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Calling UK tocilizumab or epipen users: How do you dispose of your self-injector? Who arranges it?
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets?
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Yamaha1871
in
ITP Support Association
3 years ago
More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
SARose
in
PMRGCAuk
3 years ago
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Small cell lung cancer
Hi everyone, My dad was diagnosed with 3b SCLC in December, with a small tumour in the lung and 1 lymph node involvement. No mets. He has responded fabulously well to Chemo and radio. Having had his first scan following treatment, his tumour can no longer be seen and his node is now normal size. Please
Hi everyone, My dad was diagnosed with 3b SCLC in December, with a small tumour in the lung and 1 lymph node involvement. No mets. He has responded fabulously well to Chemo and radio. Having had his first scan following treatment, his tumour can no longer be seen and his node is now normal size. Please
JPotter42
in
The Roy Castle Lung Cancer Foundation
3 years ago
Lobectomy or not for mild/moderate COPD sufferer
Hi all, I'm actually asking this for my uncle as I don't know if he will ask and I feel we need help and support. He has lung cancer - discovered whilst investigating for potential prostate-cancer secondary tumours. A primary lung tumour was removed but the surgeon has said that gold standard treatment
Hi all, I'm actually asking this for my uncle as I don't know if he will ask and I feel we need help and support. He has lung cancer - discovered whilst investigating for potential prostate-cancer secondary tumours. A primary lung tumour was removed but the surgeon has said that gold standard treatment
msmono
in
Lung Conditions Community Forum
3 years ago
Targeted therapy pralsetinib safely effectively treats lung and thyroid cancers with RET alterations
Results from the multi-cohort Phase I/II ARROW clinical trial, conducted by The University of Texas MD Anderson Cancer Center researchers, showed that a once-daily dose of pralsetinib, a highly selective RET inhibitor, was safe and effective in treating patients with advanced RET fusion-positive non-small
Results from the multi-cohort Phase I/II ARROW clinical trial, conducted by The University of Texas MD Anderson Cancer Center researchers, showed that a once-daily dose of pralsetinib, a highly selective RET inhibitor, was safe and effective in treating patients with advanced RET fusion-positive non-small
2greys
in
Lung Conditions Community Forum
3 years ago
Another HSCT question….
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
krikri1989ho
in
CLL Support
3 years ago
Hello
Good evening , I rarely post here but I do read the posts and occasionally make a comment . What brings me here today is that for a few weeks I’ve been quite poorly 10 days ago I went to the dr after running a very high temp , he put me on strong antibiotics for two weeks after a few days I started to
Good evening , I rarely post here but I do read the posts and occasionally make a comment . What brings me here today is that for a few weeks I’ve been quite poorly 10 days ago I went to the dr after running a very high temp , he put me on strong antibiotics for two weeks after a few days I started to
cales
in
Lung Conditions Community Forum
3 years ago
Newly approved drug effective against lung cancer caused by genetic mutation
The new drug sotorasib reduces tumor size and shows promise in improving survival among patients with lung tumors caused by a specific DNA mutation, according to results of a global phase 2 clinical trial. The drug is designed to shut down the effects of the mutation, which is found in about 13% of patients
The new drug sotorasib reduces tumor size and shows promise in improving survival among patients with lung tumors caused by a specific DNA mutation, according to results of a global phase 2 clinical trial. The drug is designed to shut down the effects of the mutation, which is found in about 13% of patients
2greys
in
Lung Conditions Community Forum
3 years ago
Long term tocilizumab use
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
christine2715
in
PMRGCAuk
3 years ago
Husband Update
It seems like so long since I’ve updated, but it’s been only a few months. Husband is doing… ok. We’ve just received news that they've found a donor for his stem cell transplant and is scheduled to be admitted at the end of next month. It’s all become very, very real. The kids and I won’t be able
It seems like so long since I’ve updated, but it’s been only a few months. Husband is doing… ok. We’ve just received news that they've found a donor for his stem cell transplant and is scheduled to be admitted at the end of next month. It’s all become very, very real. The kids and I won’t be able
TM76
in
MPN Voice
3 years ago
Two new drug approvals (for patients with EGFR Exon 20 insertion and patients with KRAS G12C mutation)
Hi everyone, I know Denzie posted about at least one of the new drug approvals fbut I figured it can't hurt to post about the new approvals again so people are aware of them. With both approvals, I wanted to share why it's important to know what your biomarker test results. Sometimes healthcare professionals
Hi everyone, I know Denzie posted about at least one of the new drug approvals fbut I figured it can't hurt to post about the new approvals again so people are aware of them. With both approvals, I wanted to share why it's important to know what your biomarker test results. Sometimes healthcare professionals
Miranda_GO2
Partner
in
Lung Cancer Support
3 years ago
Research suggests BMI may not be best obesity indicator to assess risk for lung cancer.
New research published in the Journal of Thoracic Oncology (JTO) suggests the method used to calculate how obesity is measured may affect whether it is considered a risk factor for lung cancer. The JTO is an official journal of the International Association for the Study of Lung Cancer. Although the
New research published in the Journal of Thoracic Oncology (JTO) suggests the method used to calculate how obesity is measured may affect whether it is considered a risk factor for lung cancer. The JTO is an official journal of the International Association for the Study of Lung Cancer. Although the
2greys
in
Lung Conditions Community Forum
3 years ago
Pleased to report the lump has left the building...👍👍
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Just dont know what to do
Hi sorry to post again as i havent been diognosed with lung cancer at the moment even tho as you can see from my previouse post wat tests ive already had. But because i am petrifeid of having a lung biopsy which tbe lung team advised i have done but i told them i dont think i cant go thro with
Hi sorry to post again as i havent been diognosed with lung cancer at the moment even tho as you can see from my previouse post wat tests ive already had. But because i am petrifeid of having a lung biopsy which tbe lung team advised i have done but i told them i dont think i cant go thro with
pat3003
in
Lung Conditions Community Forum
3 years ago
More on Covid vaccines and the inmunocompromised.
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Iupiter
in
CLL Support
3 years ago
Fatigue and very hot flushes
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
AnniesRyder5
in
PMRGCAuk
3 years ago
Is it common for CLL patients to undergo hematopoietic stem cell transplantation (HSCT) as treatment?
Hi guys! My husband was looking around for information and he found about this, we were wondering if this is a common treatment? Thank you very much!
Hi guys! My husband was looking around for information and he found about this, we were wondering if this is a common treatment? Thank you very much!
krikri1989ho
in
CLL Support
3 years ago
What a. To. Do. The past. Year. I. Not a clue.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Tricity125
in
Lung Conditions Community Forum
3 years ago
Vaccine efficacy for COPD and immune compromised people
Hi everyone. Have any of you had any discussions with your medical team with respect to the efficacy of the Covid vaccines for people with compromised immune systems and COPD. I have COPD as well as having a stem cell transplant due to multiple myeloma. I have been in remission for 8 years but it is
Hi everyone. Have any of you had any discussions with your medical team with respect to the efficacy of the Covid vaccines for people with compromised immune systems and COPD. I have COPD as well as having a stem cell transplant due to multiple myeloma. I have been in remission for 8 years but it is
macnsyl
in
Lung Conditions Community Forum
3 years ago
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