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Neomycin / Prednisolone
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Reevaluation for Diagnosis
Went to rheumatologist on Friday, dragged myself in with so much pain and lethargy. I was reduced from 20 mg to 0 in six days after being on prednisone for eight weeks. I also mentioned I had blurred vision and went to eye doc and they said I have cataracts and dry eyes. But also had some jaw pain and
Went to rheumatologist on Friday, dragged myself in with so much pain and lethargy. I was reduced from 20 mg to 0 in six days after being on prednisone for eight weeks. I also mentioned I had blurred vision and went to eye doc and they said I have cataracts and dry eyes. But also had some jaw pain and
3dogsheidi
in
PMRGCAuk
1 year ago
Relapse plus UTI
I took my 'last' quarter mg of prednisone in April this year, after four years of PMR. In the months since then have been plagued with constant colds etc (now over all that, finally got antibiotics to knock it all on the head), but that seems to have been very common in this country ( NZ) after Covid
I took my 'last' quarter mg of prednisone in April this year, after four years of PMR. In the months since then have been plagued with constant colds etc (now over all that, finally got antibiotics to knock it all on the head), but that seems to have been very common in this country ( NZ) after Covid
Tiredcat
in
PMRGCAuk
1 year ago
Prednisone to Hydrocortisone
My last visit to my rheumatologist she recommended I see an endocrinologist because my most recent Dexa scan (2022) hadn’t improved from my last one (2020). My Dexa scans say osteopenia but my rheumatologist looks at the reports and there’s some other formula that brings me into osteoporosis. So she
My last visit to my rheumatologist she recommended I see an endocrinologist because my most recent Dexa scan (2022) hadn’t improved from my last one (2020). My Dexa scans say osteopenia but my rheumatologist looks at the reports and there’s some other formula that brings me into osteoporosis. So she
1951grumpa
in
PMRGCAuk
1 year ago
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Gum Sensitivity on Prednisone
I am on 40 mg of prednisone for GCA. Does Prednisone cause gum sensitivty and brittle nails? My gums now bleed easily. They never did before CGA. Always had strong nails. Not anymore? Any comments much appreciated\ Groda
I am on 40 mg of prednisone for GCA. Does Prednisone cause gum sensitivty and brittle nails? My gums now bleed easily. They never did before CGA. Always had strong nails. Not anymore? Any comments much appreciated\ Groda
Groda
in
PMRGCAuk
1 year ago
What to do for the stiffness.
Coming up on 4 years since I was diagnosed with PMR and GCA. I have tapered to 2 mg of Prednisone daily. Labs are all good. The stiffness is not going away. Mornings are pretty bad, as well as during the night. If I sit still for more than 30 minutes I am so stiff I can not walk normally. Most of the
Coming up on 4 years since I was diagnosed with PMR and GCA. I have tapered to 2 mg of Prednisone daily. Labs are all good. The stiffness is not going away. Mornings are pretty bad, as well as during the night. If I sit still for more than 30 minutes I am so stiff I can not walk normally. Most of the
Cgt1151
in
PMRGCAuk
1 year ago
Latest visit to my Physio, part 2.
One month on from my joint physio appointment, my usual Rheumatology Physiotherapist, and the Spinal Physiotherapist. My post a month ago, "Latest visit to my Physio", explained that it didn't go very well when the Spinal Physio asked what dose of Pred I was on. She wanted me to reduce 1mg per month
One month on from my joint physio appointment, my usual Rheumatology Physiotherapist, and the Spinal Physiotherapist. My post a month ago, "Latest visit to my Physio", explained that it didn't go very well when the Spinal Physio asked what dose of Pred I was on. She wanted me to reduce 1mg per month
pmrgcavictim
in
PMRGCAuk
1 year ago
advice on not taking meds for a day
hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. 🙈 They have told me not to take my steroid’s tomorrow and it will not matter. I’ve tried to contact the the rheumatologist
hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. 🙈 They have told me not to take my steroid’s tomorrow and it will not matter. I’ve tried to contact the the rheumatologist
lennysmummy
in
PMRGCAuk
1 year ago
Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
1 year ago
PMR resurgence
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
Mervetheswerve
in
PMRGCAuk
1 year ago
???Flare ..or not ?
