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I have had 3 ops waiting for 1 year now for the 4th. Affected now 90% of the time with pain, fatigue and nausea. Barely sleep and the tramadol has lost its affect. Self employed but can barely work. Any advice? I wrote to my MP a few days ago I am so desperate. Doctors are flat out but no resources.
I have had 3 ops waiting for 1 year now for the 4th. Affected now 90% of the time with pain, fatigue and nausea. Barely sleep and the tramadol has lost its affect. Self employed but can barely work. Any advice? I wrote to my MP a few days ago I am so desperate. Doctors are flat out but no resources.
Nicholaabroad
in
Endometriosis UK
5 years ago
2 operations for one cyst and Zoladex injection
(I know I have spelt the name wrong of the injection). Privately by 2 top surgeons they said they could take the endometrioma out (5 by 5 by 4cm) in one operation. On NHS they want to do 2 to preserve ovary (I am ok with that). But they want to give me the injection too. I have spent a lot of money on
(I know I have spelt the name wrong of the injection). Privately by 2 top surgeons they said they could take the endometrioma out (5 by 5 by 4cm) in one operation. On NHS they want to do 2 to preserve ovary (I am ok with that). But they want to give me the injection too. I have spent a lot of money on
Hidden
in
Endometriosis UK
5 years ago
Zoladex side effects
Have just come to the end of a three month injection and had a new one in yesterday (monthly instead of 3 month one due to mix up at hospital). Have had the mother of all migraines last night and feel absolutely beaten up today. Also been having awful hot sweats and some pain for the last week or so
Have just come to the end of a three month injection and had a new one in yesterday (monthly instead of 3 month one due to mix up at hospital). Have had the mother of all migraines last night and feel absolutely beaten up today. Also been having awful hot sweats and some pain for the last week or so
Hidden
in
Endometriosis UK
5 years ago
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Still having PMS-like symptoms, anyone else?
Started letrozole and Zoladex in January, ibrance started in mid-Feb. prior to getting MBC diagnosis, i tracked my period via an app (who wants to schedule a vacation or ax appt while on their period, right?) My last regular period was in early February none since...i was feeling some of my usual PMS
Started letrozole and Zoladex in January, ibrance started in mid-Feb. prior to getting MBC diagnosis, i tracked my period via an app (who wants to schedule a vacation or ax appt while on their period, right?) My last regular period was in early February none since...i was feeling some of my usual PMS
SpongebobMom
in
SHARE Metastatic Breast Cancer
5 years ago
Stage 4 Endo, Depo injections a Nightmare....
Hi there everyone! I have a longstanding history of endo, rectovaginal endometriosis. Surgery would be very risky as it is associated with high risk of bowel injury! The treatment strategy was to buy time until I went through the natural menopause, which is happening now! I am 49 years old. I had a course
Hi there everyone! I have a longstanding history of endo, rectovaginal endometriosis. Surgery would be very risky as it is associated with high risk of bowel injury! The treatment strategy was to buy time until I went through the natural menopause, which is happening now! I am 49 years old. I had a course
LisaG17
in
Endometriosis UK
5 years ago
Zoladex
Just wanting to hear what your next steps were after receiving Zoladex injections? My follow up appointment is tomorrow and I really don’t know what to expect!
Just wanting to hear what your next steps were after receiving Zoladex injections? My follow up appointment is tomorrow and I really don’t know what to expect!
Evangelinie
in
Endometriosis UK
5 years ago
Pain in lower abdomen what is it??
Hey, I'm hoping someone can help me out. Just over a year ago I was diagnosed with endometriosis, which was burnt away. And coil inserted, I still had irregular bleeding so was then put on a 6month course of zoladex injections which worked well. They ended in Feb, since then I keep getting stabbing
Hey, I'm hoping someone can help me out. Just over a year ago I was diagnosed with endometriosis, which was burnt away. And coil inserted, I still had irregular bleeding so was then put on a 6month course of zoladex injections which worked well. They ended in Feb, since then I keep getting stabbing
Lydm
in
Endometriosis UK
5 years ago
AMH of 0.6 - next steps?
