Last week was my guy's 76th birthday. He's out on a 30-mile bike ride in 90 degree humidity. He left a couple hours ago, so when I saw his cell number, a tiny part of me thought: "Uh oh, collapsed on the road." Not at all. He wanted to know whether to pick up blueberries at a farmstand!
I'm posting this A: because I'm proud of him, and B. I want to be useful on this board and show what somebody with his current stats can do. I know it's not typical, some of it is luck, and it's just today, and I could be posting a desperate question next week. But this particular dude with a lot of miles on him, a whole lot of treatment, 10 docetaxel infusions that ended about seven weeks ago, plus Lupron, is out there biking his brains out. I guess I'd better make a blueberry pie, right?
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spouse21
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You bet! I just ate a slice of blueberry pie last night!
He is an amazing .. riding 30 miles during chemo ? my wife says that’s bad ass.. This particular “Dude” is one tuff hombre. I’m pulling for him to do well.🏋🏻♂️💪
Good for your guy’s physical abilities under such conditions , you have to admire his determination. Plus he’s very lucky to have such a strong supportive gal such as yourself by his side.
Your post just lifted my spirits up. I was very depressed thinking about starting ADT since my psa has risen to 1.23 two das ago. Thanks very much for posting it.
Thank you for the response... what I am interested in finding out is how men who are on ADT ( or have been in the past) and are also heavy into weights made out during their time on ADT.... I am soon to start ADT and worried considerably about maintaining some measure of strength and muscle mass.... very interested in others experiences with ADT and Bodybuilding... Best of luck to you with your radiotherapy....
Have you been or are you on Hormones while you go through your treatment??...... It's the loss of testosterone that I am wondering about...... I FULLY understand the fatigue that can accompany Chemo and salute you for maintaining throughout the process..... so much of this IS Mental....not letting it drag you down to the point that you stop trying....
Happy for you, happy for him, many on this forum generally say whatever exercise you can do while in treatment or after plays a positive mental and physical role in living with this disease.
After surgery and SRT failed I did 18 months of Lupron, six cycles of taxotere and 25 more radiation treatments. Throughout that period I kept up my normal activities- played basketball, swam, went skiing, hiked in the mountains, lifted weights...
I felt better emotionally and I think physically, my medical team said it was better than anything they could do for me from a pharmacy perspective.
Thanks for your positive post! I’ll share it with my husband, who sometimes looks at the glass as half empty.
He’s 66, diagnosed with Stage 4 PC (Gleason 4+3=7) 11 years ago. Been through surgery, radiation, chemo, now on Lupron, getting ready to start Zytiga as soon as it arrives...
This morning finished the plumbing for the ice maker in the new fridge. Waiting for stain to dry on the 5x7 foot outdoor shower he’s building so he can apply polyurethane. While that’s drying he’ll install the slide in the kids for the built last year...... This from a man with mCRPC!!!
Like you, we know it won’t likely be this good forever, but we’re darned grateful for every day on this side of the dirt!
I'm the 30-mile dude who is the husband of spouse21 and want to say she is the inspiration for my trying to stay as healthy as possible in the battle we are all fighting. She has been unfailingly supportive, patient, loving and longsuffering throughout. Always a glass half full person, a wonderful balance to my empty glass attitude. I could never have gotten this far without her. As I'm sure you all know you need loving and supportive allies to deal with, to survive what cancer throws at you and I have been extraordinary lucky in having her in the fight with me. We are both grateful for the quality of information and empathy all you folks on this board have to offer and want to thank you all.
Well, indeed you better get that blueberry pie made my dear, as it is an administration of love, and we could all enjoy more love if it was possible.
I am 73 and have been cycling 200km a week average since 2007, before diagnosis of Pca in 2009, and have had most treatments and drugs that are available, including chemo.
I'm now on another round with Lu177.
But last week I cycled 40km across town at average speed of 24.0kph, and that's good for my age and after being starved of testosterone since 2010. Chemo had the worst last side effects, and it didn't work.
Its a grey cold winter day here, raining, and I must spend time in my crafting shed. Alas, I have nobody in my kitchen making a blueberry pie.
Yes, he did/does--too many mets to count. However, as of his most recent scan in June 2020, after the end of chemo, the mets were "reasonably stable." Info is on the profile. He developed mets between the end of his 3-year Lupron treatment and during four months of Zytiga, which failed. Then he went on chemo--10 infusions.
Spouse 21 & moguzzi, you two are a beautiful example of how spouses can support each other when they choose joy and choose to love each other. You are an inspiration to us all and remind us of what we are fighting to live for!
Wow- that’s incredible to read. Thanks for taking the time to share and boost our outlook on what can be accomplished.
