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Starting cosadex
The scans were good in spite of a slight rise in PSA pelvis/amdomen showed no progression and bone scan showed no new mets and no progression. He agreed to start casodex and feels I should get a long run with it along with lupron 3 month. The bladder issue is an overactive bladder and taking meds for
The scans were good in spite of a slight rise in PSA pelvis/amdomen showed no progression and bone scan showed no new mets and no progression. He agreed to start casodex and feels I should get a long run with it along with lupron 3 month. The bladder issue is an overactive bladder and taking meds for
Muffin2019
in
Advanced Prostate Cancer
4 years ago
Lupron Depot 3 mo. USA drug shipment shortages?
Got a phone call from my Oncologist's office today. They mentioned a temporary widespread USA shortage of the Lupron Depot 3 mo. drug that I've been getting for years. A little noodling around on the Internet confirmed that this could be the case. https://www.accessdata.fda.gov/scripts/drugshortages
Got a phone call from my Oncologist's office today. They mentioned a temporary widespread USA shortage of the Lupron Depot 3 mo. drug that I've been getting for years. A little noodling around on the Internet confirmed that this could be the case. https://www.accessdata.fda.gov/scripts/drugshortages
ctarleton
in
Advanced Prostate Cancer
4 years ago
I Can Do an Oil Change
My latest blog post, where I ponder the paradox of having a "can do" attitude while on disability leave. In other news, I completed chemo back in June, finished radiation in July, and continue on Atezolizumab, Lupron, Abiraterone, and Xgeva. I'm finally beginning to see glimpses of improving health
My latest blog post, where I ponder the paradox of having a "can do" attitude while on disability leave. In other news, I completed chemo back in June, finished radiation in July, and continue on Atezolizumab, Lupron, Abiraterone, and Xgeva. I'm finally beginning to see glimpses of improving health
tom67inMA
in
Advanced Prostate Cancer
4 years ago
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PSA dropping, yet testosterone rising on Lupron/Zytiga??
I got my first Lupron shot on 5/25/20 and started the Zytiga on 7/3/20. I'm an original Gleason 8 PSA 50 with extracapsular extension. Now with 4 bone mets about 3 years after HDR Brachy, IMRT, and 8 months of ADT. Here are my numbers: 5/22/20 3.41 ----377 6/19/20 .87 ----9.5 7/16/20
I got my first Lupron shot on 5/25/20 and started the Zytiga on 7/3/20. I'm an original Gleason 8 PSA 50 with extracapsular extension. Now with 4 bone mets about 3 years after HDR Brachy, IMRT, and 8 months of ADT. Here are my numbers: 5/22/20 3.41 ----377 6/19/20 .87 ----9.5 7/16/20
V10fanatic
in
Advanced Prostate Cancer
4 years ago
Clinical trials coming soon!
I went through a enormous amount of tests yesterday, My PSA has risen from 4.3 to 17.9 and new bone Mets have appeared , multiple new ones were visable on the ribs and eliac, I believe I am experiencing pain as a result. I am concerned this harpoon trial will not be effective, and further delay a treatment
I went through a enormous amount of tests yesterday, My PSA has risen from 4.3 to 17.9 and new bone Mets have appeared , multiple new ones were visable on the ribs and eliac, I believe I am experiencing pain as a result. I am concerned this harpoon trial will not be effective, and further delay a treatment
Costarica1961
in
Advanced Prostate Cancer
4 years ago
Will Lupron and Casodex affect a PSMA PET Scan?
In 2017, with a PSA of 9 and Gleason of 3+4 on left of prostate, I had HIFU on left side. After 6 months my PSA of 2 became almost 4. In june, with a PSA of 7 I had a biopsy. Out of 12 cores, 8 were 3+4, 1 was 4+3, and one was 4+4, that one was on the right side. I had a CT of abdomen and pelvis last
In 2017, with a PSA of 9 and Gleason of 3+4 on left of prostate, I had HIFU on left side. After 6 months my PSA of 2 became almost 4. In june, with a PSA of 7 I had a biopsy. Out of 12 cores, 8 were 3+4, 1 was 4+3, and one was 4+4, that one was on the right side. I had a CT of abdomen and pelvis last
Smallfall
in
Prostate Cancer Network
4 years ago
Castrate resistant
Is being castrate resistant treatable? If so what drugs do they usually use for treatment? Can some share your story about being castrate resistant. My husbands psa is double each month the Dr is going to try Zytiga along with the Lupron which really is working by itself.