Hi everyone, I am just looking for some advice really. I had an AMH blood test done which came back as 0.6. I had this blood test around 5 and a half weeks after taking the last of my 3 month dose of the Zoladex injection. My gynae says it might be so low because that is still in my system. What do
Hi everyone, I am just looking for some advice really. I had an AMH blood test done which came back as 0.6. I had this blood test around 5 and a half weeks after taking the last of my 3 month dose of the Zoladex injection. My gynae says it might be so low because that is still in my system. What do
Megandmog
in
Fertility Network UK
5 years ago
Rectal bleeding.
Hi I would love some advice. I have endometriosis had 1 x lap so far and had 3 months on zoladex which finished in Feb. Over the last month or so I've been really nauseous and started experiencing really bloating again. I am feeling so uncomfortable. Over the last week I have also noticed rectal bleeding
Hi I would love some advice. I have endometriosis had 1 x lap so far and had 3 months on zoladex which finished in Feb. Over the last month or so I've been really nauseous and started experiencing really bloating again. I am feeling so uncomfortable. Over the last week I have also noticed rectal bleeding
Sabz2404
in
Endometriosis UK
5 years ago
ultrasound- advise
Hi All, Just looking for some advice, I have endo- diagnosed just over a year ago. In Feb I finished a 6-month course of Zoladex injections (which worked great) since I have finished I have been experiencing lots of lower abdominal pain. I went for an ultrasound on Friday & the lady said my results
Hi All, Just looking for some advice, I have endo- diagnosed just over a year ago. In Feb I finished a 6-month course of Zoladex injections (which worked great) since I have finished I have been experiencing lots of lower abdominal pain. I went for an ultrasound on Friday & the lady said my results
Lydm
in
Endometriosis UK
5 years ago
Triptorelin/ zoladex and periods returning
Hi there guys how long after stopping triptorelin, or zoladex did it take for your periods to come back. Ive had coil fitted and now it's a waiting game again x
Hi there guys how long after stopping triptorelin, or zoladex did it take for your periods to come back. Ive had coil fitted and now it's a waiting game again x
Kelsa
in
Endometriosis UK
5 years ago
10 weeks on - 2nd surgery - when will I be me again? Advise please
Hi All ... Beginning of March I had my second surgery. My first surgery (March 2018) was to remove two chocolate cysts in each ovary. They investigated also in this surgery and found serve endometriosis and my left tube was blocked. I then was put on zoladex which to begin with was a real adjustment
Hi All ... Beginning of March I had my second surgery. My first surgery (March 2018) was to remove two chocolate cysts in each ovary. They investigated also in this surgery and found serve endometriosis and my left tube was blocked. I then was put on zoladex which to begin with was a real adjustment
Rachel_1666
in
Endometriosis UK
5 years ago
How to remove Zoladex scars
Hey everyone, I finished zoladex a while ago now but I have 4 marks from where the injection was placed in my lower stomach and I really hate them/ feel self-conscious as they are quite big. How can I like reduce the appearance of them or get rid of them? I also have a mark from the depo-Provera
Hey everyone, I finished zoladex a while ago now but I have 4 marks from where the injection was placed in my lower stomach and I really hate them/ feel self-conscious as they are quite big. How can I like reduce the appearance of them or get rid of them? I also have a mark from the depo-Provera
princessk09
in
Endometriosis UK
5 years ago
Endo and Zoladex
Hi Diagnosis 1yr ago. Endometriosis of the abdominal wall. Operation last September to remove tumor which was stuck to my cesarean scar and abdominal wall and nodules on right rectus flank. I learnt from symptoms returning and confirmation by MRI that it was back 6 months after the op. Consultant suggested
Hi Diagnosis 1yr ago. Endometriosis of the abdominal wall. Operation last September to remove tumor which was stuck to my cesarean scar and abdominal wall and nodules on right rectus flank. I learnt from symptoms returning and confirmation by MRI that it was back 6 months after the op. Consultant suggested