Good afternoon, So been down to 5mg Prednisolone for over 2 months now for PMR and seem to go up and down in terms of aches in my ribs , shoulders and hips. They are not severe and would be more than manageable on their own but it’s the awful fatigue . Two weeks ago I actually felt completely normal
Good afternoon, So been down to 5mg Prednisolone for over 2 months now for PMR and seem to go up and down in terms of aches in my ribs , shoulders and hips. They are not severe and would be more than manageable on their own but it’s the awful fatigue . Two weeks ago I actually felt completely normal
5goFlotilla
in
PMRGCAuk
1 year ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
1 year ago
Stopping abiraterone
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
chickgreen
in
Advanced Prostate Cancer
1 year ago
living with GCA
hi everyone I’m just looking for a bit of guidance on how to deal with the side effects of the prednisolone. I’m struggling to manage my weight as I can’t exercise as much as I would like due to working long hours. I’m having really bad anxiety and a feeling of not being myself I don’t recognise the
hi everyone I’m just looking for a bit of guidance on how to deal with the side effects of the prednisolone. I’m struggling to manage my weight as I can’t exercise as much as I would like due to working long hours. I’m having really bad anxiety and a feeling of not being myself I don’t recognise the
Amydyton02
in
PMRGCAuk
1 year ago
Chronic
3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work, Exray, ENT, Allergist, Pulmonologist, Asthma Testing, Emergency Room a couple of times, meds galore, nose sprays, prednisone a few times, antibiotics
3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work, Exray, ENT, Allergist, Pulmonologist, Asthma Testing, Emergency Room a couple of times, meds galore, nose sprays, prednisone a few times, antibiotics
Frustratedo
in
Lung Conditions Community Forum
1 year ago
Paroxysmal AF and Asthma
Here I am again, asking questions about PAF! I also have bronchiectasis and asthma. I hadn't had an AF episode since mid April which was great. However over the last couple of weeks I have been having frequent asthma attacks. It came to a head on Sunday/Monday when I had been up most of the night
Here I am again, asking questions about PAF! I also have bronchiectasis and asthma. I hadn't had an AF episode since mid April which was great. However over the last couple of weeks I have been having frequent asthma attacks. It came to a head on Sunday/Monday when I had been up most of the night
PAP48
in
Atrial Fibrillation Support
1 year ago
nearly there
After nearly 10 years of prednisolone I am down to daily dose 0.5mg,/ 0.5mg /zero (recurring). I am feeling fairly tired most days and on bad days I have joint pain, slight nausea which is cured by two paracetamol and going back to bed. I am unsure if I should keep going and my system will eventually
After nearly 10 years of prednisolone I am down to daily dose 0.5mg,/ 0.5mg /zero (recurring). I am feeling fairly tired most days and on bad days I have joint pain, slight nausea which is cured by two paracetamol and going back to bed. I am unsure if I should keep going and my system will eventually
Crochetgirl65_
in
PMRGCAuk
1 year ago
new myocarditis MRI results; what now?
Dear Forumites, Yesterday I received results from my followup cMRI for myocarditis. The good news, it is better since the first cMRI in April. There is still swelling and enlargement of the heart walls, but not as much, and the EFs (ejection fractions) are both still down, but not as far down (55%
Dear Forumites, Yesterday I received results from my followup cMRI for myocarditis. The good news, it is better since the first cMRI in April. There is still swelling and enlargement of the heart walls, but not as much, and the EFs (ejection fractions) are both still down, but not as far down (55%
Britomartis29
in
British Heart Foundation
1 year ago
Prednisolone and red cheeks and taking hot flushes
This wonderful group has kept me sane over the past months since my mums GCA diagnosis begin March answering many queries ive had along the way.My mum had been on pregabalin 100mg twice a day which after her GCA diagnosis and the fact all her aches and pains disappeared once on prednisolone our GP decided
This wonderful group has kept me sane over the past months since my mums GCA diagnosis begin March answering many queries ive had along the way.My mum had been on pregabalin 100mg twice a day which after her GCA diagnosis and the fact all her aches and pains disappeared once on prednisolone our GP decided
Buchanan16
in
PMRGCAuk
1 year ago
enteric coated empty capsules
My pharmacist has never heard of enteric Prednisone. Where can I buy empty enteric capsules to put prednisone in.
My pharmacist has never heard of enteric Prednisone. Where can I buy empty enteric capsules to put prednisone in.
darkred
in
PMRGCAuk
1 year ago
gca symptoms
i've had pmr for almost five years now. i keep trying to reduce my dosage of prednisolone but each time i reach 8mgs the symptoms flare up again. i'm presently on 10mgs for the past two weeks. recently i've been having irritation in my eyes burning and blurred vision. it seems to be worse in the evening
i've had pmr for almost five years now. i keep trying to reduce my dosage of prednisolone but each time i reach 8mgs the symptoms flare up again. i'm presently on 10mgs for the past two weeks. recently i've been having irritation in my eyes burning and blurred vision. it seems to be worse in the evening
Reclus
in
PMRGCAuk
1 year ago
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