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Update on 8/4 post from alperk
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
alperk
in
Advanced Prostate Cancer
11 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
Shorehousejam
in
Advanced Prostate Cancer
11 months ago
After APCa treatment ends
A lot of folks will see their APCa treatment come to an end, hopefully due to good PSA levels and scans. But the end of treatment is the beginning of living with no net under you, with periodic checkups and scans, with emotional stress especially since LT SE's may continue, change or crop-up, and last
A lot of folks will see their APCa treatment come to an end, hopefully due to good PSA levels and scans. But the end of treatment is the beginning of living with no net under you, with periodic checkups and scans, with emotional stress especially since LT SE's may continue, change or crop-up, and last
Derf4223
in
Advanced Prostate Cancer
11 months ago
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Now my cancer is now under control, my wife no longer wants to be with me.
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
Doseydoe
in
Advanced Prostate Cancer
11 months ago
Battling!
Looking for some guidance. This group has been really helpful in shedding some light on my health issues. My story - 3 years ago was diagnosed with breast cancer right in the middle of the pandemic. 8 rounds of chemo (got Covid in round 4), surgery and lastly radiotherapy taking me to May 2021. Got
Looking for some guidance. This group has been really helpful in shedding some light on my health issues. My story - 3 years ago was diagnosed with breast cancer right in the middle of the pandemic. 8 rounds of chemo (got Covid in round 4), surgery and lastly radiotherapy taking me to May 2021. Got
Tiffin76
in
Thyroid UK
11 months ago
radiation whack-a-mole?
My stage IV prostate cancer has gone castrate resistant ... I've been taking androgen blockers (Eligard injections 90 days plus daily 1gm of abiraterone) for five years. The primary treatment in summer 2018 was external beam radiation. In 2021 I had cyberknife radiation to new lesions in spinal vertebrae
My stage IV prostate cancer has gone castrate resistant ... I've been taking androgen blockers (Eligard injections 90 days plus daily 1gm of abiraterone) for five years. The primary treatment in summer 2018 was external beam radiation. In 2021 I had cyberknife radiation to new lesions in spinal vertebrae
Johnkelsey
in
Advanced Prostate Cancer
11 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
11 months ago
Xtandi and Orgovyx
Hey all - my full bio is in my profile. My question is pertaining to joint pain. I”m on Orgovyx and Xtandi of which things started to decline once we added Xtandi to the mix. My joints seem very arthritic.. From my feet to my hands. Getting out of bed is tough, but once I get going, the pain seems to
Hey all - my full bio is in my profile. My question is pertaining to joint pain. I”m on Orgovyx and Xtandi of which things started to decline once we added Xtandi to the mix. My joints seem very arthritic.. From my feet to my hands. Getting out of bed is tough, but once I get going, the pain seems to
Vp7174
in
Advanced Prostate Cancer
11 months ago
pBAT update after two cycles.
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
KocoPr
in
Fight Prostate Cancer
11 months ago
R A and PSA medication
Has anyone been prescribed Infliximab ? Has it been beneficial ?
Has anyone been prescribed Infliximab ? Has it been beneficial ?
Fedupofhaliax
in
NRAS
11 months ago
Hi again, re: Cannabis/THC use for PC
The answers I am getting are more for pain relief. Have there been any studies linking cannabis/THC to curative effects for PC or lowering PSA? Or is it just used for pain relief? Any studies on proven benefits beyond pain relief? Thanks so much. Ran across this study: ncbi.nlm.nih.gov/pmc
The answers I am getting are more for pain relief. Have there been any studies linking cannabis/THC to curative effects for PC or lowering PSA? Or is it just used for pain relief? Any studies on proven benefits beyond pain relief? Thanks so much. Ran across this study: ncbi.nlm.nih.gov/pmc
Cactus297
in
Advanced Prostate Cancer
11 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
11 months ago
THC/ Cannabis having Curative Effects for PC???
Ran across this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7503992/ But is there any proof that THC helps to cure PC or lower PSA? I believe it’s used for pain relief, but are its benefits been proven beyond that? Thank you very much.
Ran across this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7503992/ But is there any proof that THC helps to cure PC or lower PSA? I believe it’s used for pain relief, but are its benefits been proven beyond that? Thank you very much.
Cactus297
in
Advanced Prostate Cancer
11 months ago
ADT for a year?
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Photographerhere
in
Prostate Cancer Network
11 months ago
Arthritis podcast season 2 launches
Hi everyone, We wanted to let you all know that the charity Arthritis Action has launched the first episode of Season 2 of their podcast. The first episode, 'You have arthritis, so what's next?' focuses on getting an arthritis diagnosis. Upcoming episodes will cover a huge range of topics to help
Hi everyone, We wanted to let you all know that the charity Arthritis Action has launched the first episode of Season 2 of their podcast. The first episode, 'You have arthritis, so what's next?' focuses on getting an arthritis diagnosis. Upcoming episodes will cover a huge range of topics to help
arthritis_action
Partner
in
Arthritis Action
1 year ago
After BCR and PSA Return: An Update on My Treatment Path
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
PGDuan
in
Advanced Prostate Cancer
11 months ago
Osteoarthritis in both knees
Hello, Has anyone trued Plasma injections (PRP)? Did they work and are they available on the NHS in the UK? Many thanks!
Hello, Has anyone trued Plasma injections (PRP)? Did they work and are they available on the NHS in the UK? Many thanks!
fluffmonkey
in
NRAS
1 year ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
11 months ago
Private Specialist recommendations for the North West (UK)
Does anyone have a recommendation for a private specialist for arthritis? My mum is in terrible pain with her hips and the NHS wait is at least a year. We live in Manchester UK Thanks
Does anyone have a recommendation for a private specialist for arthritis? My mum is in terrible pain with her hips and the NHS wait is at least a year. We live in Manchester UK Thanks
Bobbydoodle
in
LUPUS UK
1 year ago
Preparing for my Urologist Appointment re Increased PSA -- Including possible biopsy questions
I am preparing questions for my upcoming urologist appointment to discuss increased PSA. Any guidance that you veterans of these battles care to give would be appreciated. My total PSA is now 5.2 with 18.5% free. Eight months ago my PSA was 4.4. (21 months before that, 3.9.) An mpMRI six months ago
I am preparing questions for my upcoming urologist appointment to discuss increased PSA. Any guidance that you veterans of these battles care to give would be appreciated. My total PSA is now 5.2 with 18.5% free. Eight months ago my PSA was 4.4. (21 months before that, 3.9.) An mpMRI six months ago
boomerguy
in
Prostate Cancer Network
11 months ago
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