Boudica8
in
Endometriosis UK
5 years ago
Work and endo
Hi so i had a lap to remove large cysts on both ovaries and endo on stomach lining and womb in march i returned to work after 4 weeks, on a 5 week checkup with consultant the cysts had already returned and were measuring at 5cm and 7cm this was also with me being on zoladex injections, having the coil
Hi so i had a lap to remove large cysts on both ovaries and endo on stomach lining and womb in march i returned to work after 4 weeks, on a 5 week checkup with consultant the cysts had already returned and were measuring at 5cm and 7cm this was also with me being on zoladex injections, having the coil
Adventure101
in
Endometriosis UK
5 years ago
LOW PSA BUT CT SCAN PROGRESSION
On Zytiga/ prednisone and Zoladex for 14 months. PSA went down to < 0.008 in October 2018 and slowly rose to 0.026 in April 2019 and then drop to 0.016 in April 2019. Read my profile for more details. Above seems great yes? But I have a C3 neck tumour grown from 5 mm in September 2018 to 20mm end of
On Zytiga/ prednisone and Zoladex for 14 months. PSA went down to < 0.008 in October 2018 and slowly rose to 0.026 in April 2019 and then drop to 0.016 in April 2019. Read my profile for more details. Above seems great yes? But I have a C3 neck tumour grown from 5 mm in September 2018 to 20mm end of
nobaday
in
Advanced Prostate Cancer
5 years ago
Zoladex Injections
Hi everyone, I’ve just had my final Zoladex injection (6th), had all the side effects that go with it especially the hot flushes!! My gynae told me after this course of injections I’d be symptom free however this is not the case as of yet. I was wondering if anyone who has finished the course of injections
Hi everyone, I’ve just had my final Zoladex injection (6th), had all the side effects that go with it especially the hot flushes!! My gynae told me after this course of injections I’d be symptom free however this is not the case as of yet. I was wondering if anyone who has finished the course of injections
Evangelinie
in
Endometriosis UK
5 years ago
Firmagon, Xtandi and Radiation
Was on Zoladex 10,8mg 12 weekly for 5 years.Had a PETSCAN ,indicated no metestases outside the Prostate.Oncologist determined that due to rising PSA ,doubled in 3 Months. and became resistant to the Zoladex treatment.The Dr put me on Firmagon,initial triple shot, to be followed by monthly shot as well
Was on Zoladex 10,8mg 12 weekly for 5 years.Had a PETSCAN ,indicated no metestases outside the Prostate.Oncologist determined that due to rising PSA ,doubled in 3 Months. and became resistant to the Zoladex treatment.The Dr put me on Firmagon,initial triple shot, to be followed by monthly shot as well
Andrevz
in
Advanced Prostate Cancer
5 years ago
Can I discontinue Zoladex after I year instead of taking it for 2?
I am 77 years old and was diagnosed with prostate cancer through a biopsy taken during a TURP in August 2016. After watchful waiting the PSA started rising to 10.3 by April 2018. A biopsy and PSMA PET showed that I had a Stage T3N0M0 tumor (with a Gleason 5+3). After a Zoladex 0.8 injection on
I am 77 years old and was diagnosed with prostate cancer through a biopsy taken during a TURP in August 2016. After watchful waiting the PSA started rising to 10.3 by April 2018. A biopsy and PSMA PET showed that I had a Stage T3N0M0 tumor (with a Gleason 5+3). After a Zoladex 0.8 injection on
Jazzophile
in
Advanced Prostate Cancer
5 years ago
Zoladex side effects
Hey everyone, just wondered if you could share your experiences of Zoladex for endo? It's only been 4 days since I had my first Zoladex injection and I feel like its thrown my whole body out of whack. I had to stay home from work on Monday as I was so dizzy, nauseous and spaced out. I have been having
Hey everyone, just wondered if you could share your experiences of Zoladex for endo? It's only been 4 days since I had my first Zoladex injection and I feel like its thrown my whole body out of whack. I had to stay home from work on Monday as I was so dizzy, nauseous and spaced out. I have been having
lizzie1293
in
Endometriosis UK
5 years ago
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