Is being castrate resistant treatable? If so what drugs do they usually use for treatment? Can some share your story about being castrate resistant. My husbands psa is double each month the Dr is going to try Zytiga along with the Lupron which really is working by itself.
Fight11
in
Advanced Prostate Cancer
4 years ago
Lupron
"my" oncologist informed me today, that Lupron is currently on back order and may not be available for up to 1 year. i have been advised the next injection could be Zoladex, instead. looking into Zolodex, per AstraZeneca website: https://www.zoladex.com/breast-cancer/
"my" oncologist informed me today, that Lupron is currently on back order and may not be available for up to 1 year. i have been advised the next injection could be Zoladex, instead. looking into Zolodex, per AstraZeneca website: https://www.zoladex.com/breast-cancer/
hurricaneheather
in
SHARE Metastatic Breast Cancer
4 years ago
Research Study with Niaparib in combination with Abiraterone Acetate and Prednisone
Has anyone been involved with a Research Study with Niaparib in combination with Abiraterone Acetate and Prednisone? I am considering It. It is double blind phase 3 study. I am 77 in 2001 radical prostatectomy. 2009 came back. 2010 trial with Avastin, nearly died. 2010 started Lupron on and off till
Has anyone been involved with a Research Study with Niaparib in combination with Abiraterone Acetate and Prednisone? I am considering It. It is double blind phase 3 study. I am 77 in 2001 radical prostatectomy. 2009 came back. 2010 trial with Avastin, nearly died. 2010 started Lupron on and off till
DER326
in
Advanced Prostate Cancer
4 years ago
Should my advanced micrometastatic treatment be more aggressive
DX Feb 2014, Gleason 9, psa 10, 3tb. All scans have shown no metastatic involvement including pet/ct in April 2020. Treatment 42 fractions proton radiation June 2014 . Lupron 3mos prior and 6mos after proton therapy. Psa 3mos post proton treatment 0.1, 9mos post treatment 6.0. Firmagon started Dec
DX Feb 2014, Gleason 9, psa 10, 3tb. All scans have shown no metastatic involvement including pet/ct in April 2020. Treatment 42 fractions proton radiation June 2014 . Lupron 3mos prior and 6mos after proton therapy. Psa 3mos post proton treatment 0.1, 9mos post treatment 6.0. Firmagon started Dec
Tnjw
in
Advanced Prostate Cancer
4 years ago
Testosterone patches after finishing adt
After being mostly asleep for the 18 months of adt I’m off the drugs since Jan 26 this year. Here it is august and my testosterone level is a big 39. I’m pretty low on energy still. Writing to see if anyone has been prescribed patches for testosterone and did it affect the psa? I’m starting them this
After being mostly asleep for the 18 months of adt I’m off the drugs since Jan 26 this year. Here it is august and my testosterone level is a big 39. I’m pretty low on energy still. Writing to see if anyone has been prescribed patches for testosterone and did it affect the psa? I’m starting them this
Hidden
in
Advanced Prostate Cancer
4 years ago
Xtandi Dosage
Stage 4 w/met. On Lupron since 10/19 and a 6 month stint cut short on Zytiga with very minor side effects. Now on Xtandi for 3 weeks and much more brain fog, lack of concentration, hot flashes, fatigue and emotional ups and downs. I noticed similar side effects previously but now seem much more pronounced
Stage 4 w/met. On Lupron since 10/19 and a 6 month stint cut short on Zytiga with very minor side effects. Now on Xtandi for 3 weeks and much more brain fog, lack of concentration, hot flashes, fatigue and emotional ups and downs. I noticed similar side effects previously but now seem much more pronounced
Zzzgott
in
Advanced Prostate Cancer
4 years ago
Lupron advice
I am considering going on Lupron for 3 months to see if it will help me conceive. I have stage 3 endo and adenomyosis. I’ve had excision surgery almost a year ago. Has anyone done the same and had success? Also can a GP prescribe this for me or would I need to go back to a gynaecologist? I’m based in
I am considering going on Lupron for 3 months to see if it will help me conceive. I have stage 3 endo and adenomyosis. I’ve had excision surgery almost a year ago. Has anyone done the same and had success? Also can a GP prescribe this for me or would I need to go back to a gynaecologist? I’m based in
Faith-89
in
Endometriosis UK
4 years ago
What are the odds for real
Dx stage 3 w/ extraprostatic extension several areas PSA 20. Positive for ATM gene. My 50yo husband had prostatectomy 12/10/19 (g7, tertiary 5 at positive margins and aggressive cancer). Stage 4 now. First PSA at 3 months was 1.44–next few PSAs DT of less than 3 months. Axumin pet showed cancer in several
Dx stage 3 w/ extraprostatic extension several areas PSA 20. Positive for ATM gene. My 50yo husband had prostatectomy 12/10/19 (g7, tertiary 5 at positive margins and aggressive cancer). Stage 4 now. First PSA at 3 months was 1.44–next few PSAs DT of less than 3 months. Axumin pet showed cancer in several
Jessie5
in
Advanced Prostate Cancer
4 years ago
The Difficult Question most all of us will face.