Don’t forget the ice cream, I have read somewhere that cancer hates heat, the biking has a good result ,it heats up the body to help it fight the monster,at least I believe it., stage 4 here and 4 years into the battle. I work out in the shop every day in the high 80s with sweat rolling off every part of my body, last scans on Tuesday showed that a slight decrease in the cancers. Fighting the monster 🙏🙏🙏😡
I hope that's true I have been bicycling in the heat wave we have here. My ride last Sat I weighed myself before ride 159.1, after ride 153.8. That's a lot of sweat/heat/water loss considering the intake of water and food during the ride.
I'm Geeter's spouse, Lynne. I'm wondering what is your husbands weight? We are now faced with the option of cemo. He is 116 lbs and can't seem to gain anymore. We have been at this battle for a little over two years and have gone through most everything including Provenge.
The oncologist feels that G will have a hard time with the Docetaxel because of his weight. He is starting laser radiation on Monday for three weeks to help him feel better. We are at a cross roads now and he is tired. It's not a matter of giving up, it's a matter of living and dying with integrity.
Gosh, you and your husband have been on a rough road in such a short amount of time. That's hard. I'm not sure our guys' situations are comparable. (See profile above) How old is your fella? Mine is 76. From the get-go in 2014 he's been able to do a fair amount of physical activity--hiking, biking, weight lifting, long walks. He started out weighing about 140-145 at 5'7" or thereabouts. He was slim but not underweight. Lupron and some of the other drugs (Zytiga & Doxetaxel) gave him bloat, so he got up to around 155 pounds. Now I think he's around 145 two months after finishing Docetaxel.
116 pounds sounds concerning, so I don't know if my husband's situation can be helpful to yours. Is your oncologist advising against Docetaxel? Even in "good" PCa physical condition
days-3-6 after the chemo infusion knocked my guy pretty flat. He didn't eat much on those days--didn't vomit but felt queasy and didn't eat much. But he had some weight to spare. Chemo does help with pain so that goes on the "pro" side of the ledger. And the chemo stabilized his mets. We shall see. Your guy seems to have a different kind of beast. Maybe someone else who sees this thread will offer some insights. I'm sorry I can't be more helpful. It's awful seeing our guys go through this. Keep posting, Geter.
Thanks, Brackenridge. However, I have to add a non-prostate related addendum, which all the bicyclists on this thread will appreciate: moguzzi is currently recovering from a broken collarbone he sustained when he hit a curb a week ago and went over! So no more 30-mile bike rides for at least 6-7 weeks. He's grateful he only broke the collarbone given the porous bones so many advanced PCa fellas have. He's been taking Xgeva for a year, thank goodness. His spirit is more bruised than his bones.
Wow that is amazing & so inspirational. Did he have radiation treatment at all? My 70 year old husband can’t have chemo because of last stage kidney disease. Was his stage 4 also in bones & lymph nodes?
Hi there, Brodie. I just updated our profile to report on latest monthly blood work, which shows continued stability (though PSA wasn't taken this month). If you look at the profile, you'll see the history of all the treatments starting in late 2014 when my husband was diagnosed with Gleason 9 high risk prostate cancer with no visible mets. (Couldn't have MRI due to pacemaker--all imaging so far has been CT and bone scans. He couldn't have RALP due to abdominal surgery 6 mos. prior to dx. More sophisticated imaging nowadays might have identified mets not seen on CT and bone scans in 2014.)
At dx, my husband went on Lupron a few months ahead of radiation and stayed on Lupron for three years. After a year off Lupron, PSA went up, so went on Zytiga, which quickly failed after a few months when many mets were visible. Oncologist scheduled him for lifelong Lupron + indeterminate Xgeva treatment (bone strengthener) and 10 chemo treatments. This is considered "late stage" chemo treatment, not the chemo some newly diagnosed men get if imaging shows mets at dx. Month-to-month, my husband has been stable for nearly two years, which isn't typical for many men who get mets later on. We hope this stability continues, but just in case, he kept his chemo chest port in!
I hope everything goes well for you and your fella. To save yourself plowing through everyone who's received chemo, you might want to track men who, in the last five years, got early chemo because they had visible mets at diagnosis, so that you compare apples to apples. Otherwise you'll go crazy following everyone on HU who got chemo at different stages. I've even narrowed down my own research to guys who got diagnosed around 2014 to see how they're doing since that time. This gives me some "me time" life. I love the guys on Health Unlocked, and try to respond if I have something helpful to add, but as Pee Wee Herman used to say: "I don't want to marry them."
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
He's grateful he only broke the collarbone given the porous bones so many advanced PCa fellas have. He's been taking Xgeva for a year, thank goodness. His spirit is more bruised than his bones. 
Scared for the future
One year and change... and change... and change 
Short Documentary about Death with Dignity
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Spam me with any stories of hope or guidance for my Dad - Gleason 10, bone mets in spine 
