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how to reduce pain in fingers without Methotraxate? Update
So after using small amounts of NSAID cream for painful fingers, about 2 months ago I started using ice again and my pain disappeared. Was it the ice or was it just the time for the pain to subside? I don't know but I have been completely pain free for about 2 months. Since June I have been walking about
So after using small amounts of NSAID cream for painful fingers, about 2 months ago I started using ice again and my pain disappeared. Was it the ice or was it just the time for the pain to subside? I don't know but I have been completely pain free for about 2 months. Since June I have been walking about
kulina
in
PMRGCAuk
2 years ago
Nucynta
Struggling with chronic pain . Taking tramadol 200mg but not helping. Doc has supplemented with Nucynta 50mg 3x day. Any one have any experience as to how long it takes to get relief, first few days of taking unfortunately no relief. Thanks in advance for any feedback, blessings!
Struggling with chronic pain . Taking tramadol 200mg but not helping. Doc has supplemented with Nucynta 50mg 3x day. Any one have any experience as to how long it takes to get relief, first few days of taking unfortunately no relief. Thanks in advance for any feedback, blessings!
Lespauljoe
in
My MSAA Community
2 years ago
Plasmapheresis / Therapeutic Plasma Exchange, TPE
TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the
TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the
Purple-Bike
in
Advanced Prostate Cancer
2 years ago
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Leflunomide next drug doctor wants me to try
I ned your help again please. After a million blood tests and a PET- CT everything points to PMR diagnosis which I got 3 years ago being correct . (who would have thought it). New consultant now started the relentless you need to get your steroids down by 2.5 per 2 weeks. I told her that's not happening
I ned your help again please. After a million blood tests and a PET- CT everything points to PMR diagnosis which I got 3 years ago being correct . (who would have thought it). New consultant now started the relentless you need to get your steroids down by 2.5 per 2 weeks. I told her that's not happening
Pawscat11
in
PMRGCAuk
2 years ago
IS THIS THE START OF MY RA ?
This week my Pred came down from 55mg to 50mg and within a day or so the fingers on my right hand had started to seize up and go all stiff, this has happened on a few occasions this week until last night when I could not move them normally I had to physically manipulate them with my other hand. For
This week my Pred came down from 55mg to 50mg and within a day or so the fingers on my right hand had started to seize up and go all stiff, this has happened on a few occasions this week until last night when I could not move them normally I had to physically manipulate them with my other hand. For
WHL67
in
PMRGCAuk
2 years ago
best products
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
BonnyB
in
LUPUS UK
2 years ago
H2O2 therapy
Because I reject the SOC of take this and this until it doesn’t work anymore and hopefully something else will come down the pipeline before you die, I’m throwing the kitchen sink at it now. I discovered this book “the one minute cure” after reading a book called “the greatest manifestation principle
Because I reject the SOC of take this and this until it doesn’t work anymore and hopefully something else will come down the pipeline before you die, I’m throwing the kitchen sink at it now. I discovered this book “the one minute cure” after reading a book called “the greatest manifestation principle
No_stone_unturned
in
Advanced Prostate Cancer
2 years ago
some of the diy solutions for riding with foot drop
so when I first started having trouble with foot drop it made keeping my feet on the recumbent pedals tough so I made little wooden pads that clipped to my pedals, they were carved to fit my feet exactly thereby cradling my foot to the pedals and was able to ride like that for several more years
so when I first started having trouble with foot drop it made keeping my feet on the recumbent pedals tough so I made little wooden pads that clipped to my pedals, they were carved to fit my feet exactly thereby cradling my foot to the pedals and was able to ride like that for several more years
Hidden
in
My MSAA Community
2 years ago
GCA, now PMR & Rheumatoid Arthritis as well
Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in addition to GCA which I’ve had since July last year. I am currently on 12mg of Pred and have been trying to reduce to 11 which has been difficult
Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in addition to GCA which I’ve had since July last year. I am currently on 12mg of Pred and have been trying to reduce to 11 which has been difficult
Hidden
in
PMRGCAuk
2 years ago
Monitoring Lactate dehydrogenase (LDH)
Do all MOs monitor LDH regularly? Our MO in the UK does not. Whenever we have a chance to get it done, we monitor it ourselves. If I look at my husband's ALP, it does not seem to correlate to PSA rises in a pattern but LDH appears to do so. In June, before starting Docetaxel, his PSA was 99 and LDH
Do all MOs monitor LDH regularly? Our MO in the UK does not. Whenever we have a chance to get it done, we monitor it ourselves. If I look at my husband's ALP, it does not seem to correlate to PSA rises in a pattern but LDH appears to do so. In June, before starting Docetaxel, his PSA was 99 and LDH
spw1
in
Advanced Prostate Cancer
2 years ago
Alternate treatment for FND/FMD affecting gait and balance
My gait and balance are both terrible, and I have been diagnosed with FMD. The only treatments which have been suggested to me are physical therapy and cognitive behavior therapy. Both are totally ineffective for me. Does anyone know of other treatments for FND/FMD which affects ONLY GAIT AND BALANCE
My gait and balance are both terrible, and I have been diagnosed with FMD. The only treatments which have been suggested to me are physical therapy and cognitive behavior therapy. Both are totally ineffective for me. Does anyone know of other treatments for FND/FMD which affects ONLY GAIT AND BALANCE
