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kidney stones
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
Kimbad1990
in
Early CKD Support
6 months ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
3 months ago
Signatera tumor dna test
Has anyone heard of using the Signatera test from Natera to detect the presence of prostate cancer recurrence when PSA is rising but the PSMA PET scan is negative?
Has anyone heard of using the Signatera test from Natera to detect the presence of prostate cancer recurrence when PSA is rising but the PSMA PET scan is negative?
shihtzu124
in
Advanced Prostate Cancer
6 months ago
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PSA Dropped after 22 days of Zytiga
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
dac500
in
Advanced Prostate Cancer
6 months ago
Final Path Report After RALP (Dad - 74, G7- 4+3) , what’s next ?
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
EzioAudi7
in
Advanced Prostate Cancer
6 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
4 months ago
Hi everyone
Hi, it’s been a while but I’m still getting on with it , just out of hospital yet again with pericarditis again! I’m now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they haven’t cleared since December, I can’t remember the spelling but it’s a nasty bug.
Hi, it’s been a while but I’m still getting on with it , just out of hospital yet again with pericarditis again! I’m now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they haven’t cleared since December, I can’t remember the spelling but it’s a nasty bug.
Numptybrain
in
Lung Conditions Community Forum
3 months ago
Morning all!
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
Alliekat65
in
PMRGCAuk
3 months ago
psoriatic arthritis
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Beata0102
in
NRAS
3 months ago
Is this a lupus rash?
this is a rash on my leg it is appearing everywhere!
this is a rash on my leg it is appearing everywhere!
Jolevans
in
LUPUS UK
3 months ago
HRT anyone?
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
NewLupusdiag
in
LUPUS UK
3 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
3 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
3 months ago
overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
3 months ago
NZ made nutrient rescue.
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
LAJ12345
in
Cure Parkinson's
6 months ago
Good news
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Spiff
in
British Liver Trust
6 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
3 months ago
Help me understand
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
Crazycatlady_101
in
NRAS
3 months ago
Stress and thyroid disease
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
Atma123
in
Thyroid UK
3 months ago
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