop biotin a week before and all other supplements 5 days before (to be safe!). I take T4 and T3 - currently 100mcg T4 and 20mcg T3). I generally take my last dose of T3 24hrs then 12 hrs before my blood test, but this time it was about
MiniMum97
in
Thyroid UK
11 months ago
Orchiectomy
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
woppaginny
in
Advanced Prostate Cancer
11 months ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
11 months ago
Anyone find PVCs are accompanied by a feeling of mucus in your throat?
I had constant PVCs 24/7 for 6-8 months two years ago. At the time I mentioned to my GP and cardiologist that I felt like I had mucus in the left side of my throat, like post-nasal drip, but they both ignored that and didn't give me any kind of explanation. After starting on HRT (I am in perimenopause
I had constant PVCs 24/7 for 6-8 months two years ago. At the time I mentioned to my GP and cardiologist that I felt like I had mucus in the left side of my throat, like post-nasal drip, but they both ignored that and didn't give me any kind of explanation. After starting on HRT (I am in perimenopause
CurlyPretzel
in
Arrhythmia Alliance
11 months ago
ADT or not for favourable intermediate risk with SBRT
Currently on AS, have repeat tp biopsy in October, this is routine for AS.Treatment advice, if I choose is SBRT but no ADT due to CVD risk as I have chads score 2, had 1 previous stroke in Feb 18 with full recovery, diagnosed May 2020 with paroxysmal AF, had 1 episode since so low burden, bisoprolol
Currently on AS, have repeat tp biopsy in October, this is routine for AS.Treatment advice, if I choose is SBRT but no ADT due to CVD risk as I have chads score 2, had 1 previous stroke in Feb 18 with full recovery, diagnosed May 2020 with paroxysmal AF, had 1 episode since so low burden, bisoprolol
pd63
in
Prostate Cancer Network
11 months ago
Feeling like a failure as a women
44 years old, had hysterectomy at 39 kept cervix and ovaries, everything was brilliant fir about 18 months, I was actually living life after suffering with endometriosis and andomyosis for over 20 years. Sex life with husband had increased dramatically, mood swings had gone, no more bleeding and no more
44 years old, had hysterectomy at 39 kept cervix and ovaries, everything was brilliant fir about 18 months, I was actually living life after suffering with endometriosis and andomyosis for over 20 years. Sex life with husband had increased dramatically, mood swings had gone, no more bleeding and no more
Nubian28
in
Endometriosis UK
11 months ago
A little humor?
Everyone might have heard this before but I hadn't. Before ADT I had a six pack, now I have a keg.
Everyone might have heard this before but I hadn't. Before ADT I had a six pack, now I have a keg.
spencoid2
in
Advanced Prostate Cancer
11 months ago
Distortion of Hba1c test with levo
Hi Someone asked me to give further info about my claim that HbA1c tests cannot be relied upon if you are being treated with levothyroxine. I can't find that request now so I'm starting a new thread. The clearest statement is on the American Thyroid Association website.
WHAT ARE THE IMPLICATIONS
Hi Someone asked me to give further info about my claim that HbA1c tests cannot be relied upon if you are being treated with levothyroxine. I can't find that request now so I'm starting a new thread. The clearest statement is on the American Thyroid Association website.
WHAT ARE THE IMPLICATIONS
Pearlteapot
in
Thyroid UK
11 months ago
update and advice on flights
understanding. She has given me the form to get my iron tested but did say it would be difficult to get anybody to agree to an iv iron transfusion but let’s wait and see what my bloods come back as first. She has prescribed me gabapentin, at my request, but think I may try to manage it a bit again first
understanding. She has given me the form to get my iron tested but did say it would be difficult to get anybody to agree to an iv iron transfusion but let’s wait and see what my bloods come back as first. She has prescribed me gabapentin, at my request, but think I may try to manage it a bit again first
Patters56
in
Restless Legs Syndrome
11 months ago
So scared of skipped heart beats.
Hello. This is my first time posting here. I will share a little about myself and skipped best history.I have been having them off and on since my 30's, I am now 66. I have worn a couple of holter monitors and a 7 day king of hearts monitor, results usually show PAC's, PVC's and atrial runs. I have had
Hello. This is my first time posting here. I will share a little about myself and skipped best history.I have been having them off and on since my 30's, I am now 66. I have worn a couple of holter monitors and a 7 day king of hearts monitor, results usually show PAC's, PVC's and atrial runs. I have had
DoveofPeace
in
Arrhythmia Alliance
11 months ago
ADT before Surgery?
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
Lost_Sheep
in
Prostate Cancer Network
11 months ago
Regret going to group therapy. Overwhelmed, another day wasted and money wasted. Why do all my attempts to get help backflip?
So i had a crisis some days ago and texted and old therapist that i loved. Told her it passed but now I'm wondering whether to go to group therapy. She said i deside but maybe it could be beneficial. At the last moment i went. Late. Saw people who just didn't feel right. Much older than me and with different
So i had a crisis some days ago and texted and old therapist that i loved. Told her it passed but now I'm wondering whether to go to group therapy. She said i deside but maybe it could be beneficial. At the last moment i went. Late. Saw people who just didn't feel right. Much older than me and with different
Against_the_current
in
Anxiety and Depression Support
1 year ago
Confused - who can give me ADT injections?
Need some help with this. I traveled out of town to a Proton treatment Center of Excellence, and it was determined that I would start ADT upon returning home. So I got back home, contacted the RO who had originally seen me and suggested the Proton treatment, then set up an appointment to go into the
Need some help with this. I traveled out of town to a Proton treatment Center of Excellence, and it was determined that I would start ADT upon returning home. So I got back home, contacted the RO who had originally seen me and suggested the Proton treatment, then set up an appointment to go into the
Hidden
in
Advanced Prostate Cancer
11 months ago
biologic therapy blood tests to start Adalimumab
Hi after azaoprine caused liver cirrhosis, my consultant said I should start Adalimumab . I have had lots of various bloods taken including TB, HIV. Is this normal? 😳
Hi after azaoprine caused liver cirrhosis, my consultant said I should start Adalimumab . I have had lots of various bloods taken including TB, HIV. Is this normal? 😳
Bucket13
in
Crohn's and Colitis Support
1 year ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
11 months ago
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