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Love-handles as injection site?
I started taking glatiramer acetate (3 times a week) 2 months ago, and I'm eager to rotate my injection sites to avoid permanent damage. The booklet I was given with my injector shows the front of the thighs, the belly area, the back of the arms, and the upper sides of the butt. The love-handles seem
I started taking glatiramer acetate (3 times a week) 2 months ago, and I'm eager to rotate my injection sites to avoid permanent damage. The booklet I was given with my injector shows the front of the thighs, the belly area, the back of the arms, and the upper sides of the butt. The love-handles seem
FuzzyBoots
in
My MSAA Community
4 years ago
What is patches of goose bumps on right arm
Does anyone know what causes patches of goose bumps following a tingling sensation? I get this on my right arm frequently. Also headaches and muscle weakness
Does anyone know what causes patches of goose bumps following a tingling sensation? I get this on my right arm frequently. Also headaches and muscle weakness
Nataliewilson
in
Functional Neurological Disorder - FND Hope
4 years ago
Can someone help me with this
I have been getting these sensations on my body, mostly my right arm that’s followed by patches of bumps similar to goose bumps but only on one arm or leg, also other symptoms like headaches. Does anyone know what this could be
I have been getting these sensations on my body, mostly my right arm that’s followed by patches of bumps similar to goose bumps but only on one arm or leg, also other symptoms like headaches. Does anyone know what this could be
Nataliewilson
in
Functional Neurological Disorder - FND Hope
4 years ago
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Another Coronavirus Update.....
Did anyone watch our President Trump today?? The scientist that spoke today at the podium.. About different chemicals that kill the virus on hard surfaces..., Bleach kills the virus in five minutes... Isopropyl Alcohol kills the virus in thirty seconds.... Wait for it.... The goofy 🙃 reporter that asks
Did anyone watch our President Trump today?? The scientist that spoke today at the podium.. About different chemicals that kill the virus on hard surfaces..., Bleach kills the virus in five minutes... Isopropyl Alcohol kills the virus in thirty seconds.... Wait for it.... The goofy 🙃 reporter that asks
Hidden
in
My MSAA Community
4 years ago
Ampyra Positive effect
I’ve taken ampyra 5 days now and when i walked with my husband yesterday and our dogs he (husband) said it looked like my foot was dragging less!! It was still hard to walk right but i started noticing that it was easier to walk without foot drop! Im sure my shoes appreciate that too 😁 When my alarm
I’ve taken ampyra 5 days now and when i walked with my husband yesterday and our dogs he (husband) said it looked like my foot was dragging less!! It was still hard to walk right but i started noticing that it was easier to walk without foot drop! Im sure my shoes appreciate that too 😁 When my alarm
Neworleanslady
in
My MSAA Community
4 years ago
Help with medication. Targin Or Palexia
Taking Targin has helped me get a good night sleep but the side effects such as sweats, dry mouth and gut ache wants me to try something else. A friend takes Palexia and Lyrica together which helps her. Would Palexia have the same effect as Targin. Because of this corona virus I have to have a phone
Taking Targin has helped me get a good night sleep but the side effects such as sweats, dry mouth and gut ache wants me to try something else. A friend takes Palexia and Lyrica together which helps her. Would Palexia have the same effect as Targin. Because of this corona virus I have to have a phone
Shir_11
in
Restless Legs Syndrome
4 years ago
Petscan results
So I had my Petscan results and it's not showing vasculitis! Which is good news but it leaves no explanation for all my symptoms and the fact that the more I reduce the Pred the worse my symptoms get. I dont know if being on 40mg when I had the scan had any effect on results but they said not. During
So I had my Petscan results and it's not showing vasculitis! Which is good news but it leaves no explanation for all my symptoms and the fact that the more I reduce the Pred the worse my symptoms get. I dont know if being on 40mg when I had the scan had any effect on results but they said not. During
Poppy1647
in
PMRGCAuk
4 years ago
Prof D’Cruz and neuropathies, advice needed please.
Basically I need someone who specialises specifically in
neuropathies
. I’m in Belfast but willing to travel. I have a neuro too who treats the CNS part, reluctantly. Many thanks everyone, Terri X
Basically I need someone who specialises specifically in
neuropathies
. I’m in Belfast but willing to travel. I have a neuro too who treats the CNS part, reluctantly. Many thanks everyone, Terri X
TM1970
in
LUPUS UK
4 years ago
Sleep distruption
Can anyone recommend natural sleep supplements please,I have tried Magnesium Glycinate, melatonin and Tryptophan. I have under active thyroid and seem to wake a few times during the night and then have difficulty getting back to sleep.
Can anyone recommend natural sleep supplements please,I have tried Magnesium Glycinate, melatonin and Tryptophan. I have under active thyroid and seem to wake a few times during the night and then have difficulty getting back to sleep.
Yellow1955
in
Thyroid UK
4 years ago
Oxygen Therapy
Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS is active and your INR is low are your SATs low?
Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS is active and your INR is low are your SATs low?
WendyWoo50
in
Hughes Syndrome APS Forum
4 years ago
So much more at 54!
Wow! I can not believe it has been more than 1 and 1/2 yr that I have been here. I am truly living the best life I can despite PPMS! I have been on a mission to still do the things I love despite my limitations until I cannot do them anymore. I have been extremely busy with my sorority + I am a lay leader
Wow! I can not believe it has been more than 1 and 1/2 yr that I have been here. I am truly living the best life I can despite PPMS! I have been on a mission to still do the things I love despite my limitations until I cannot do them anymore. I have been extremely busy with my sorority + I am a lay leader
lexsarset
in
My MSAA Community
4 years ago
Hypertonic Pelvic Floor - Experts across the world please.
