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theoretical question: lung transplant
Sorry if this question is of the "out there" type. If an asthmatic recipient receives a lung transplant from a non-asthmatic donor, would the recipient asthma be "cured"? I've read about the reciprocal phenomenon -- one gets asthma if the donor was an asthmatic. I am guessing compared living a lung transplant
Sorry if this question is of the "out there" type. If an asthmatic recipient receives a lung transplant from a non-asthmatic donor, would the recipient asthma be "cured"? I've read about the reciprocal phenomenon -- one gets asthma if the donor was an asthmatic. I am guessing compared living a lung transplant
runcyclexcski
in
Asthma Community Forum
3 years ago
Stage 4 Lung - Chemo side effect
Chemotherapy for stage 4 lung cancer and productive cough. Following the failure of my immunotherapy treatment after less than 6 months I have been started on Carbo/Pemetrexed chemotherapy. Following my first treatment I seem to have developed the production of phlegm. it is very limited but if I
Chemotherapy for stage 4 lung cancer and productive cough. Following the failure of my immunotherapy treatment after less than 6 months I have been started on Carbo/Pemetrexed chemotherapy. Following my first treatment I seem to have developed the production of phlegm. it is very limited but if I
sally70
in
The Roy Castle Lung Cancer Foundation
3 years ago
Steroid sparers
I posted a few weeks ago to ask if anyone had been given Mycophenolate so Tocilizumab could be withdrawn. I only got a couple of replies so I guess not many have. I gave them a try and felt as though I was back to pre diagnosis. Rheumatologist said to try again more slowly. Same again. Not for me. I
I posted a few weeks ago to ask if anyone had been given Mycophenolate so Tocilizumab could be withdrawn. I only got a couple of replies so I guess not many have. I gave them a try and felt as though I was back to pre diagnosis. Rheumatologist said to try again more slowly. Same again. Not for me. I
marantha
in
PMRGCAuk
3 years ago
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Introducing myself.
My name is Linden and my husband Mike who is the Love of my Life was diagnosed with Stage 4 lung cancer with a spinal secondary in February 2019. He has had wonderful treatment via the NHS including chemotherapy, immunotherapy and spinal surgery just over a year ago. Mike is doing very well and we
My name is Linden and my husband Mike who is the Love of my Life was diagnosed with Stage 4 lung cancer with a spinal secondary in February 2019. He has had wonderful treatment via the NHS including chemotherapy, immunotherapy and spinal surgery just over a year ago. Mike is doing very well and we
Loveofmylife
in
The Roy Castle Lung Cancer Foundation
3 years ago
Sacrum tumour mets from lung cancer
I have just been diagnosed with mets in lower spine. Has anyone had treatment for this and what it involves. Many thanks
I have just been diagnosed with mets in lower spine. Has anyone had treatment for this and what it involves. Many thanks
Martinet
in
The Roy Castle Lung Cancer Foundation
3 years ago
Eleven years. Who’d have thought it possible.
Today marks the end of year eleven and the first day of year 12. Hard to believe I’ve traveled around the sun 11 times with this cancer. This is a copy and paste of something I wrote last year. I couldn’t say it any better. ———————————————————- Much to my amazement, and that of my family, friends
Today marks the end of year eleven and the first day of year 12. Hard to believe I’ve traveled around the sun 11 times with this cancer. This is a copy and paste of something I wrote last year. I couldn’t say it any better. ———————————————————- Much to my amazement, and that of my family, friends
Denzie
Volunteer
in
Lung Cancer Support
3 years ago
Orgovyx after surgery?
Husband on orgovyx for 3 months. Finished 28 proton treatments 3 weeks ago. Had lung surgery to remove unrelated cancerous spot. Dr. wants him off orgovyx 2 more weeks. Thoughts? Husband doesn’t want testosterone to rise.
Husband on orgovyx for 3 months. Finished 28 proton treatments 3 weeks ago. Had lung surgery to remove unrelated cancerous spot. Dr. wants him off orgovyx 2 more weeks. Thoughts? Husband doesn’t want testosterone to rise.
Hawaii2021
in
Advanced Prostate Cancer
3 years ago
Advice appreciated.