sgaetna2013
in
Functional Neurological Disorder - FND Hope
2 years ago
Advice on taking Leflunomide
Hi I’m new to the forum but have reading all your posts and do not feel alone in this awful condition of PMR. I was diagnosed October 2021 at the age of 60. I have had 3 relapses since them and after reading your posts feel this could be due to my prednisone being reduced too quickly. My consultant
Hi I’m new to the forum but have reading all your posts and do not feel alone in this awful condition of PMR. I was diagnosed October 2021 at the age of 60. I have had 3 relapses since them and after reading your posts feel this could be due to my prednisone being reduced too quickly. My consultant
Hidden
in
PMRGCAuk
2 years ago
Flare ups and coping with family life…. 😞
Hi all, hope everyone is feeling some evening rest! So this week I have had a terrible flare up and have felt bed ridden.. I have my boys to look after and it’s the summer hols of course. Just wondering if anyone has any advice or ideas on ways to manage family life and resting ? I mean I just get
Hi all, hope everyone is feeling some evening rest! So this week I have had a terrible flare up and have felt bed ridden.. I have my boys to look after and it’s the summer hols of course. Just wondering if anyone has any advice or ideas on ways to manage family life and resting ? I mean I just get
Busymumma22
in
Fibromyalgia Action UK
2 years ago
Update on Leflunomide and Alcohol
I've now had an appointment with Dr Mackie and as my blood results are all satisfactory I've got the go-ahead to have a glass of wine now and then - yay! I've been trying a few alcohol free (0.5%) beers, a few of which are OK. I prefer ones that are less citrussy, like Lucky Saint. All seems to be
I've now had an appointment with Dr Mackie and as my blood results are all satisfactory I've got the go-ahead to have a glass of wine now and then - yay! I've been trying a few alcohol free (0.5%) beers, a few of which are OK. I prefer ones that are less citrussy, like Lucky Saint. All seems to be
PastelsinArt
in
PMRGCAuk
2 years ago
NAD, Thiamine (B1) and Day 63 of TTDF 7/18/22.
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Someone asked, if I ever heard of NADH? I believe when a cure is found for PD, it will a combination of factors. I take NMN which supposedly increases NAD which is the
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Someone asked, if I ever heard of NADH? I believe when a cure is found for PD, it will a combination of factors. I take NMN which supposedly increases NAD which is the
Gcf51
in
Cure Parkinson's
2 years ago
Cold Laser Therapy?
Hello, I have primary lower leg lymphedema, and currently am uncontrolled in the left leg. My chiropractor has offered to do cold laser therapy to see if it will help my leg swelling go down. I am a little nervous, but am also frustrated that the swelling hasn't improved since my fall in March.
Hello, I have primary lower leg lymphedema, and currently am uncontrolled in the left leg. My chiropractor has offered to do cold laser therapy to see if it will help my leg swelling go down. I am a little nervous, but am also frustrated that the swelling hasn't improved since my fall in March.
GabbiD44
in
LSN
2 years ago
Worsening PA symptoms after Covid
Just to give background - I had quite significant
neuropathies
when I was first diagnosed (bladder nerves stopped working) so I suspect I should have been referred then and should likely be on 2 monthly injections rather than 3 but I find it very hard to get any increase from my GP so I supplement my
Just to give background - I had quite significant
neuropathies
when I was first diagnosed (bladder nerves stopped working) so I suspect I should have been referred then and should likely be on 2 monthly injections rather than 3 but I find it very hard to get any increase from my GP so I supplement my
JadeRR
in
Pernicious Anaemia Society
2 years ago
how to reduce pain in fingers without Methotraxate?
I’ve had PM since March 2016 but finally diagnosed September 2016 and prescribed 20 mg Pred, quickly reduced to 15 mg and then 10 mg. Slow reduction after that, kind of tricky reducing after 7 mg but I’ve finally reduced to 3 mg. this year. At 4 mg I felt great and reduced to 3 mg. very slowly. I’ve
I’ve had PM since March 2016 but finally diagnosed September 2016 and prescribed 20 mg Pred, quickly reduced to 15 mg and then 10 mg. Slow reduction after that, kind of tricky reducing after 7 mg but I’ve finally reduced to 3 mg. this year. At 4 mg I felt great and reduced to 3 mg. very slowly. I’ve
kulina
in
PMRGCAuk
2 years ago
Yikes! According to RXlist.com you should NOT take Methylene Blue and Levadopa
Yikes! According to RXlist.com you should NOT take Methylene Blue and Levadopa: https://www.rxlist.com/drug-interactions/methylene-blue-oral-and-levodopa-oral-interaction.htm "methylene blue oral and levodopa oral methylene blue oral and levodopa oral both increase affecting serotonin levels in the
Yikes! According to RXlist.com you should NOT take Methylene Blue and Levadopa: https://www.rxlist.com/drug-interactions/methylene-blue-oral-and-levodopa-oral-interaction.htm "methylene blue oral and levodopa oral methylene blue oral and levodopa oral both increase affecting serotonin levels in the
Bolt_Upright
in
Cure Parkinson's
2 years ago
Salvage Radiation Induced Proctitis
I completed salvage radiation around a year and 3 months ago. Since then I’ve had issues with my gut, specifically cramps in the morning and irregularity. This week I had a routine colonoscopy and asked the doc to advise whether he could see any damage resulting from radiation. He advised that I have
I completed salvage radiation around a year and 3 months ago. Since then I’ve had issues with my gut, specifically cramps in the morning and irregularity. This week I had a routine colonoscopy and asked the doc to advise whether he could see any damage resulting from radiation. He advised that I have
billd9946
in
Prostate Cancer And Gay Men
2 years ago
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