Hello All. i wanted to give an update since my last Chemo adventure, and discuss where I am now. If you were following (and if not please look through my posts as you will to get the whole story), I last reported after my 6th Docetaxel session. My PSA was still rising. 3.02 when I started to 6.98 at
Hello All. i wanted to give an update since my last Chemo adventure, and discuss where I am now. If you were following (and if not please look through my posts as you will to get the whole story), I last reported after my 6th Docetaxel session. My PSA was still rising. 3.02 when I started to 6.98 at
dpowellnt
in
Advanced Prostate Cancer
4 years ago
How to cope?
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
Hidden
in
Endometriosis UK
4 years ago
PSA question
I was diagnosed Stage 4 in February 2019 with PSA of 368. Started Lupron in March and Zytiga in May of 2019. I've seen a steady PSA decrease over the last year, however my last 3 PSA readings have held relatively steady at 3.68, 2.84 and 2.74. Can I assume that I have reached my nadir? I was hoping
I was diagnosed Stage 4 in February 2019 with PSA of 368. Started Lupron in March and Zytiga in May of 2019. I've seen a steady PSA decrease over the last year, however my last 3 PSA readings have held relatively steady at 3.68, 2.84 and 2.74. Can I assume that I have reached my nadir? I was hoping
Kentucky1
in
Advanced Prostate Cancer
4 years ago
Opinions desired
Hello I’m Scott and I have had prostate advanced stage four for about four years. Started with removal of prostate but it was in my lymph nodes(2). So started Lupron and 36 rounds of radiation. My psa was about a 6.Two year and ago I started a trial. They gave me zytega and apoluetamide. My psa was now
Hello I’m Scott and I have had prostate advanced stage four for about four years. Started with removal of prostate but it was in my lymph nodes(2). So started Lupron and 36 rounds of radiation. My psa was about a 6.Two year and ago I started a trial. They gave me zytega and apoluetamide. My psa was now
spm58
in
Advanced Prostate Cancer
4 years ago
Low Lymphocytes while on Zytiga-Prednisolone, and Lupron
Only abnormality on my blood work has been lowered absolute lymphocytes. in 18th month of treatment and done Sept 1st. Anyone know how serious this is? Has anyone experienced this, too?
Only abnormality on my blood work has been lowered absolute lymphocytes. in 18th month of treatment and done Sept 1st. Anyone know how serious this is? Has anyone experienced this, too?
TEBozo
in
Advanced Prostate Cancer
4 years ago
Different ADT medicine ?
Instead of Fermagon or Lupron there is a drug that only stays in the system for a month instead of six months. This allows to go on vacation as drugs are out of the body. Just finished my fourth treatment at University of Heidelberg for AC-225 and LU-177. After only three weeks PSA is .2. Planning on
Instead of Fermagon or Lupron there is a drug that only stays in the system for a month instead of six months. This allows to go on vacation as drugs are out of the body. Just finished my fourth treatment at University of Heidelberg for AC-225 and LU-177. After only three weeks PSA is .2. Planning on
lewicki
in
Advanced Prostate Cancer
4 years ago
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