Hi everyone. I was in intensive care for 10 days in Feb after falling suddenly ill, on a ventilator, a month in hospital in total with another month of acute care at home visits. Had horrific hallucinations and a pretty traumatic time. Have quite extensive nerve damage in my torso from lung surgery so
Hi everyone. I was in intensive care for 10 days in Feb after falling suddenly ill, on a ventilator, a month in hospital in total with another month of acute care at home visits. Had horrific hallucinations and a pretty traumatic time. Have quite extensive nerve damage in my torso from lung surgery so
Skinnerj190
in
ICUsteps
3 years ago
New support sessions starting soon
Hello all Our newest support sessions start soon: Managing During Treatment 12/10 for 6 sessions once a fortnight. Genetic mutation driven lung cancers - 29/10/21 for 8 sessions once a fortnight. These support sessions are run by facilitators, with groups of 8 people with similar experiences. They provide
Hello all Our newest support sessions start soon: Managing During Treatment 12/10 for 6 sessions once a fortnight. Genetic mutation driven lung cancers - 29/10/21 for 8 sessions once a fortnight. These support sessions are run by facilitators, with groups of 8 people with similar experiences. They provide
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
3 years ago
NHS app health record says my GCA is minor!
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
Broseley
in
PMRGCAuk
3 years ago
Pfizer Pill
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
Thelmarina
in
PMRGCAuk
3 years ago
Bronchiectasis, disease progression and lifestyle changes
Good afternoon all, Apologies once again for the radio silence after my last post back in June when you all very kindly gave me some sage advice on whether or not I should continue working full time. After some considerable soul searching, I decided to take the option of stepping back from my current
Good afternoon all, Apologies once again for the radio silence after my last post back in June when you all very kindly gave me some sage advice on whether or not I should continue working full time. After some considerable soul searching, I decided to take the option of stepping back from my current
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
Lung cancer
Hi everyone sorry it’s been such a long time I’ve been on , my mum hasn’t been too well, I’m on to ask a question if anyone knows, my mum got diagnosed with lung cancer on April had 2 weeks radiotherapy 3 times a day , got out of hospital and was fine , now she’s had a sever wheeze and cough that won
Hi everyone sorry it’s been such a long time I’ve been on , my mum hasn’t been too well, I’m on to ask a question if anyone knows, my mum got diagnosed with lung cancer on April had 2 weeks radiotherapy 3 times a day , got out of hospital and was fine , now she’s had a sever wheeze and cough that won
Elsy12345
in
Lung Conditions Community Forum
3 years ago
After being told last night they have concerns re my heart which needs sorting before lung transplant this has cheered me up…🤪
Smart landlord!
Smart landlord!
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Lung transplant assessment
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
mary1956
in
Lung Conditions Community Forum
3 years ago
Do you want to join our new virtual support sessions?
Hello all In the last year we have expanded our virtual support services. As part of our Lung Cancer Connect services we are providing sessions for groups of people including "Managing during treatment" and "Caring for someone with lung cancer" as well as sessions for people with genetic mutation cancers
Hello all In the last year we have expanded our virtual support services. As part of our Lung Cancer Connect services we are providing sessions for groups of people including "Managing during treatment" and "Caring for someone with lung cancer" as well as sessions for people with genetic mutation cancers
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
3 years ago
A Measure of Health with SLE Lupus
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
UKMoss
in
LUPUS UK
3 years ago
INF+ ATO Study, "A knockout combination for MPN stem cells"
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
EPguy
in
MPN Voice
3 years ago
Alex TLC Digital Community Weekend
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
Hidden
Partner
in
Leukodystrophy Support
3 years ago
Newly diagnosed
Hello I have just been diagnosed with
non
small
cell
adeno
carcinoma
.. right
lung
.. I have a biopsy set for Monday and a meeting with the oncologist NHS on the 29th July. this seems like a long time to wait ??
Hello I have just been diagnosed with
non
small
cell
adeno
carcinoma
.. right
lung
.. I have a biopsy set for Monday and a meeting with the oncologist NHS on the 29th July. this seems like a long time to wait ??
purpleorchid123
in
The Roy Castle Lung Cancer Foundation
3 years ago
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