Hi. I was wondering if anyone can help me....I was diagnosed with a hypertonic pelvic floor at the start of last year. I have a great Pelvic Floor Therapist, pain specialist and physiotherapist supporting me through this horrible process. I live in Australia. I'm wondering if anyone has seen any AMAZING
Hi. I was wondering if anyone can help me....I was diagnosed with a hypertonic pelvic floor at the start of last year. I have a great Pelvic Floor Therapist, pain specialist and physiotherapist supporting me through this horrible process. I live in Australia. I'm wondering if anyone has seen any AMAZING
airls8
in
Pelvic Pain Support Network
4 years ago
Carpel tunnel
Recently diagnosed with pmr. My fingers pre Pred ballooned like sausages and hands and wrists very painful. All that has gone but having had it before when I broke a wrist in the past, I can feel a slight carpel tunnel tingle coming into both hands, anybody else ever had this?
Recently diagnosed with pmr. My fingers pre Pred ballooned like sausages and hands and wrists very painful. All that has gone but having had it before when I broke a wrist in the past, I can feel a slight carpel tunnel tingle coming into both hands, anybody else ever had this?
Dorsetgirl17
in
PMRGCAuk
4 years ago
Tapering
Trying to taper - went from 5 to 4.5 using DSNS method. Was fair with new shoulder discomfort. Tried to go to 4 and couldn't move without pain and so stiff. Went back to 5 and felt better. Been 2.5 years since diagnosis. Guess I'll stay at 5. See rheumy next month and she wants me off or on methotrexate
Trying to taper - went from 5 to 4.5 using DSNS method. Was fair with new shoulder discomfort. Tried to go to 4 and couldn't move without pain and so stiff. Went back to 5 and felt better. Been 2.5 years since diagnosis. Guess I'll stay at 5. See rheumy next month and she wants me off or on methotrexate
barbthy
in
PMRGCAuk
4 years ago
Symptoms of Autonomic and sensory neuropathy in MS?
New here wondering how many have neuropathy and muscle spasms? I was worked up by a neurologist to find out what diagnosis I have I have to wait another 5 weeks to see the clinic they wont give out that over the phone or by email so of course I think the worst right!
New here wondering how many have neuropathy and muscle spasms? I was worked up by a neurologist to find out what diagnosis I have I have to wait another 5 weeks to see the clinic they wont give out that over the phone or by email so of course I think the worst right!
Michiganpbc
in
My MSAA Community
4 years ago
And now my hips ache too ...
(I started this post a week ago and my hips are fine now!) For the last few days my hips have been a bit achey. At first i thought it may have been stiffness brought on from flying overnight from NY to Manchester last Wednesday night. Now I think it's more likely PMR as its so similar to the shoulder
(I started this post a week ago and my hips are fine now!) For the last few days my hips have been a bit achey. At first i thought it may have been stiffness brought on from flying overnight from NY to Manchester last Wednesday night. Now I think it's more likely PMR as its so similar to the shoulder
Louisepenygraig
in
PMRGCAuk
4 years ago
Interference From High-Dose Biotin Intake in Immunoassays for Potentially Time-Critical Analytes by Roche
This paper not only identifies and discusses biotin interference in blood test results - but also suggests specific approaches which can overcome the issue. At the time of posting, the full paper is freely accessible, albeit an Early Release version. That means, it might be updated before a final version
This paper not only identifies and discusses biotin interference in blood test results - but also suggests specific approaches which can overcome the issue. At the time of posting, the full paper is freely accessible, albeit an Early Release version. That means, it might be updated before a final version
helvella
Thyroid UK
in
Thyroid UK
4 years ago
neuropathy in feet?
anyone dealing with neuropathy in the feet? On Prednisone and Leflunomide for a year, tapering Presnisone because of stress fractures [now on prolia].......this stuff is a constant battle, like whack a mole: one thing under control and another crops up. at least the PMR pain is well under control
anyone dealing with neuropathy in the feet? On Prednisone and Leflunomide for a year, tapering Presnisone because of stress fractures [now on prolia].......this stuff is a constant battle, like whack a mole: one thing under control and another crops up. at least the PMR pain is well under control
composition
in
PMRGCAuk
4 years ago
Numbness or tingling
I have been getting a numbness on and off in the bottoms of my feet, but recently I have noticed the same thing happening occasionally in my hands as well, mostly in my fingers. Has anyone else had this occur? Although it happens sporadically and not often, I still feel it could be linked to the AMN
I have been getting a numbness on and off in the bottoms of my feet, but recently I have noticed the same thing happening occasionally in my hands as well, mostly in my fingers. Has anyone else had this occur? Although it happens sporadically and not often, I still feel it could be linked to the AMN
Slgrooms
in
AMN EASIER
4 years ago
Lupus Has Nerve Shows Large International Study
Most of the
neuropathies
resolved or improved over time. Study authors concluded: “PNS disease is an important component of total NPSLE and has a significant negative impact on health‐related quality of life.
Most of the
neuropathies
resolved or improved over time. Study authors concluded: “PNS disease is an important component of total NPSLE and has a significant negative impact on health‐related quality of life.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
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